Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness


Aug 24, 2016 4:16 PM

So I'm hoping this isn't too personal to ask, but would anyone mind sharing how old they are? I'm 21 and dealing with chronic pain, which makes me feel pretty alone in the world. I can't be the only young person out their who is dealing with a life like this, can I? I have a few friends my age after being to a pain clinic, but most of them are completely recovered leaving me in the dust feeling like a failure.

Aug 24, 2016 4:21 PM

I'm 32- 33 in 16 days. Not young anymore but I know what it's like to feel like your aging before everyone else. Just keep focusing on you and your concentrate on getting better... Or at least try and figure out how to live with it alot better. X x

Aug 24, 2016 6:06 PM

Banannarama, I'm glad that you found us. There are several young folks here in this community who range from 12 on up. It hurts my heart that there are so many young folks coming to the community to get support. I'm glad you found us and hope that we can make you feel less alone, supply you with answers to questions about conditions, procedures or whatever and also join us for some wonderful laughs!! Welcome to the forum. {{{Hugs}}}๐Ÿ’•๐Ÿ™๐Ÿป๐ŸŒป๐Ÿ˜Š

Aug 24, 2016 6:21 PM

33 here and started dealing with chronic pain and fatigue nearly 3 years ago since the birth of my son

Aug 24, 2016 6:26 PM

Awwww thanks everyone! I'm really sorry you're all dealing with this too, but not being alone helps a lot!

Aug 24, 2016 6:27 PM

24, but I also have had chronic pain starting in my teens.

Aug 24, 2016 8:07 PM

I'm 54 and been dealing with chronic back pain since 1991. The other stuff jumped on board after 2000.

Aug 25, 2016 7:46 AM

44...but i feel in my 20's

Aug 25, 2016 7:55 AM

I'm 26, I have been fighting for my life along with chroic pain for the past 22 years, believe me when I say it only gets more painful, but there are things you can do about it, look into Terry Wahl's, wahl's protocal, there is a TEDX talk explaining things on youtube ots just called TEDX talk with terry wahls, and there is a good pain reducing type of yoga called DDP yoga (dimond dallas page) yoga, they these, also I'd like to recommend you and everyone else, to join patientslikeme.com it's a wonderful community for support and you can keep a more indepth journal then here, but I still use this app to be able to color in the pain chart and do the rest for more records between the 2 of them its a really good system to journal/keep records of your medical journey

Aug 25, 2016 1:17 PM

Hi there, i'm 49 been dealing with chronic neuropathic pain since 1990. I feel like an imature 18 year old at times. I'm sorry you are suffering at such a young young age. Keep that chin in the air. Luv n stuff G xx

Aug 25, 2016 4:47 PM

Oops, just realized in my post I forgot to say that I'm 51.. LOL!!! ๐Ÿ˜‚๐Ÿ˜‚

Aug 26, 2016 12:47 PM

I was 21 when I got most sick. I'm 27 but I don't look it so a lot of people judge me harshly. I know how bad it feels to hear ppl say 'you're to young for that'. Who did your buddies get better? ..just wondering. Add me in insta @gemstonestrong I hope you can feel emotionally better soon if not you can chat w us on discussions. ใƒฝ(ยดโ–ฝ๏ฝ€)/

Aug 26, 2016 1:18 PM

Wow HS u may just have the award for youngest member... however there are several young'uns on here ๐ŸŒน

Aug 26, 2016 2:38 PM

Hey HorseSnuggler12, I'm 17 now but I've had this since 14 and I've been on here since 14ish. I don't know if you have the new version of pain companion or one of the versions that let's you message people but I'd love to chat. I hate to gear about other young people in chronic pain. If I can help in any way let me know

Aug 27, 2016 3:26 AM

I'm 35, but have dealt with pain since I was 16. Not as bad at first - more flares with use/overuse - but gradually worsened over time. I was 22 when it really started to affect me daily.

Aug 27, 2016 3:32 AM

Hi, I'm 55 and the pain and I had our silver anniversary

Aug 27, 2016 6:03 AM

It's interesting to me that so many of us are so vastly different in terms of age and life experience bug have all bonded so incredibly strongly over the shared experience of awful pain. Whatever it is that brought us all here, I am grateful for it.

Aug 27, 2016 6:07 AM

Hello I am 32 and have had all my pain since early childhood. My daughter was 11 when she started getting pain xx

Aug 27, 2016 6:13 AM

Bless u...โš˜ my daughter also has pain... ๐Ÿ˜™i struggle as it is just like seeing myself in the mirror 20 yrs ago ๐Ÿค” The only redeeming factor... is she gets my wealth of knowledge in how to cope with pain when i had no one ๐Ÿค—
Much love coming ur way Mistic ๐Ÿ˜™๐Ÿ˜™

Aug 27, 2016 6:15 AM

Yes it is exactly like that. I am so sad for her but yes like you I had no one to help me understand and can help her so Im happy for that โค๐Ÿ˜Šx

Aug 29, 2016 3:40 PM

One of my greatest fears is that someday I will have a child and pass on my suceptability to him or her. I can't imagine watching someone else suffer with this too. It is so wonderful of you to help your children through this though and look at that in a positive light. I'm am very scared about the pain getting worse with time, as many people have mentioned on here has happened to them. Some days I can't imagine it getting any worse.

Aug 29, 2016 3:59 PM

I try to find the balance in every day one good and one bad thing. When I think of the future I laugh about having wheelchair races with the local O.A.P's hehe. I try to stay positive as much as I can some days its harder than others but then my babies smile at me and make it all better again xxx

Aug 29, 2016 4:02 PM

GemStoneStrong, I got sick at 14, was diagnosed with chronic pain and postural orthostatic tachycardia syndrome (POTS) at 16 at the Mayo clinic, and then was referred to a month-long pediatric pain rehabilitation program a year later. We were taught a myriad of pain control techniques and management techniques for my disease, which was a common diagnosis between most of us. I was getting better it seemed, well I still had chronic pain but it at least wasn't getting worse, until a year ago when I was diagnosed with interstitial cystitis (IC), which no one knows how to treat. I returned to the Mayo clinic about 2 weeks ago, and they think while I still have the POTS and crazy hyperactive nerves, the IC is actually chronic pelvic pain due to stress and sexual assault and the resulting psychological and physical trauma, which is a result they reached since interstitial cystitis is kinda controversial and uncurable, thus for someone my age they wanted a more hopeful diagnosis. However, they also knew that my original cystoscopy didn't actually show inflammation of the bladder tissue itself, and thus wasn't even actually cystitis. But I digress. By friends all did really well with the program which consisted of a lot of different types of therapy, and taught the importance of daily exercise, a strict and regular routine, ignoring pain and pushing through it. Clearly none of the doctors were chronic pain patients, but it actually did work pretty well, even if it was pretty much the hardest thing I've ever done. I have gotten through a lot using these techniques, including three years of college. Today is my last first day of school. After this year, I hopefully graduate with my bachelors of science in nursing and pass my boards. Then I can be a nurse and actually truly help others in pain, but until then the stress is high which is definitely a HUGE trigger for me. The hope is once I am out of school the stress won't be such a trigger and I'll get better. I feel like that's something way too huge to hope for, but we will see.

Aug 29, 2016 4:07 PM

Congratulations to you hun well done! To go through so much and come out as you have is a mean feat in itself...... keep working hard and help as many as you can. I try the holistic route myself doesnt do much but ignoring the pain helps mind distratcting activities are good for me. Good luck with your dream xxx

Aug 29, 2016 4:08 PM

Thank youโค๏ธ

Aug 29, 2016 4:34 PM

20 years old here! So sorry you feel alone but trust me, you're not alone and I hope reading these comments helps you not feel so alone.

(sorry if I worded that strangely. I'm battling a migraine today.)

Aug 30, 2016 1:52 AM

I am 36 years old but have been dealing with chronic pain since my early teens. I was born with several bone deformities. I also have a rare form of muscular dystrophy and a genetic disorder. I learned several coping skills and my early teens to help with pain so if you have questions please ask. I can no longer take most pain medicines as I have become tolerant to them. Unfortunately my disease will just get worse as time goes on. I hope you are not in the same boat.

Aug 30, 2016 1:55 AM

@MissRose - I love patientikeme.com. What's your username on it? Mine is Yoda1489

Aug 31, 2016 1:55 AM

We all seem to be in someones boat ๐Ÿซ...and none of us brought a paddle! ๐Ÿด least we have eachother ๐Ÿ˜š๐Ÿค—๐Ÿ˜š๐Ÿค—๐Ÿ˜š

Sep 03, 2016 4:03 PM

It's ok. Try some of these and see if it helps.

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