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3 wks if flare and due injections in my spine on 21st

Jul 15, 2015 4:14 PM

Been in a big flare for 3 wks today! Sick and tiered of hurting and crying.
My legs are hurting literally my bones muscles even skin. Wake me up because they are sore aching tight an about to lock and spasm that's if I don't wake up screaming because of the pain! My feet are driving me mad even the arch of my foot has spasms and tingling like mad.My legs are purple about 70% of the day now with my feet and hands and lips!
My neck is feeling like someone is trying to force my head forward 😯 shoulder blades burn and feel like there swollen (muscles I mean). My lower back is hurrendous painful ubareble pain along with hips and groin 😢.
Today I went to my neuro appointment after being recommend by 3 different doctors and specialists that I should be seen because of the numbness pins n needles and loosing feelings in my arms and legs!
He basically said oh the purpleness is because I'm not mobile, and tingling ect is dues to my migraines and aura and fibromyalgia it's a mixture! He said 9h ur brain scan 3yr ago was normal and I said we'll I thought you said I had t 2 hypersensitivity he said "yeah but this normal! He said m6 mri spine and neck was n9rmal from may last year! I said but the mri said I have ddd, spondylosis, osteoarthritis, loss of disc height, bulging discs in multiple places he said "yeah you have but that's normal!
He did an assessment on me and put his hands on my shoulders and said 'you need to push me away' then he pushed on my shoulders and made me kinda screeam (not full just rather shocked especially at the sheer pain that went shooting through my spine with pains in my legs like electric shocks and it sent my legs to start jumping about and shaking! No apology or tissue nothing! just 'Ah it's never nice examine a patient with fibromyalgia" Wtf seriously man was this man mad! Is this the way everyone gets treated ??
It's a dam disgrace having to live like this and having to suffer crippling pain every day when the like of doctors make by feel like I'm either mad or wanting more diagnosis! Oh yeah sure I want more ! Erm no thanks I'd rather not have any and be back to working and earning a living and being a good mum and wife!
Sorry for rant and supernl8ng post but I'm sure annoyed and in pain 😢.
Anybody had the facet joint injections before? What was it like ? How long did the painlessness last I'm being awake when there doing it 😯.
Thanks for letting me vent 😊. 8 hope everyone is having a painless day as possible 😊 x

Jul 15, 2015 6:37 PM

What you're describing sounds like me, but for me back problems have been pretty much ignored because of everything else.
I feel like your doc has no idea how chronic pain works.
That sucks, and also I'd recommend looking up CRPS/RSD/causalgia because of your legs turning purple, and pounds and needles sensation.
What he said about the purple being caused by everything else frustrates me.
All those other things are symptoms, he should at least acknowledge that there is a cause.
Also, because of hypersensitivity I'd look into allodynia, just so you can have an explanation for the hypersensitivity.
Allodynia is also just a symptom.
It isn't right that he would be rough with you, especially knowing about hypersensitivity.
I don't understand how migraines, aura, and fibro would cause your legs to turn purple.
I am doing much better physically, but even though I'm back on my feet my limbs still turn red white or purple.
Would it be possible to get a second opinion?

Jul 15, 2015 7:54 PM

You really had nasty day and an nasty doc! I'm so sorry. I have been there. I think we all have at some point. It's like once they see fibromyalgia of other excusable diagnoses (sharing symptoms) they use that diagnosis as a crutch for all. I think you should seek a second opinion because he sounds like a quack. (((Hugs)))& prayers. 🙏🌼

Jul 18, 2015 12:54 PM

Thanks both of you 😊. The best of it is, I've had the tingling, pins and needles feeling on off for about 5yr! And it's been because of these issues migraines, loosing life blood, being anemic, having a vit d and calcium problem then it was because I have fibromyalgia! Honestly it's been one thing then another! And as for the purpleness being because of not being ery mobile hmm strange when it's sated about 3yr ago a circle the size of a tennis ball on left inner knee and it's now my hands, from thigh to toes! Even my husband said soon as he pushed on my shoulders that my legs started jerking and shaking and my hands shaking! Not to mention when he pressing on my foot my left one he said 3x to push him away and I was trying but it wasn't working well but he still dismissed that and didn't even tell him about my shaking he knows about me dropping things ect though! It was a second opinion well kind of as the 1st time I was ment to go they declined I go as said 'no point they think it's meds making me like this"!! I WASN'T taken any meds before this happened! I feel like I'm at the end now and nowhere to turn! Only person that actually listens is my gp! She's lovely and always says she's sorry and wishes she could do more! I did find out that for 8yr ever blood test I've had has came back saying I have "high red blood cells " but there not concerned! I don't know what this means though. X

Jul 18, 2015 3:55 PM

Mrsflossy, I feel the same about "one thing after another" because I've been like that since 2010. Could your PC doc refer you to a large specialized hospital or physician group? Maybe go see another doc and take no records of mention anyone but the PC doc. That way you'll get an uninfluenced exam and opinion. Hoping and praying something turns around for you soon! 🙏🌼

Jul 18, 2015 4:19 PM

Thanks hunny. I'm UK so just get who and whatever unless I want to go privately and couldn't afford to do that x

Jul 18, 2015 5:32 PM

I'm sorry youhD to deal with that to I feel your pain I'm fighting with the system also your in my prayer also All we can do is keep on trying to get (the Drs to see and feel the pain I'm going Thu

Jul 18, 2015 5:33 PM

Sorry fingers having hard time moveing right

Jul 19, 2015 1:51 AM

Thanks eddie sorry to hear your suffering too hunny! Nothing worse than having to deal with constant pain! X

Apr 11, 2016 7:28 PM

Hi MrsFlossy. I'm new to this so forgive me if you've already been helped.

I injured my spinal chord about 10 years ago from almost nothing (no fall or anything, just hyper extended) and have been dealing with crippling back pain for nearly a decade. I had a really bad last 12-15 months, and in particular I had something similar to what you're describing spontaneously happen last year. I couldn't use my legs to walk properly because of such severe pain, and it would wake me up constantly. I actually broke my foot and didn't know for a month because my body's pain receptor were so out of whack.

Here are a couple of things that might help. I'm not sure if you're taking anything at the moment, but Niacin seemed to give me a reaction that magnified some of the symptoms. Burning pain in all appendages and on my torso. I turned bright red when this would happen! So first, make sure not to take Niacin!

Second, one thing that seemed to help me to some extent was Cymbalta. I've been on it long term for a year now, and some of the symptoms have subsided. Now I'm back to my regular back agony, but I can walk again!

I sincerely hope you're feeling better. Don't hesitate to contact me f there is anything I can do to help!

Dan

Apr 11, 2016 7:32 PM

Oh also, I've found Gralise (extended release gabapentin) to be helpful in combination with the cymbalta. I hope this helps!!

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