After everything I've been diagnosed with I have learned a lesson the hard way. But I'd like to share this little piece of advice to new pain suffers and everyone.
Buy yourself a 3 ring binder. (I want it on paper because not all Dr will take time to look at a flash drive!)After every appointment go back a couple days later and ask for a copy of your Dr. visit. Always request a copy of lab results be sent to you at home!
Here's why they have tons of patients sometimes they mix up notes. Plus if you have to get a new Dr., your on vacation, you see a specialist ect.
I also attached a journal to mine. I try to log every day what's new, list and date new meds, diet, anything I can think of because you forget things in that 15 min or 30 min Dr. appointment.
And thanks to this app I also print a picture of my charts from here.
Also share heredity diseases w/ family members to be tested and hopefully they won't suffer as much as you do. I don't believe in hanging my dirty laundry for everyone to see but I do believe in educating those I love and people I care about.
Anyone else got words of advice?