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A devistating blow from an already shit doctor

Jul 15, 2017 5:49 AM

I've been waiting months for this rheumatologist appointment, begging for an emergency appointment. I get there today to be told he's not in, that he went home already and my appointment had been for 11:00 am. They asked me a bit over a week ago if I would move my appointment up to that time. I said no. THEY MOVED IT ANYWAY. I almost wanted to kill myself right there. After all of that they pulled this on me? MONTHS.

No. I won't take it. I see him Monday to get something to help until I get someone new, but I'm not going back there.

I asked to see a geneticist over six months ago. He said he would get me one but never did even after several requests. He has changed what he thinks I have every visit. He dismissed the theory of EDS given to me by a friend in the medical profession (complete with direct contact from them) after he had to google what it was because it was "too rare". Even after thinking it was JHS he gave me a steroid pack, putting me in the ER and making my condition get exponentially worse. It's possible that me not being able to even go to the supermarket anymore could be because of him. I'm so angry and so done.

I should have gotten someone new after the fiasco with the steroid pack, but I like to give the benefit of the doubt to people, and second chances. I feel so stupid. I should have listened to the shady bad feeling I got from my gut despite my first impression.

I'm sorry for being so negative but I haven't felt this hurt in years and I don't who else to talk to.

Jul 15, 2017 6:22 AM

I'm so sorry this happened to you. Is it possible to see another one without to much trouble? That is no way to treat a patient.

Jul 15, 2017 7:15 AM

Wow zeb that's awful! I'm so glad you told us. If I had a magic wand I'd wave it for you! You are in my prayers for sure!🙏

Jul 15, 2017 7:22 PM

@AnimalLover2 no. I need an appointment with my gp to get a new referral and then probably a few months wait for the next available appointment. So he gets one more visit because I'm desperate

Jul 16, 2017 11:02 AM

Zebravado, I can give a great amount of sympathy and empathy but will that make your frustration any better? Would it help you to know that you're not alone in this mess we have found ourselves in?
I truly am hoping you can get a patient advocate or someone whom can help..Remember the "squeaky wheel" I haven't been but am thinking I will become a squeaker..after all what are they going to do? Help?
All my best...

Jul 16, 2017 11:19 AM

@Zebravado. I am sorry this all happened to you. I would feel the same way about it. We are all here to help eachother. So some times it is what it is . You are not being negative at all. Just scared . Worried and stress and whatever else you may be feeling
Not trying to say how you feel for sure . But sending preyers your way and stranth for you to be able to do what you have to do

Fight for a new doc or whatever you feel is best for you

Good Luck. ((Gentle hugs))

Jul 16, 2017 11:28 AM

I'd be afraid he'd kill you with whatever his "treatment " is on the next go round. Sheesh you should report him.

Jul 17, 2017 2:02 AM

I see him in the morning. I'm so anxious sleep is even harder than usual.

Jul 17, 2017 2:42 AM

We are here to listen and support you! Hang in there and do what you need to Do to get your needs addressed! You are important and you come first in your treatment! Hang in there! 🤗

Jul 17, 2017 2:45 PM

@Zebravado - WTF!!! That's just plain WRONG!!!! 😡😤

Jul 17, 2017 2:50 PM

I'd be ready to file a medical malpractice suit if I were you!!

Jul 19, 2017 7:02 AM

Salutations Zebravado (et al)
How did your doc interview go?
Are they going to work for you or are you back to square one?
How are you feeling mental/physical?
All my best...

Jul 23, 2017 3:27 AM

I saw him, he prescribed Lyrica. After two days I had an allergic reaction to it. I called him and he had me stop, but didn't want to see me again until my next appointment in two months. He told me to go to a pain management specialist (I pulled teeth to get him to give me a referral there and to a geneticist). He still didn't want to see me when I explained it would be a month to get to see a pain management doctor AT LEAST.

I made an appointment with my PCP instead. Explained it all to her. She put me on tramadol for a week, so the rash can clear up, and is then going to put me on azathioprine (I think that was it?) This way we can tell if I'm having a reaction to that. She also gave me a referral to rheumatologist with a diagnosis of EDS, so maybe I can finally stop getting the response of "joints don't do that" and "that's too rare". She even called all the doctors I had to request them to expedite the time to see me!

Jul 23, 2017 7:25 AM

🎉 (party favor) yay! Give that doc a hug! Victory for the patient!
I'm glad you're on your way for getting help! May your new journey be more pleasant...please keep us posted how things go! Big hugs and you go girl! Whoot! Whoot! Break out the chocolate! You made my day! all my best!

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