I've been waiting months for this rheumatologist appointment, begging for an emergency appointment. I get there today to be told he's not in, that he went home already and my appointment had been for 11:00 am. They asked me a bit over a week ago if I would move my appointment up to that time. I said no. THEY MOVED IT ANYWAY. I almost wanted to kill myself right there. After all of that they pulled this on me? MONTHS.
No. I won't take it. I see him Monday to get something to help until I get someone new, but I'm not going back there.
I asked to see a geneticist over six months ago. He said he would get me one but never did even after several requests. He has changed what he thinks I have every visit. He dismissed the theory of EDS given to me by a friend in the medical profession (complete with direct contact from them) after he had to google what it was because it was "too rare". Even after thinking it was JHS he gave me a steroid pack, putting me in the ER and making my condition get exponentially worse. It's possible that me not being able to even go to the supermarket anymore could be because of him. I'm so angry and so done.
I should have gotten someone new after the fiasco with the steroid pack, but I like to give the benefit of the doubt to people, and second chances. I feel so stupid. I should have listened to the shady bad feeling I got from my gut despite my first impression.
I'm sorry for being so negative but I haven't felt this hurt in years and I don't who else to talk to.