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17 year old chronic pain patient of three years.

Apr 11, 2015 1:00 AM

I am 17 and i shredded some ligaments in my right knee when I was 14 playing softball. I needed a routine reconstruction surgery and it was the biggest mistake of my young life... i have had seven surgeries on my right knee and two surgeries on my left. My first doctor butchered me, leaving me with infection after infection. Serious staph infections to osteomyelitis. I have had picc lines and wound vacs and it has been a year on May 9th, since my last surgery and I have had severe chronic pain ever since and with my history of such serious infections, no orthopedic surgeons will try to help me, because they are scared of causing another infection, but apparently it is A-okay for a 17 year old to be a pain management patient and I just had an RFA to try to kill the nerves in my knees, but it didn't work, and apparently my knees are unsalvageable. AKA damaged beyond repair, meaning i need total knee replacements... BUT WHAT SURGEON ON THIS EARTH WILL GIVE A SEVENTEEN YEAR OLD DOUBLE KNEE REPLACEMENTS. but it doesnt matter that i am in constant pain, that I can hardly walk, that i have been taking pain medication for three years now. Like i am doing well in school, and im leaving for college in august and i just dont know how it is going to be possible... The pain is too bad for me to hardly function in high school. It just sucks and i guess im just venting because I have no one else to vent to. I dont know anyone who is going through what i am going through, so here I am...

Apr 11, 2015 9:54 AM

Maltb, I'm so sorry to hear what you've gone through. I'm 54 and lived into my 30s without any major issues. I now have many health issues including fibromyalgia & osteoarthritis. Its very difficult some days and I have some level of pain daily, since 2009. I have to make a conscious effort not to let my pain control me, and some days are much harder than others. I purposely count my blessings. And when I have a problem that a doctor isn't addressing I look for another doctor.

I know from my sisters recent knee replacement (age 60) that most don't occur until the patient is over 60, because they have to be repeated after 15-25 yes (they told her). Have you tried any type of bracing/splint to give more support and alleviate some pain? My dad has one replacement but because of his age and Alzheimer's/cognitive disruption after 2 surgeries, he has a full leg splint type brace. When he wears it he has much less pain. I'll be praying for you. Maybe you'll find a different doctor who can offer more. 🙏🌼

Apr 11, 2015 10:34 AM

Maltb I am so sorry that you are going thru this at your age. You maybe able to go to a children's hospital, and see what they could do for you. I didn't have to start dealing with debilitating pain until my 20's, where I hurt my TS got pretty much told that I would just have to live with the pain. I did until my mid 40's where I rehurt my TS,and herniated my L4 S1 with a uprooted nerve. I had an anteriordiskectomy on C5,6,7 the pain level went from a constant 9-10 to a 8-9 sometimes 10 pain level.I was diagnosed with Syringomyelia in 2004 with a Syrinx,Fibromyalgia, and Osteoarthritis. I have to live with pain meds, and with nerve pain meds., every day cannot function without them. I hope and pray that you can find a Dr that is willing to treat you and fix your knee. Don't give up something will work out for you, keep your faith strong and God will see you thru this, you are a strong young person and may touch someone's life with what you are going thru. Will keep you in my thoughts and prayers.

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