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Advocacy for children with chronic pain at school

Jun 09, 2017 5:32 PM

Do you have a child with chronic pain or are one yourself but the school doesn't understand you or your child has the right to a pain free education here we can help you advocate

Jun 10, 2017 2:33 PM

My daughter gets chronic migraines and our school nurse well.. She's a joke! So I normally keep her home to fight it off, sometimes she is out with a migraine for day's, so I have to write a note pressing that it's accepted and excused.

Jun 11, 2017 1:32 AM

I dealt with chronic migraine and back pain through out school. Now I'm in college and I deal with back pain, migraines, and general fatigue. I'm very thankful the ADS department has been helpful. But my high school nurse was hell! I would highly reccomend going to the principal and requesting a meeting with him, the nurse, and the superindentant. Then bring in notes from doctor and make a plan that you find acceptable.

Jun 11, 2017 4:55 AM

Such advocacy is necessary, especially for children with "invisible" illnesses like fibromyalgia and chronic fatigue.
I had widespread chronic pain and fatigue in school from fibro which went undiagnosed from age 9 until I was in college. Physical Ed was hard for me and many times I needed to stay home and rest from class. . Doctors failed to diagnose me so it was misdiagnosed as "school refusal". This really hurt because my parents then took a no-excuses approach to all my pain and weakness and ceased to seek medical care for any of my complaints . Also my teachers (it was a boarding school) labelled me lazy. This was sad because I was a top student who performed very highly in our exam-driven education system. Finally, at college and independent at 18, I began my search for a diagnosis and medical support on my own.

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