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??? Fibromyalgia???

Apr 02, 2016 10:19 AM

I feel like everyone thinks I'm just crazy about the pain I have. They say I'm just getting old. I'm only 46 retired gymnast and NATURAL body builder, I can take pain . This is totally different!!!

Apr 02, 2016 10:35 AM

Nerve pain is unlike anything else. I don't have fibro but I have crps and o know it's really Hell. I was in the military, so I was working out every day for years but now I can't even do yoga every day. The pain is not just in your head, that is just something people say when they are in denial of what is happening. No one wants to believe people can really be in excruciating pain 24/7 while doctors can't help them much. I'm sorry you have to be frustrated by this too, I wouldn't wish chronic pain on anyone!

Apr 02, 2016 3:51 PM

No one really healthy starts feeling age related pain until their 60-70's. I'm 54 and feel 64-70+, depending on the days pain level. Today it could pass for a decrepit 80.

Apr 02, 2016 3:53 PM

O don't start with how old do you feel today...(giggling) I feel like I am in my early twenties in my head but the body feels like an old crone.

Apr 02, 2016 3:58 PM

BTW, Hairspray850, you are not crazy, just because others can't understand. Unless they can feel what we go through they do not know what to say. Hugs & prayers you can get answers and a method of coping so you have better days! 🙂💕🙏🌼

Apr 02, 2016 5:58 PM

I feel exactly the same and they can't put it being age with me in only 33 today's pain levels I could pass for 100 can hardly lift my arms hops really sore and head is pounding even my thirst feels like it could crush me X

Apr 02, 2016 8:40 PM

I am 36 and I Ave been having pain in my elbows since last year I did x rays, blood work they all came back showing nothing, when i touch a section in my elbows it's tender and it's both elbows.

Apr 02, 2016 9:03 PM

You are so right, there is no way to ever explain to anyone about nerve pain. It arrives & all else falls away. I have suffered for 17 years with it. One day my whole life turned upside down & is never coming back. I have a new reality. I feel so much empathy for everyone here! You are all Pain Warriors!!
I, too have trouble with my elbows. I use heat rub & DMSO. Sometimes it helps & sometimes not so well. Sending you a hug, Hairspray.

Apr 02, 2016 9:16 PM

Elbowpain36, has a doctor check your elbow for bursitis or tendinitis? I've had both, years ago, and it is tender to touch. I saw an Ortho doc. I opted you can get relief soon! Hugs & prayers. 🙂💕🙏🌼

Apr 02, 2016 9:25 PM

Sorry I got you mixed up Hairspray & Elbowpain!! I've lost my mind again. 2 hugs

Apr 03, 2016 6:23 AM

Hairspray850,
You are not crazy. Fibromyalgia pain is real. People cannot understand it because they cannot see it but those of us who suffers day in and day out identify with what you are feeling. It is not easy to live with this chronic pain but with the help of God you will get through it one day at a time. Try to focus on things that brings happiness to you and try to get to know your body. It is so much work that you have to do to try and identify the things that increase your pain and the things that brings a little bit of relief. I pray that you will have more pain free days than you normally experience..... Sending gentle hugs your way.

Apr 04, 2016 8:04 AM

I have fibro and the pain is so different than other pain that i have from doing things like working out or being sick. My dad is alway saying that hes 69 so his age means he is in more pain and clearly I can do more than he can. He didn't hurt like this in his late 30s and early 40s!

Apr 04, 2016 3:01 PM

We totally relate to that Myfairladies!

Apr 04, 2016 4:35 PM

I can relate im 23 and have cfs/me and there looking into a fm diagnosis also the pain is awfull not like any pain ive felt before

Apr 04, 2016 4:50 PM

I'm with you. Not even the pain clinic understands. I told them was trying to stop stressing my liver and kidneys etc, with OTC meds that weren't working but now I'm on 7 Rx's that aren't working! Anyone find an effective way to explain?

Apr 05, 2016 10:36 AM

I had seen a drawing once of how a woman with fibro looks to others - all made up and hair done and sorta smooth, and then how she actually felt - hair a frazzled mess, skin starting to wrinkle, slumping over, and just worn out.
It's hard to reconcile our inner pain with how we look to others.
There are good websites about our invisible illnesses that can help educate others about our world. And when others realize our story isn't changing, they come to realize we aren't making it up.
Of course, for a while I went the over reacting route. If I felt pain free om a touch or wrong move, I would squawk or cry out. It gelped others to know my worst ouchie spots. Oddly, when my niece was 4, she grabbed my arm where a bad fibro spot lived. We carefulky explained that I have an illnes that makes some spots feel ouchies, and that spot is a bad one. She never touched it again, and has always been gentle and nice to me. Sadly, she graduates from college the weekend after my spine surgery. I hate that I have missed so much of her growing up because I couldn't get out to play with her and her mom. But she understands.

Apr 05, 2016 11:58 AM

I really hate to be a burden but im in such severe pain and need someone to talk to

Apr 05, 2016 12:01 PM

Hi Shehaze67,
So sorry that you are having such a painful day. Where are you hurting?

Apr 05, 2016 12:03 PM

All over from head to toe

Apr 05, 2016 12:04 PM

I can certainly relate. What are u doing for the pain? Can you take a soak in Epson salt?

Apr 05, 2016 12:06 PM

I have tried everything and nothing works

Apr 05, 2016 12:08 PM

I've had some of those days. When I'm in that state I try to focus my mind on things other than the pain. I listen to music, read a good book or write in my journal.

Apr 05, 2016 12:08 PM

I pray that relief will come soon.

Apr 05, 2016 12:09 PM

I have tried it all but cant focus on nothibg because of all the pain

Apr 05, 2016 12:13 PM

I know, it's hard to focus when you are in pain. Where are you located? I'm in South Florida and it is a picture perfect day. I've just been looking out of the window at the amazing but sky and the peaceful breeze flowing through the trees.

Apr 05, 2016 12:14 PM

I enjoy nature..... what about you????

Apr 05, 2016 12:15 PM

Tiffin ohio its sunny but freezing hete which makes everything hurt even worse

Apr 05, 2016 12:18 PM

Of course, the cold weather is just horrible for my Fibromyalgia. I had to leave New Jersey during the winter months because my pain level is unbearable in the harsh winter weather.

Apr 05, 2016 12:19 PM

Do you have an electronic blanket???

Apr 05, 2016 8:20 PM

Amazon sells some blankets that are awesome & warm. Martex Super Soft Fleece Blankets by WestPoint Home, and the price is very cheap. They aren't electric though. I've given them as gifts and everyone likes the warmth they provide without overheating. Shehaze67, is likely the cold making you hurt all over, especially with these fronts coming down back to back. Try a warm bath soak and then get under some covers to get warm. If you have cold hands but some arthritic or crafter's gloves that have the fingertips cut out. I hope you feel better soon. Hugs & prayers you do! 🙂💕🙏🌼

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