Hi, all. I've taken oral narcotics for years to help ease the pain of Osteonecrosis in my hips and knees. I have recently stopped taking them because I had accommodated to them and they no longer helped. At that point my pain specialist rudely dismissed me from his practice! I am bed bound due to the pain; I can seldom sit in my wheelchair for more than a few minutes, and traveling is excruciating. I have an internist who sees me at home, but I don't know how I'll find a great new pain management doctor.
Some of my home health nurses suggested a PICC line, saying narcotics by that route may be helpful. I see two problems with that. First, I've had one PICC line. When it was withdrawn, I immediately developed two deep vein thromboses at the site, in my upper arm. Second, PCA (Patient Controlled Analgesia) pumps, used in a hospital setting, have a high risk of death, for two reasons. No one should push the dose administration button except the patient, but others, both staff and visitors, do, trying to help the patient. And, with all the alarms going off in most hospitals, the staff suffers from "alarm fatigue" and misses the real alarms. People die from hypoxia as the narcotics put the brain to sleep to the point that they stop breathing. Neither of those should apply in the home setting, but the risk of hypoxia still exists, and who is there to respond? Have you had any experience with this?
Now that I am off of the narcotics, I hope that my body will eventually return to it's normal state, and the narcotics will be helpful again. I was able to ask about this possibility when two pain experts were recently on a call-in radio program. They said this process depended on many variables, but could be a matter of months. Any thoughts or experience with this?