I'm new here. I'm also without a diagnosis (accept for 'arthritis'), so I'm a little lost with the acronyms that people are using. I've searched, but haven't found a list of commonly used ones. Is there a list? And if not, maybe people could list some here? I feel like I'm only getting half the story.
Welcome dlwc58, it can test your brain. Let me be the first. I have PMR which is Polymyalgia Rhuematica ... Caused by a virus or heredity...from where they do not know. Causes severe pain in the extremities, and hips, shoulders, neck...legs and arms hurt badly from sun up to sun down...treated with steroids, pain meds and other meds which have not been effected. When I was first diagnosis they said two years... Well I am past that...plus two years once under control they have not had it under control. No cure... Just remission. I also have Myositis... Which is another disease that causes severe pain. I won't go through the rest of my illnesses. It gets depressing. But welcome. I've not seen anyone else on here with PMR. Most have Fibromyalgia. So I don't even mention the names of my diseases when I post. It's lonely having PMR by myself. ... My doc says I am too young to have it... I wish my body knew that!! No I am not lonely ... Regardless of the name or disease it seems it all results in CHRONIC PAIN... That we all understand... And draws us together as a community/ family. Hope that's helpful. Again, welcome!
I have CRPS which is complex regional pain syndrome. It has also been called causalgia if you look up that you can get lots of info on it but basically it's chronic nerve pain with nervous system complications. I also found out I have Lyme disease which is great because it's not an acronym!
I have DDD: degenerative disc disease as well as DJD: degenerative joint disease. I don't have fibro but, let me see. I have sacroilitis which is mostly under control right now. I also have MRSA, as well as I think the uro is leaning towards OAB or overactive bladder but possibly IC as well which is interstitial cystitis. I also have PTC which is pseudotumor cerebri and I think that's the majority of the pain causing diagnosis I have at this point.
Fm is fibromyalgia Seid, me, cfs, cfids: these are all pretty much the same disorder... Systemic exertion intolerance disease, a medical condition also known as Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and chronic fatigue immune difficiency syndrome
Eds is ehlers danlos syndrome, it has multiple subtypes but the one you will see included is usually hm which stands for hyper mobility. Ehlers danlos is a type of connective tissue disease with several subtypes including vascular, classic, and hyper mobility Ctd stands for connective tissue disease Sle is systemic lupus erythemous... That might be spelled wrong Pots is Postural Orthostatic Tachycardia Syndrome Oi is orthostatic intolerance Tmj is temporal mandibular joint syndrome Uctd is undifferentiated connective tissue disease... Not to be confused with mctd which is mixed connective tissue disease Ra rhumatoid arthritis, oa osteoarthritis Ss is usually not abbreviated but it is sjogren's syndrome or sicca syndrome, the same disorder Gws is gulf war syndrome
Until five months ago, I worked full time. I'm married to a very supportive husband. Our two kids are grown and out of the house. We've got two senior pugs.
I don't have a diagnosis yet, but have been in pain since my late teens, joints and muscles. Back then I was too busy to slow down for tests so I pushed through the pain. Later, when the pain got worse, I had teens in the house, worked full time in government, was a volunteer for our local crisis line. So, again, I pushed through the pain. I put on a lot of weight. I didn't have a family doctor to put all my injuries and pains together.
I got a GP four years ago. Two months later I was in more pain than I've been in in my life. X-rays showed arthritis in both elbows. Five months later I had a knee replacement. The surgeon said it'd fused together. He'd never seen anything like that. Four years later, kids out of house, working, my elbow gave out. Three months to see a surgeon. New surgeon wouldn't do anything. Said he could, but I'd just have to live with it. My GP was NOT happy. She got me into the Arthritis Centre which is Physio, OT, and a nurse. GP sent a request for a Rhumatologist. I see her in July. I hope to find out then. My mother has fibromyalgia, and my grandmother on my fathers side had Lupus. So, there is a family history.
That's me...and, that's likely why I don't know the acronyms (:
We welcome you to our pain family, & we welcome your questions Dlwc58! Asking questions is how I've learned so much about other dx (diagnoses) different from my own.
I have Sjogrens & fibro & hypothyroidism, but I also have chronic pain issues I use acronyms for often: DDD =degenerative disc disease, TMJD= temporomandibular joint dysfunction/disease, OA=osteoarthritis, PCS=pelvic congestion syndrome (engorged pelvic veins, causes pain), PFD=pelvic floor dysfunction (pelvic floor muscle malfunction, affects bowels, bladder, & sexual organs, spasms dysfunction, &pain), IBS-C=irritable bowel syndrome-constipation primary. I'm sure there are more but fibro fog is blocking.
Thank you. I'm already, with everyone's help, picking up on things. I work as an Employment & Assistance Worker, in the Ministry of Acronyms (Social Deveopment), so I'm good at picking them up quickly, just need a little background like this here.