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About Time I Introduce Myself

Apr 08, 2017 8:41 AM

Hello all. I've been reading here for a while but never posted. I think it's about time I said hello.

I am a happily married 38 year old mom of 3 incredible kids. They're 16, 13 and 12. I'm super grateful to have started my family young, because I think we probably would not have children if we had waited.

I have had some form of lower back pain for almost all of my life. In my teens I was very athletic and wrote off the pain as a consequence of all of the sports in which I participated. In my early 20s we started having children, and in my mind the pain became the result of pregnancies and carrying toddlers around. In my 30s and no longer carrying babies, it became clear that something was wrong. I no longer had a logical reason to explain the pain away, so I finally saw the doctor. It turns out I have multiple issues that are likely contributing to my pain. I have a transitional S1 vertebra (it is not attached to the sacrum as it should be) and this, combined with my hypermobility, allows for too much movement in my lower spine. I also have a Tarlov cyst in my sacrum at S2-S3. Thankfully it has remained stable over the last 18 months, and I hope it remains that way. I recently spent 3 days in hospital for pain management and was told I have a tumour (likely a schwannoma) at S1-S2, which the doctor said could be causing my severe pain and leg numbness. I have been waiting for a neurosurgery consult for the transitional vertebra since November (2016), and am hoping the tumour diagnosis will speed up getting an appointment.

So, in a not-so-small nutshell, that is me. 😊


Apr 08, 2017 8:55 AM

Welcome to our community family sa415! Like you I've had some issues since early in my life and my pregnancies worsens the low back pain. In my late 20's I was told I already had degenerative disc disease (DDD) and osteoarthritis (OA). Now at 55 I'm facing my 4th neck surgery, because the neck feeds all the nerves to lower body sections, and it's the most damaged. I've often been told by multiple doctors that I have an unusually long neck, even though I have same number of vertebrae everyone else has. Mine are just bigger (taller), causing weaker joints. I also have thoracic to scrap issues but the neck is my danger zone area.
I understand the long chronic back pain. I do not have cysts on my spine, though another here is very familiar with Garlic Cysts, I believe it's Zetarlov...Look for their posts. I wish you the very best and will keep you in my thoughts and prayers you see a neurosurgeon soon. Hugs love & prayers! 😊💕🙏🌸

Apr 09, 2017 9:41 AM

Thank you for the warm welcome FlappysLady81. 😊 I'm so sorry to hear about your neck issues. I hope your next surgery is successful and you get some relief. I will be keeping you in my thoughts as well. 🌷
I will look for posts from Zetarlov - thanks for the suggestion!

Apr 09, 2017 10:43 PM

Sa415, welcome. As you can tell I also have tarlovs, I had surgery with the ever famous Dr F. In 2014, . There aren't many on here with them but the number is growing. I hope you know there are several f b groups that can be of help. I don't have compain apt so if you want to talk privately u can just type my name in and add gmail to email me. Or just stick tarlov in a subject line. On here.

Apr 10, 2017 2:11 PM

Thank you zetarlov!

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