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? for fibro women still having menstrual cycles

Jan 25, 2015 11:59 AM

Do you find before, during, after your cycle you hurt more and feel the fibro flare? For years I have been telling the doctor about a week before I start getting increasingly tired and hurt more. They have passed it off as pms. This is not pms it goes way beyond. If this is something you have is there anything that makes it better? I can't do heating pads, ice, bathes, hot tub or hot showers the heat or to cold hurt me.

Jan 25, 2015 6:25 PM

Ohhhh my gosh sham- TOTALLY! Every month either or all- before or during I get a flare. I was contemplating going on a birth control pill!

Jan 25, 2015 7:37 PM

Birth control doesn't stop the flare

Jan 25, 2015 8:36 PM

No birth control did not help the flare in fact I was on the 3 month pill and would still go through all menstrual symptoms every month like cramps, migraine, oily skin and so on. Everything except actually having a period. And the pill lowers your sex drive. I had a tubal ligation and it seemed such a waste to be on a medication I didn't need. I am sure this has something to do with us women being hormonal creatures. I mean men just have testosterone we have been blessed with multiple hormones. Has anyone had thier doctor take them seriously and found anything that helped?

Jan 25, 2015 9:20 PM

Nope. I asked to get tubes tied so I wouldn't have to take the birth control and the doctors refused on the basis that I'm 28 and apparently I will want kids in a few years. I've never wanted kids and my bf is just as broken as I am and can't take care of kids either. I don't think we will ever change our minds. The birth control didn't help my stomach problems and made the general pain a little worse, but I've never been given any good options so I'll stick with it. The cramps aren't as bad for me on the birth control but they still happen. Nothing really helps. Just the usual trying to stay moving, heat and a lot of Advil (I just deal with the resulting stomach problems). I have my period now and I have spent the weekend watching Star Wars because I don't want to do anything.

Jan 26, 2015 6:16 AM

Goto.....I wanted my tubes tied when I was 24 had 1 child and was mad they wouldnt. You never know what will happen in the future. Maybe you will feel better. It seems like relationships come and go anymore. Anyway long story short when I was in my mid 30's I met a man with no children, we were married and our son is now 9. I never thought I would want another child but I was glad the didn't do it when I was younger. You never know what tomorrow will bring. Have you tried the depo shots? My friend said the were much better than the pill.

Jan 26, 2015 6:37 AM

I did the depo shots and hated them. Instead of never bleeding I bled all the time. And they made me highly suicidal.

Jan 26, 2015 9:00 PM

Yikes on the depo, goto, I can relate most birthcontrol pills made me feel like I was go crazy with mood swings and at times suicidal. The things women have to go through! It seems like it is a forgotten matter everyone is on to the next big thing in the medical world when they haven't even figured out the ones they already have.

Jan 27, 2015 2:51 AM

Would never advise getting your turn tubes tied ever!!! I've never been the same since having them done at 25. Long story short but was loosing life's blood ending up in and out of hospital kept passing out needing transfusions every week for couple months. I had to have lining of womb lazered away and if that hadn't helped me I was going to have to get a hysterectomy! Would never advise it! But the answer to your question is yes before answered during periods it's he'll! X

Jan 27, 2015 9:12 AM

I have a flare before my cycle as well, including a migraine. I feel our hormones play a part in this for some reason. I've been on BC for most of my life, and I'm now pre-menopausal at the age of 38. I think going thru "the change" is causing my flares to worsen because the pill cannot balance out my hormones anymore. Just one more thing to add to the list of triggers beyond our control!

Jan 27, 2015 9:26 AM

Damn- I thought that birth control may help with some symptoms...

Jan 27, 2015 1:05 PM

Como: you are way to young go through menopause. I have had symptoms I thought were pre menopause but dr says it is not. I think the fibro makes me feel that way. I am 45 and ready for it.

Mrs flossy I am sorry your tubal ligation didn't work well for you. Mine was almost 10 years ago at the same time I had a c section and I haven't had any issues with it.

Jan 27, 2015 6:28 PM

Shammagren, it runs in the family, my mother began at the age 40. I decided not to have any children, which may be why I am starting early. I do think Fibro can add another level to hormone changes, no matter what stage you are at. I will say that I think it would be a whole lot worse if I wasn't on the pill.

Jan 27, 2015 9:15 PM

Ladies, take my advice and don't let a doctor remove your uterus unless its absolutely necessary, and get 2-3 opinions first! A doctor convinced me to have a hysterectomy at 37 for excessive bleeding. I'd never had cysts, until 7 years later. And they wouldn't stop growing even after 2 depo shots. Then I needed bilateral oophorectomy. Another 7 years and a 10 cm paraovarian cyst grew (from possible ovary cell remnants), adhering all my internal organs together. 3 major abdominals surgeries and now I have pelvic congestion syndrome, pelvic floor dysfunction, bladder & bowel incontinence, rectal & bladder prolapse. Keep your organs in place...they're there for a reason besides procreation, they keep everything in place! That's my opinion but I bet its not far from truth...and I'm trying to keep others from suffering similar fates as mine.

Jan 30, 2015 11:33 PM

I have been on many different BC. "Concoctions." Some made me suicidal and depressed. I had the mirena for 2 years and all it did was cause pain (it was twisted and the wire was wound up inside my uterus).

I finally found one that works (after a few months of mood swings and soreness). I only take the active pills--I do not get my period at all, ever. I have menstrual migraines and I get very depressed. I'm 39, and it makes me very sad that I didn't have kids.

Jan 31, 2015 7:40 AM

Starry I am sorry for the road of bc he!! I know from 16 on I had issues and I also became suicidal on some, migraines on others and also the depression. Women are stuck with bc and it messes with hormones terribly. I often wonder if that is not the cause of other issues. l am not sure what your medical condition is but women all over are having children later in life.

Jan 31, 2015 5:43 PM

Ok, so we have a lot of different hormones and some of them are thought to amplify the pain response, it's quite common for women with Fibro (and actively menstruating) to have flares right before or during menstruation.
I have increased skin sensitivity that feels painful (allodynia) during that time and general symptom increase as well.
I got a lot of help seeing a nurse practitioner who specialized in chronic pain issues and I take a progesterone tincture and did other things to regulate hormones better and that cyclical issue is way better than before :)

Jan 31, 2015 9:56 PM

Thank you for sharing elly something to look into. I tried progesterone years ago but that was before having skin issues around my cycle including rash and hives and sensitivity. I am glad you have found something to find some relief

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