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20 years old!!

Mar 01, 2016 12:18 PM

To start off I'll
Say, I'm only 20 years old. I have had a long history of chronic pain. When I was 12 I suffered from terrible terrible chest pain, EVENTUALLY they diagnosed me with chosteocondritis. Still living today with chest pain that comes and goes. I was involved in a car wreck in 2012, which caused a severe concussion and scarring on my brain. All the doctors said my migraines shouldn't last over a week, they lasted two years and no medications ever helped, one day they just stopped. Every now and then I'd get a migraine but I was thankful that it was nothing like before. For the past two or three years I've been dealing with all over pain, depression, anxiety, and have been put on high blood pressure medications. Some days I feel fine, like nothing is wrong and I think "Am I crazy?! There's nothing wrong with me,". Then it'll hit me on another day and have me wanting to lie in bed all day crying. The pain started with just my wrists. We did nerve tests. I wAs diagnosed with carpal tunnel, along with arthritis and tendinitis. Now literally almost every joint hurts on me at times. Even the muscles running down my legs will have a terrible ache in them. My doctor said he thought it may be fibromyalgia, but send me on to a rheumatologist after I had a positive A.N.A blood test. Rheumatologist did blood work, said "you've got something going on, just not sure what". I had some positive blood work for lupus and some negative. He sent me for physical therapy on my hips(which I never did because that would only be a chip off of the iceberg & still no diagnosis). Told me not to come back until i did the physical therapy. Also, I've got high blood pressure. It took 3 doctors to finally put me on medication for it(thankfully they finally did). I do have a cardiologist looking into why my blood pressure may be high being so young, still waitin on that blood work. I live a normal life besides the pain and anxiety. I used to have trouble sleeping but I'm on medication to help me sleep that works well. I go to class and I do clinicals. Sometimes it does get unbearable but I refuse to let that stop me from living a normal life and saving lives!

Mar 01, 2016 12:21 PM

Also, waiting on a referral to a second rheumotologist.

Mar 01, 2016 12:46 PM

High blood pressure if you are tensing and panting from the pain, duh!! Sometimes you wonder who taught doctors about how the body responds to pain and pain management!

Mar 01, 2016 12:51 PM

My blood pressure would even be high on the days I wasn't hurting terribly. It had gotten so high one day I almost fainted. The medicine has to under control now though!

Mar 01, 2016 12:59 PM

That's good. At least one med is working, lol!
I have costo as well, it suuuucks. I went to a dr with chest pains and palpitations and trouble breathing (I live pretty close to that methane leak) and he said there's no sign of a heart attack, it must be the costo. Umm, doc, that wouldn't make my heart pound like this, and the pain is BEHIND my ribs.
2 weeks later and I'm still having pain,when I try to get active. Arg.
I use a TENS unit for my back pain, and a spray called Muscle Mist for areas of pain. Medical cannabis, especially edible cbd that doesn't make you feel loopy, helps on my very worst days, and can relax my brain.

Mar 01, 2016 1:04 PM

Don't overdo. I know it's hard, you feel well and have stuff to do, but you need to gain balance. Your body needs to slow down for now, recover what it can, and you need to learn how to get through all your days at a lower level so you can HAVE all your days.
I know it's hard, I'm 50 and still trying to remember that doing too much today means doing nothing but cry tomorrow!
No one who knows your life will judge you, and anyone who judges you without knowing your life doesn't deserve your presence in theirs!

Mar 01, 2016 1:10 PM

Thank you so Much! Yes it all sucks. Currently I'm on no pain medicination. And cannibis is illegal here in missisiippi. I am trying to take it day by day. Maybe one day someone will figure out what's wrong with me! Thanks for the advice!

Mar 06, 2016 10:03 AM

Princess most certainly words of wisdom. Simply I can not imagine going through the physical health issues you are going through at 20 yrs old. So young! Makes me shameful to complain. And you have experienced these things for so many years. I hear and appreciate your positive attitude. Thank you for sharing. And I agree 100% with Princess. Grace & Peace.

Mar 06, 2016 2:53 PM

You're story is similar to mine in many way only I'm older (45). I suspect lupus is my problem. I have a positive ANA too. They believe the positive test. They're starting to believe me now a year and half in because my finger turned blue in front of him. That's Raynaud's and it's autoimmune. Now they are looking into things more seriously. Don't finding answers. You know your body better then the docs do. Don't let make you believe it's in your head.

Mar 06, 2016 2:55 PM

*They didn't believe the positive ANA until recently.

Mar 06, 2016 3:20 PM

I'm 21 and I've been dealing with CRPS since I was 19 and chronic migraines since I was 12-13 because I have Lyme disease(just found out). It's not easy having all these medical problems when your young and haven't lived a lot of your life but we have to hope someday we will get somewhat better and be able to do more. I'm stuck in bed 20 hours a day currently and I also don't have any pain medication because nothing works on me. I deal with the pain by telling myself I can make it one more day and using medical marijuana which helps the depression and anxiety. I hope you find relief from your new rheumatologist! We all deserve to find something that will helps us! Don't stop working and fighting until your find it!

Mar 06, 2016 3:23 PM

Definitely see that second opinion rheumy!
Also be sure to request a copy of your bloodwork for your own records.
If you tested some blood tests positive for lupus, you might have uctd or sjogren's/sicca syndrome instead.

I personally had a positive ana, which fluctuates and ends up negative too... but my rheumy is type a and wont diagnose without checking off every symptom for lupus or sjogrens or both, so she pronounced me with uctd despite some elevated levels and significant symptom criteria.

They treat uctd with the same drugs as lupus and sjogrens (plaquenil as the first libe treatment) and monitor bloodwork and liverfunction yearly. Online research turned up if you are giung to be diagnosed with sjogrens or lupus instead of uctd it is usually within the first five years of your condition. Rheumys seem to contradict eachother more often then other doctors, so dont be totally suprised if you need a third opinion and rheumtaological bloodwork more than once a year.

Mar 07, 2016 7:44 PM

Simplysickly, I'm sorry you've suffered so long since childhood. It can't have been easy. I developed OA in my knees, and DDD spine in my late 20's, and migraines. I'm now 54 with fibro, sjogrens, hypothyroidism, osteopenia, and many other issue that cause chronic pain. I'm unable to take most pain meds, so I try to get through my days with Tylenol Arthritis or nothing. But thankfully when I was dx with Sjogrens & placed on Plaquenil, my fibro pain and flare intensities have been reduced from about a7-8 to a 3-4 daily avg pain. I've also developed weaknesses and imbalance over the past 4-5 years. I've been doing PT to help retrain muscles, and it's also helped learn pain by strengthening. I hope you will seek a second opinion, and third if necessary. Don't get discouraged if it takes time to get diagnosed. It often does. Hugs & prayers it won't take too much longer! 🙂💕🙏🌼

Mar 13, 2016 10:06 AM

Thanks so much!! Now I've been diagnosed with endometritis, starting rounds of antibiotics for it. Not sure if it's chronic or not but we're thinkin it is! Prayers for you all as well!

Mar 13, 2016 2:36 PM

I have CREST syndrome disease that I apparently have had since I was born. Just diagnosed a year ago, I am 42. Please look it up and see if anything relates to you. I finally had a rheum. doctor really take a look at my lab numbers. I have had similar issues as you. Good luck! & I am gonna take some of your positive attitude with me today in the rain.

Mar 13, 2016 7:38 PM

Simply, I've had endometreosis since 1985. I wasn't aware antibiotics were used for it. They've always cleaned mine out surgically. I hope it helps!

Mar 14, 2016 9:55 AM

He said he didn't think mine was endometriosis, but that it was endometritis. I will look up crests! I have never heard of it.

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