I wonder this a lot. I wonder if I really care if I'm addicted. As long as I'm fully functional and pain free, does it really matter if I'm chemically dependent in order to make that happen? I'm very careful with the opioids because I know I do not think or function clearly on them.
I agree completely. If it makes life bearable, that, to me, doesn't seem like the worst thing. Plus, I take controlled substances for other health issues, and I'm addicted to those. Sometimes it's hard for see the difference treating my mental health issues under a doctor's supervision with medications to which I'm addicted versus treating my pain (which is much more debilitating) myself with medications to which I'm addicted.
I know my mom does. Not by choice. She has delt with injuries and chronic pain since high school. She is 63 and been on narcotics for close to 15 years now. So I assume she is probably addicted. But without them it's worse.
Yes if the withdrawal I'm having is anything to go by. I've been on slow release morphine since September 2015 and my Rheumatologist has decided it's not good for me, it's not helping me and I need to come off of it. Apart from the withdrawal I'm in copious amounts of uncontrolled pain and bearly functioning although there's been a couple of days where I've not functioned and my 2 haven't gone in to school. My main problem is ok yes I'm coming off the morphine but no one is giving me any alternatives for the pain and with regards to the pain I'm having its obvious that the morphine was helping.....
There is both physical and psychological addiction. The body becomes addicted easily. Most of us are addicted physically if we have been on the medications for an extended period of time. The psychological addiction would be a harder one to get rid of be sure to talk to your doctor if you are worried about it.
Don't forget... there is a big difference between addiction and tolerance. Drs forget this. Also I read an article that was telling drs to be cautious in there diagnosis about people being "addicted" to pain medication. The symptoms of addiction and very very similar to the symptoms and signs shown by a person who is not being prescribed enough medication to adequately deal with there pain. They were actually cautioning drs NOT to under prescribe. It was all in dr lingo...there is an actual diagnosis and name for it. When these pain meds started coming out and up until just rather recently (like the last 10yrs or so) they did caution that these medications COULD be addictive for SOME people. This is still the case. By NO means are they addictive for everyone that takes them. This "new" opioid crisis crapola that the govt and media created and push and push on us ...most people are being "brainwashed" into thinking this is addictive for everyone if you so much as look at a prescription bottle of pain meds. Look at the words they use...crisis, epidemic, overdose deaths, they want us all to be literally scared. They are succeeding. Every time you turn on the tv they are pushing their agenda. Just make sure you know that they are pushing this agenda the same way they push every other political agenda. They flood all outlet of media with what they want us to think and feel. I want to see a commercial with FACTS that can be backed up. People here on this forum have been asking smart questions....like who are they counting as included in the crisis...are we? All the people that take these medications for their purpose? When they talk about overdose numbers...do they tell us how many pain pill overdose deaths are attributable solely to liver failure due to the acetaminophen that they add to the meds ,not for pain relief but so people shouldn't take too many? Anyways I could go on and on. Just because you have to wean off a medication slowly if you want to stop taking it dies not mean your addicted, alot of prescription meds are that way ,look at gabapentin. If you stop cold turkey you can get seizures and just because when your dose starts to wear off and you feel the pain coming back so you take your next dose also DOES NOT mean your addicted...it means the medication is doing its job and your body is telling you that it's time for your next dose. Sorry to be so long and preachy but I just get all fired up about this stuff. I loathe and find what the govt is doing despicable...like people with chronic pain don't suffer enough and don't already have enough to worry about. In my mom's day...if you were in chronic pain you went to the family doctor you'd known for years, he examined you, prescribed you something, educated you on it if necessary and that was that. They way a dr patient relationship should be. That's a whole other discussion though....the way the relationship with drs has changed. We all need to remember...when some dr is demanding records before they will even make an appointment so THEY can decide if they want you as a patient... we all need to say hey buddy...at my first visit, I will be interviewing you for a job. I pay YOU to do a JOB. Just like a plumber or lawyer or accountant. I pay you for services rendered. And if I don't like the job you do or they way you do it or the outcome...you will be FIRED by ME. Not the other way around. Hope this gets you fired up so you can worry less. After all...they should be relieving some of your stress not adding to it. Hope the pic of Blossom one of our new puppies makes you smile and relieves some stress if only for a moment
Well what can I say I have had issues and have received meds for over three decades after recovering from the initial issues and a year of surgeries and Recovery that's a good question I guess if you do anything long enough people will label you no matter what you do or how hard you try and what you think is right lot has changed since the eighties back then they would drowned you and pain meds now it's almost considered a sin if you're religious that if you take as many as I used to yes I be considered an addict I consider myself a victim not only of the accident itself but if the system perfect it is not nor am I we come from a Time or talk to his got to kick back on how many scripts they would write now the tables have turned it started out with all the famous people celebrities they got the tabloids and the front page news when they die like Michael Jackson Marilyn Monroe Heath Ledger John Belushi Chris Farley just adding a few you got everyone's attention it was just the average Joe like you and I it didn't now we're faced with new kinds of drugs that don't even show up on a 12 panel drug screen called Fentanyl killing everyone in his path made in China isn't that I cliche we all know well as for me I'm just a poor bastard trying to get through day by day because someone couldn't handle their booze that one time my doctors have me on over 360 mg of opiates per day for years try coming off that and going down to 60 mg per day overnight pain is a part of my day part of my life and unfortunately my future what more can I say hang in there guys there are good doctors out there they're just very hard to find
I couldn't agree with both of you more strongly!!! I'm stuck in the same rut with the opioids but I am on thevfentanyl patch. What people in govt don't get is that for those of us in chronic pain, the meds are a NECCESSITY!!! Not a luxury used to get high!! I don't think I've EVER been HIGH per se even with all the meds I'm on and now I'm having to look to clinical trials for other options because otherwise I'M SCREWED since I cannot take any of the Neurontin or Lyrica meds because I have Epilepsy on top of everything else!!!
I'm wondering if we all put our minds together and wrote a letter to President Trump, VP Pence & copied it to all 535 members of congress to let them know just how what this fake opioid crisis has done to those of us with chronic pain!!
No joke! Im starting to think we should all get together and find a "reputable" ( like isn't that a joke) online pharmacy or something. Oh brother that comment is going to get me in trouble! But seriously i am beyond sick of NOT living my life, only existing in this nightmare of pain. and then the drs look at you , oh you must suffer from depression. NO if you lived in my body you'd be down too, since they have taken away any hope. When you don't have hope, you have nothing, why not just give up. This isn't living. I guess I just want to take matters into my own hands and find a solution. Because otherwise what's the point of being here? I really wish they would come up with a pill or shot that CAUSED pain. Give it to all the politicians and drs and then watch how quickly this all changes! Sorry for the rant, really hurting today😉😛
I'm wondering how many pain apps there are? I'm just thinking the longer we all just take the kind of treatment we are getting, and by taking it, it's like admitting we've done something wrong. If we all unite and get like a movement or something going... I don't know...I know it's like they've got us because we're all in such bad shape just getting thru our days, where do we find the strength to fight? But like ( and I know this can't happen) but if everyone on a pain app starts say getting what they need from like a online pharmacy that actually works with the banner of a movement of 100s and 1000s of people doing it...people in pain saying no more, we have a RIGHT to either have our pain addressed by our health care professional, or we are going to find a way to do it on our own! They are making us prisoners in our own bodies, while they go out a play golf! What are they going to do, put us ALL away. I know I don't have the "right" idea, but I'm just trying to think of something anything!
I guess my thoughts were just to off the wall for everyone... if anyone has any ideas and are just not comfortable brainstorming in "public" feel free to private message me and we can brainstorm together. I don't know just struggling to find a way thru this hell.
It's so annoying every time I go to the doctors and tell them my pain medication is not working anymore and that I need something stronger just so I can walk up my stairs to get to the toilet all they say is we can't give you anything stronger because so many people get addicted to it and once your on it you will never be able to get of it, but what am I supposed to do just because a small group of people get addicted the rest of us have to live in more pain!
It's the same over here in the UK, my Rheumatologist wants me off morphine that is actually helping me because he thinks that it's not good for me, it's not helping me and I need to come off of it. I am now on half the dose I was on and when I try to drop further I'm in excruciating pain that isn't rebound pain. I think I have done brilliantly to reduce down like I have and when I see him next month I'm going to tell him that the pain is too much to drop anymore and unless he can offer a different pain med that works as well as the combination of morphine and Amitriptyline then at this moment in time I will continue with what I'm on now.
Yes I get that these meds are addictive and that some people have abused them and overdosed on them but that's the minority and majority do need these pain meds to be able to have any quality of life. They'd soon be moaning when they have a large influx of people claiming benefits because the meds that kept them functioning were stopped so now they can't work. They can't have it both ways
Sorry I've been in a personal funk...Social Security and Medicare suggested I talk to my local politicians...WTW...does it matter if I get on another list? But I started asking the flunkies how many calls they got from us chronic sufferers who can't get the care...where is our voice? Who's speaking for us...of course they will "forward my message and Senator, Congress and house rep will write me a letter" right...sure they will...one office said I have to sign a waiver for them to "look" into issue...really? @BrokenBlossoms: WE HURT LIKE HELL AND WE're NOT TAKING IT ANYMORE! Seriously, shall we start a new thread to brainstorm so it doesn't get bogged down? Does anyone tweet? Could we blow up Trumps twitter with examples of how we're treated?
Sorry Spunky...I'm in that personal funk too... I don't think writing to anyone will do a damn big of good right now either... maybe we should start a new thread on figuring out what we can do NOW to help ourselves...but I'll have to get with you tomorrow...just can't get it together right now...had a hell of a day...sorry...but thanks so much for the reply...was feeling kinda alone in my comments and feelings besides you, Sezzy and Littlelola doesn't seem like anyone was interested in brainstorming a solution. Anyways goodnight for now...thanks again
What happened to the guy that did the posting about CDC? Haven't heard about the DEA involvement with statistics either..Maybe we can get Dee Snyder (lead singer for Twisted Sister) to speak for us? Oh I know, we could have Kid Rock as a mouth piece since he wants to run for office! Ok, I'm jumping the gun a bit... We have to first figure out...???? And then we have to ?????? Because we need ?????
Sorry I've also not been on over the last few days as over here the kids don't break up from school till tomorrow and it's my baby girl's (she's 11yrs but she'll always be my baby girl!!!) last day at primary school tomorrow before she moves up to secondary school in September so her scho have been doing lots for her class from putting on a end of school play, a leavers mass to celebrate them moving on, a disco, bowling and tomorrow a leavers assembly which they put on to celebrate their time in the school
I'm sorry I wasn't here to help you through....if you ever need to chat or let off steam just pm me, I answer quicker to them. I've spent most of today asleep trying to recover from all the interaction and being around lots of people and preparing for tomorrow where I'm going to have to spend a lot of time in the school surrounded by the whole school and all the other parents from my daughter's class all in the school hall which gets crowded with all 200 pupils let alone teachers then add parents.... Sorry I promised myself I'd try not to overthink it but....erm....yeah.....well....😱😱😱😱 LOL
Ah yes that smile seems to of been plastered on my face recently!!! 😱 My favourite go to when I have to interact with people I've got soo good at it that I nearly fooled my mental health nurse when I saw her Monday....it took her a few minutes to realise that actually upon closer inspection that the smile only covers the face but doesn't stop the shaking!!!!
Yeah people are so unobservant...I think on purpose...when people say oh how are you? I don't just say fine anymore...I say"do you want the truth...or do you want me to lie about it?" You should see the look of utter confusion on their face. 🤔🙄😌😕🙃😵 Ha...try it sometime
I do it to people when they least expect it and their faces are a picture!!! Or when people say "you're looking well today" I say "looks can be deceiving but you don't need to know the truth of it"
The only people who know with just looking at me are my kids, the lady who does my Reiki and my mental health nurse (well normally anyway!!!) Not a lot of my family can even tell unless I'm having a day I'm bedbound!!!
I really usually tell people with small children...I have no pity for you...with 8 Hound dogs, a Lab, a Pomeranian , and 6 new Hound puppies... mine have 4 legs, don't wear diapers (or nappies,right?) and mine are alot faster than yours... so not much pity here...ha. I'm just kidding in your case Sezzy.
My husband called me out on the lie when I told him I was fine. I replied that if he didn't ask, I wouldn't lie. I explained that I don't want to answer honestly because I don't want to focus on the fact that I feel so lousy- so that's why I just lie.
Lol Brokenblossoms, if I had that many furbabies I'm sure I'd be the one needing a nappy or two to stop me from leaking every time I bent down to clean up after them or to play with them!!! 😂😱😂 I'm lucky my 2 are 14 and 11 years old so almost self-sufficient....I'm a true believer in teaching them early, especially for when I'm having a bad day!!!!!
Fatiguedfighter my kids don't even ask any more, they look at me then tell me to go to bed!!! They know the tiny unconscious twists in my face (trigeminal neuralgia pain) and the tiny unconscious twitches and shakes in my body (fibro pain) that most other people don't see, they don't bother to ask because they know I'll say I'm fine and now when family like my mum asks and I say I'm fine they tell her that I'm not!!!!
Yes, mine is Doctor induced to help control my Fibromyalgia CFS pain, and Osteoarthritis I couldn't survive without my pain meds, if I miss a dose by thirty minutes ( I have to take every four to six hours) Im in agonizing pain then I have to chase the pain meaning I'm agonizing until I get the pain back under control. Their isnt another way for me. Natural pathic , acupuncture, chiropractor doesn't touch my pain. For myself I'm managed with Opioids my body goes through stages we're I can take a pain med for several years then one day it just doesn't work at all in these cases I don't have withdrawals, we have to find a different Opioid to try and the cycle goes until that one stops working so I don't go through withdrawal unless the particular med I'm on is stopped then I would experience withdrawal
Kwelee you are lucky you doctor knows and will prescribe them to you, my Rheumatologist wants me off the morphine but I'm at the point that when I try to drop now I go into an unberable fibro flare after 5-6 days then I go back up that 5mg again and after a day my pain becomes bearable again so I'm going to be having words with my Rheumatologist when I see him on the 15th August as I'm not going to be bed bound again calling out an ambulance once a week because the pain is soo uncontrolled!!!
I love how you say you're going to "have words" with your doc Sezzy...in my world having words is a nice way of saying your gonna rip their head off or at least throat punch em...hahaha. Hey tell him your friend BB is going to come "have words" with him if he doesn't shape the hell up and leave you and what works for your pain alone! I'll be especially cranky because of that long long plane ride with NO cigarettes!! Crapola ... a girl in alot if pain...having the ultimate nic fit... defending a girl friend....WOW that might just be enough to get him in line...😡😜
LMAO Brokenblossoms I'm sure he will step straight back in line if he knew that was going to happen!!!! LittleLola you're welcome to come as well, he won't know what's hit him if we all walk into the consulting room together!!!! Then I'd be in my car on my way over to you LittleLola to give your doctor a piece of my mind then on a plane over to you Brokenblossoms to do the same with your doctor then to storm the white house and lobby against how strict the rules have become around pain meds... 😱😂😱
Ra Ra Ra ....here, here....hip hip hooray... yippie skippie..... We'll take the world by storm.... same deal as my idea of women in the military..... I think they should have a platoon or division or whatever they call a big group in the military, of all women, have them all live together.... because women who live together,start to cycle together....then only send them out to battle when they are PMS or PMDD in my case.... they would never have to fight...just make sure the enemy knows what's going on....when they got wind that they'd be fighting the PMS division....they would RUUUUNNNN!!!! I think that would work well in this case also....thank you very much....just look at the drs and say RUUUUNNNN!!! HAHA Ha hahaha! Then just sit back and squeal with laughter. After all they have wives and girlfriends...they know what is going to happen if they are so foolish as to stick around
Any help is welcomed Newty, it seems the world over is pulling the same trick with this crisis they claim is happening. I know there are people who do abuse the opiods but they are the minority causing no end of problems for those of us who actually need them 😞
You guys, I just got insurance finally and I am scared that after all this pain I'm going thru there won't be a light at the end of the tunnel. Now my new primary doctor did prescribe me Percocet 5/325 but it's only one every 12 hrs. And she prescribed it for some stomach pains I have been having. She said it was just to hold me till I see the gastroenterologist. But I have pain all over and I do want to go to pain management. With these new laws, I'm scared they won't prescribe me anything that will help my pain. Reading some of the posts have me worried.
Painedlady I'm sooooooooooooooooo happy that you finally have insurance that you need. Bear with it and you will find things that will help but it will take time as your doctor's try different things and suggest other things that might help. Have faith and believe that you will find things that will help but it will take time....be patient and when you can't we're here to help x
@ PainedLady I'm so happy for you that you finally have insurance that must me a relief! Good luck with the medication keep trying and hopefully you will find one that helps! I will be thinking of you 😊
Broken Blossoms, Pain Management Clinic they specialize in Chronic Pain, I had no idea there were Chronic Pain Survivors not getting all the help that's out hear. And it should be better now I've been in a clinic going on nine years
But t hey Kwelee, just because we've been: labeled-banned from doctors, ERs and dropped even from therapy; we do get support from this group...and you, You're on a journey to roads that may not be as bumpy as ours and be successful and we feel the victory too! And chalk one up for the Pain Warriors! (Whew, I need a nap now) all my best...
Kwelee even those of us who are with the pain clinic don't always get the help we need because they don't and won't prescribe the meds that help because they're opioids and 95% of the other meds don't help or make us feel worse and the 5% help such a tiny amount that it it's not even worth taking them. It's definitely very frustrating and even demoralising 😢
My son is an addict. I look at his life and compare it to mine. His drug addiction makes it impossible for him to function. My drug 'addiction' makes it POSSIBLE for me to function. I think it's sad that people stop thinking as soon as they hear the word addiction. There's so much stigma attached to the use of narcotic medications that those who legitimately need them are forced to either hide their need or face stereotyping because they would rather not hurt.
I'm so sorry to hear about your son. We have addiction in our family too. My ex husband just died last September from alcoholism. I do wish they would see the difference between addiction and needing meds to be able to function. 😞
I think the first best step is to start talking openly about chronic pain. We tend to hide it - for excellent reasons - but the result is that no one really understands the size of the chronic pain community r what life is like for us.
I've started talking with my extended family and opening up a little on Facebook about what my life is like. People are generally receptive and supportive. If more people talk, it gives more people a chance to listen.
Dearest FAtiguedFighter, I didn't mean yo gloss over your delimma with your son, I've seen people deal with abuse...a friends niece getting fentynal patches and whatever for no documented ailment...she dropped down to about 80lbs and family had to step in (she had medicaid--her daughter also medicaid, is not only getting drugs but also had unnecessary surgery) meanwhile I've been without anything for a year, get into a flair and couldn't even get a lidocain patch! So why/how is it easier for them? I've also noticed most of the doctors prescribing pain meds are Habibi Shammod Ackmed...
I wish there was a different word than addiction. I'm an addict by the definition. I have meds I MUST take every day. I can't skip my heart meds. I go into a kind of withdrawal without them. Same for my virtigo meds and pain meds...so I'm a addict to being able to make it through the day...? I do understand there are people using drugs they don't need, but I really wish there was a way to differentiate between the two. ..maybe I'm legally addicted? Probably no answer.
I know what you mean or even dependent...so what! You're an adult...You're responsible...we're so monitored, who monitors all politicians who can get whatever they want? If we had money like Prince, Michael Jackson and buy our own doctor? We're just poor, honest people in pain fighting everyday to get through...And
You're right: there is a difference between that group and us...
I know we have a pain problem...an honest pain problem, why are WE even lumped in that category? Why can't docs say, no this person should have for better quality of life...I've been using term, I'm trying to LEGALLY GET HELP!
I was told that for some people (whose medical is paid for by tax payers--docs know they will get $) they either get tired of thise people coming in, or they figure that's all you want so here...
Anyway, still leaves us in the cold! I heard this 64 yr old lady's grandson got her herion to try...she got busted for possession with intent to distribute 😳 My question; how'd they know this woman had it? If police followed grandson, still how did they "catch" her? Something not right in Denmark!
I just know I'm in a lot of pain and I need some help and I can't get any!