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Advice plz from those working AND dealing with Fibro

Sep 23, 2017 7:54 PM

I work FT to support myself. Some days its EXTREMELY painful. Today is Saturday and I'm already thinking about being scared to go to work Monday.
I work 4 10 hr days. All standing

Sep 24, 2017 9:38 AM

I don't have fibro, I have Trigeminal Neuralgia, but I had to quit my ft job, take 8 months to recover from the stress of trying to maintain my life through the pain and no sleep, and start part time. I was 25 when I quit and my parents supported me through recovery. Now 2 years later my husband supports me mostly.
I still have extremely painful days, often because of the stress, and triggers of working. Breezes, food, and temperature changes can set my nerves off, so it is impossible to control all triggers in ANY work environment. It is increadably stressful and exahsting and that is at only 12-25 hours a week. I have no specific advice as I don't know all your circumstances, but these diseases limit us. I had.to learn to rely on the love and generosity of my family, and I know.others have had to apply.to the government for aid. If you need to do less that I encourage you to do d a.way to do less.

Sep 24, 2017 12:17 PM

I have RA and fibro, and have to work full time to support myself. I quit one of the jobs I had last year, to preserve my health, and instead looked for a new job that would better fit my needs. I've been in my new job for several months now, and it's much more bearable. Since I work 40+ hours a week, I've had to learn to be patient with myself and give myself a full break on the weekends. I've spoken with my doctor a lot about managing working, while dealing with all the pain, fatigue and side-problems of being chronically ill. My doc has been able to prescribe a few things that help my body rest better, so I would highly recommend that. My boss is not aware of my health problems, but is always understanding of when employees need to take a day off. I go to bed very early at night (even if I won't fall asleep until early morning), and follow a schedule to reduce stress on my body. Always rest when you need to, and take whatever breaks you can throughout the day. I hope things get better for you <3

Sep 24, 2017 3:26 PM

You have to take pain medication, don't try and be brave as you will crash, accept that we are different to non unwell folk who probably lead a full life out of work. Enjoy what you can but just don't try and do strenuous activities or try to keep up with others. Stay strong, do relaxation exercises too.

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