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A little disappointed today

May 13, 2016 8:57 AM

Morning everyone,
Well had my follow up with neurologist this morning. Still not quite in remission yet. Diamox dose bumped up to 500 mg twice daily and will do a recheck in 6 weeks to see where I stand.
I am grateful to not be talking about a shunt or neurosurgeon at this point, but I'm still disappointed with it. I know that it will come, I was just hoping that it would be today. So needless to say, my emotions are beginning to leak down my face this morning. Yes, partly because of disappointment, but also because this week has been really intense for me in so many ways. I guess they just needed to be expressed before I exploded.
Thanks for listening, much appreciated.

May 13, 2016 10:08 AM

Sending much love to you. This weeks been pretty tough for me too and I had some tearful moments throughout the week. It's good to know that we are not the only ones experiencing a tough time. Stay strong.

May 13, 2016 12:52 PM

I'm sending both of you hugs, and saying prayers that next week will be much easier! 🙂💕🙏🌼

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