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Alone with my pain

Jan 11, 2015 5:46 AM

The following was my first pain entry today. Does this strike a chord with anyone? I am in a house full of people and feeling very alone today.

Woke up with both arms completely numb/dead - usually just one at a time until I shift. Actually felt good for about 3 full minutes before I got out of bed. For the last 20 minutes the pain has increased, strongest in my neck/right trigger point and my right arm. Pain seems aggressive today. Lots of cramping, which is weird, as it bears repeating, I felt really good, other than the arm numbness for about 3 minutes (actually - the weird part is feeling good for 3 minutes - its like an epiphany). Right arm growing more difficult to move. Head acting up, right side. Broken glass feeling in lower cervical and lower back. My least favorite pain. (the image I have is glass dust sprinkled in between the discs and vertebrae - feels like it sounds - not a muscle spasm pain) It happens when my muscles are looser. so which is better? Massive muscle spasms or paralysing nerve. Numbness on side of head and right eye appearing and growing as I type this.

Jan 11, 2015 8:41 AM

Hey dad- any luck with doctors? Have you been to one? Meds? Massages? Just wanting to know what you have tried

Jan 11, 2015 8:41 AM

Yes, I can totally relate to what you're saying, except for me it's the left side and also includes my knee. I consciously tried to shift to my right side when walking, standing etc. so my left side would get a break. Hope it'll help some. Glad to be seeing my pain doctor on Wednesday. And yes, if it wasn't for my dogs I would feel completely alone in my house too. Wishing you the best Sunday you can have!

Jan 11, 2015 9:07 AM

It must be in the weather, because I woke up last night several times from the tingling/semi-numbness & pain. Its the right side of my body, with related weakness (reason I use a cane, to prevent falling). But my face is on left side.

Jan 11, 2015 9:08 AM

I should add this has been going on for 2 decades.

Jan 11, 2015 10:12 AM

I do understand as well. I quit talking about my pain because it is too much. Plus my husband has his own pains. Pains of a different sort though cause he does.not have fibro.
I can relate to the arm pain as that is my major problem at this point. Its excruciating pain. Especially if I make the mistake of rolling onto my right shoulder in the middle of the night. The pain is so bad that I have to get up and walk around before I can even think about trying the sleep thing. Ya, right....we use to know what that was.
Well you are not alone! You have a whole community here who hears, listens and understands. Hope you feel some relief as the day goes on.

Jan 11, 2015 12:18 PM

I feel your pain... I've been up for several hours and slept about 3 hours (scattered) last night. My neck feels like a cement brick, migraine is wicked and my left shoulder is so bad that I have numb fingers. Know you're not alone.. We're all here to listen and support one another. Hang in there. By the way, I should add my pain has been going on 20 years and I've had 27 surgeries in that time to "fix" me.. Well, I'm worse than ever.

Jan 11, 2015 1:53 PM

I know what you mean no matter how many people are with me I still feel alone I theorize that it's because we feel like no one understands us we think we're suffering alone it's why we isolate ourselves but that's what this place is for so we know there are others like us just keep going and don't quit

Jan 19, 2015 1:28 AM

If you're here that means you are not alone. I'm in this community to help myself and others with understanding the pain I/we suffer from. We don't all know what will give us some relief but we try everything that we find that sounds practical or reasonable. We live for those epiphany moments where a pain free 3-5 minutes lets us reflect.

Jan 19, 2015 2:10 AM

I don't understand your pain because it sounds so severe and I don't feel it. That would make me feel alone. I am sorry about that. I do understand that feeling. I feel alone and I have a wonderful and beautiful family. I feel that as a father, I was sucessful. I attribute most of the success to God. They never were truly all mine. But I sill feel alone. They don't understand what it is like for me. I have been in pain for 19 years. It started when I was 21. There are few nights a month that I do not sleep at all because of the pain. Several days a month, they come downstairs to have breakfast to see me sleeping in a standing position that I had been in for a couple of hours.

I like sleep like everyone here but it is very complicated for me. For many, many years I was able to sleep on my right side. It is my favorite sleep position. But then the tore rotator cuff came along. I kept doing it til I couldnt bear it no more. Then I switched to my other side which my bad arm hung down and it caused pain. I thought that was it. I was doomed to a life of misery. Then the idea came along, The recliner. It is a lazy boy. i was extra big. I can lay my arms on the side. Everything works well except that I miss my bed. So I sleep on the recliner alot but then oon my bed. It works well for me. I don't know if any of you are like this but I blame it on my bipolar, When I am feeling real good, I don't want to sleep for a long time. I know that sounds silly. But I feel like the kid who just got a present and doent wnant to put it down. He wants to stay up as long as possible to play with his toys. I know this sounds crazy but it is my madness and it works for me. I am happy enjoying my good days when I can. With these new problems, I don't know how long it is going to be until that happens again. But I do understand feeling alone and not getting enough sleep. And when I do get some sleep, My two worse parts of the day are waking up and going to bed. They are the worse parts of my day. I hope things can improve for you somehow. Even litlle improvements are wonderful. I wish they would be able to make a new pain medication that would really work well and it not be addictive. That would be awesome.

Jan 19, 2015 3:16 AM

You know, it's amazing you mentioned that about sleeping on a recliner. I have not slept in a bed in almost 8 years because it hurts so badly with all of my spinal, shoulder and neck pain. I have a nice recliner that is roomy and soft but I never get to lay flat and decompress my spine. I just came across a chair that is made specifically for folks who can't lay down in bed. The chair is made by a company called FirstSTREET. The chair has built in heat, massage and also a lift to help you get up. It's pricey at $2,499 but I'll let you know if it's worth it. They custom make them one at a time to each person's body and issues. They take 4-6 weeks to make and deliver. As you can see, it's 4:15am Eastern Time and I've not gone to bed yet. I'm exhausted most of the time. I hope you ALL get some much needed sleep.

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