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Am I a whimp

Feb 07, 2016 6:38 PM

So I'm relaxing watching TV my.favorite show undercover boss. And they are doing g it on a construction company. So the lady who is the subject is talking a d teaching i did notice she was takong care as she stepped off the gaint machine. As would to.. the boss ask her what the down side was and she says she has fibromayalgia. I was like what!!!! So now it has me thinking. If she can work as a sort mover on long work sites how is it I'm having such issues. She did say that due to hereds she is lossing her teeth and needs work done for that but I watch her walking and she is walking some what normally. But it makes me Wonder and I just giving up am I just a weak person. I do t know

Feb 07, 2016 6:55 PM

Some days I can walk, some says I limp, some days I'm immobile and image trouble sitting up. It affects people in different ways, and it affects some people in lots of ways. I don't think you are weak, just your body reacting more severe. X

Feb 07, 2016 6:59 PM

Thank you for that... I've been out of work for over a year due to a numerous amount of health issues .. I started with two back to back bought s of pneumonia and then tumors and this and that. So I've not had two solid months of no health issues.. But with all that I've still been thinking of trying to go back to work. But honestly I'm terrified.

Feb 07, 2016 7:01 PM

Some people's pain is a lot less than others. I've met people with CRPS living a completely normal life. Yet Im here in my house 24/7.
Its just like if there were 2 people, one with a fairly well immune system and the other with a pretty bad immune system. They both get the flu. The one with the better immune system is going to be a lot better off than the other person(i know its not the same thing, it was Just the only thing I could think of for a comparison) You aren't weak, everyone's body is different. Never think you are weak, you are probably stronger than SO many people, other people would just give up, but you are still kicking and screaming and fighting for your life. You are not weak, never even think you are weak. You are so strong in my eyes, and so many others.

Feb 07, 2016 7:05 PM

I lost my job after 15 years because of my health. Now I'm stuck at home. Physio keeps getting cancelled, been waiting over a year, so joined the gym just to get me out, lost half a stone 😀 been looking at crappy things to do while I get my life sorted, mystery shopping, website testing etc. Not alot of money in it but it keeps me busy

Feb 07, 2016 7:22 PM

Remember that, that is her in a snippet of a TV show, what is her life like 24/7/365?? And also remember that, just because you got Fibro in common doesn't have to mean that you're pain,energy levels,fatigue etc... Are going to be the same. You are you, and you are affected in whatever way you are, don't think You're a whimp because you both have that 1 thing in common...... Everyone is gonna have similarities but only you feel what you feel! 😊

Feb 07, 2016 8:35 PM

Wow..you guys are great.
Jenna you almost had me in tears..
Scrossy and jahmac. Thanks. You so much.. I was thrown off when I saw her but yes your right. I have to remember fibromayalgia is not my only diagnosis and I've got several cards stacked against me.. And also this lady worked under her husband so I'm sure her work load is a lot different and can be off whe. She needs it.
The most important thing I've gotten is that you guys r right and your awesome. I love you guys you made feel so much better.

Feb 07, 2016 9:12 PM

I hope they were good tears new!
Never forget that you are strong wonderful human being :)

Feb 07, 2016 9:34 PM

You are so much stronger than you think you are! You have helped so many people on here too which really shows your character! If anyone can get through what you're doing its you! Keep fighting the pain and doing what you want within your limits :) I truly believe in you!

Feb 07, 2016 10:48 PM

I agree with everyone else. I have fibromyalgia and ankylosing
spondylitis. Newfibrogirl I am in the same situation as you. My symptoms started really bad last March and I had to stop working. I am a science teacher for kindergarten - second grade. I went back in September because I felt pressured and I lasted until Thanksgiving. I wanted to go back in January still couldn't, then I said February 1. Still had severe pain and fatigue and my doctor wouldn't clear me to go back. She put me out the rest of the year. Thank goodness my union gives disability. I didn't know that last year so was barely making any money. I'm so glad i have tenure because that gives me job security. My co-teacher who is in her seventies is upset because she feels like she has to do extra work and tell the sub what to do but she doesn't have to. Also people at work are talking about me saying things like "oh well this teacher has MS and she's working" and other things like "I feel sore and tired and I can work." Its very hurtful and makes me feel guilty and I know it makes my symptoms worse but I'm trying to not let it get to me which is difficult. So you are definitely not a wimp. You are doing what's best for you and your diseases. Everyone is different and we can't compare ourselves with anyone else or we will drive ourselves crazy and feel worse. Sending healing thoughts...

Feb 08, 2016 2:51 AM

I ask myself this everyday. It is a struggle to not be able to function at 100% for me. I hope you feel well supported from these responses. There really are some awesome people on this board :)

Feb 08, 2016 8:16 AM

Cdngirl...yes..I do feel very supported. This journey we r all on is not one I would ask for. However I could not ask for better group of people to do it with. Times r so hard and money is so needed. And I think daily about just getting up and going to work. Even though now I don't know what work.that would be. Since my doctors have said I will most likely never be a chef again.. Nkt in the capacity I was in. Which broke my heart. I have spent the last 15 yrs in the kitchen. So with all that being said thank you all.

Feb 08, 2016 10:04 AM

New, no you are not a wimp. This is not a journey any of asked for or deserve. I just had an Ahh ha a moment yesterday. One of the older ladies at church asked me, "Amanda, are you feeling any better?" My response was tactful as I said, "No, my injury is permanent and it's not fixable." I know It's not really what I wanted to say to her. But yes, I have really good days and then really bad days, where I'm pretty much immobile. But only you feel what you feel. 😋

Feb 09, 2016 4:04 PM

Everyone's pain is differant, I work 12 hour shifts in a hospital in ICU, NOT AN EASY JOB, specially when I am having a flare up and not feeling god but I dredge thru it. I have a high pain tolorence. Been hone for a day from work for being sick, URI and a UTI

Feb 09, 2016 4:09 PM

Amanda your right no one with good since would ask for this. I'm getting to the point where I'm tired of covering my pain to spare peoplkes feelings . my feelings not being spared.

Dad.. Thanks for you response.. I admire you for still pushing through. And I can't imagine how much pain u may be in. I know days as a chef when I did not know why I was hurting so badly. There been days I cried from the pain. Heck there days I cry now..

Feb 09, 2016 5:58 PM

We are such strong people! & I believe we were chosen by our higher power to go through our struggles, because even one else just couldn't do it. Please don't misunderstand me, I despise our pain & suffering! Try to remember comparing our INSIDES to everyone else's OUTSIDES - is insanity & unrealistic. Come back into your sandbox, play with your toys, do the best you can with what is in front of you. There are many with worse scenarios than us & there are many with better scenarios... My Daddie has always said two things 1) Don't lose perspective 2) if everyone gathered in a circle - throwing all their problems in the middle - .... Then were told to grab any problem they want - every single person would leave with their own. Xoxoxoxxo I hope this helps! I know each of you help me & I have only been here for about a week! 💗

Feb 09, 2016 6:06 PM

Thanks autoimmunerrr..that is a great analogy. It's hard to do sometimes when undont have the toys u are use to.. These Toys I have now are difficult. But I have also been thinking along the same lines u are. That GOD has bigger plans for us all. Or the enemy is really mad at what our futrues coukd old according to his plan. And even if u don't believe in GOD. We all have dreams for our lives.. And whomever you look to for guidance has a great plan for u.

Feb 09, 2016 6:13 PM

Girl please.... All my new toys suck hairy donkey ballzzzzzz!!! "Acceptance" is the answer to all my problems - that can be the most difficult action I can take some days. These really rough days, for me, it's super tough to accept that this is my lot in life now. I have finally shifted from despair, to depression, to anxiety....(Dragged them all with me as they collected) to ANGER! Yay me! I don't have to like that, however, I can at least acknowledge that I am at least moving through the motions to get to "ACCEPTANCE" 💗

Feb 09, 2016 6:52 PM

I feel that what im doing ..I think I'm at depression right now..despite and self pitty still show up too.. It's really hard when u finally get to a point in life where you think u know whonu are you get the job you went to school for and then boom..this mess...ughhh.. But I am finding days when i can laugh.. But they are few right now. And yes. These new toys of mine are defective.

Feb 09, 2016 6:52 PM

I need to find my receipt so I can return it.

Feb 10, 2016 3:58 AM

Everyone is different there are different levels of severity. Plus some have fibro others have added health issues. What works for one does not mean it will work for others. I have constant facial pain with no relief, feels like toothache all the time. I got diagnosed with fibro, CFS, aloydynia etc. But when I read about others on here, I think dam I don't have it as bad as them.

Feb 10, 2016 6:48 AM

I believe anyone who faces daily pain especially those with an upper pain intensity level are the strongest people alive, not only do they attempt to do things even if stuck in bed whether it be internet help on sites like this or trying to throw a toy for their dog who if like mine loves to jloin me when I'm bedbound.
Courage and strength is what we use to get through most days and that's not a sign of a weak person to me. How can we be weak when so many of us face daily crap like oh I hurt too, or I think I've got a touch of flu but I'm still up and about, if you lay in bed you're giving in to it blah blah blah...it takes strength not weakness not to bonk them one on the nose for their insecenitivity. 😡 when they just can't get why you don't work or have to rely on the state (I'm in the UK) to afford to live. I've had my in laws basically say we choose to live like this pffft believe me that took some strength to move on from. Good for anyone who can live their life with minimal interference from their conditions but never compare yourself hun, you are uniquely beautiful, courageous and strong never feel your weak. Your a woman who fights with all her might like many of us here. Defo no wimps here 😘

Feb 10, 2016 7:18 AM

Newfibrogirl, you are a recent and wonderful addition to our pain family. I have seen growth in your attitude in leaps and bounds. You are more accepting of your situation than you know. The family issues don't help any. It's true, there are NO wimps in this community. There are days that we can do many things and days when we can do nothing. Sometimes those times can run into days at a time. We don't know why we were dealt these hands, but we need to do the best with what we've got.. You've got an entire wonderful pain family standing by your side. Love and {{{Hugs}}} 💕🙏🏻🌻

Feb 10, 2016 8:32 AM

Every time I come to this site. I always feel ten ft tall. Cnan ..thank you so much for your words of support. IV always tend to have an issue of trimg to measure up to what other r doing .not that I want there life but I always want to do my best in all things. And if I feel as if I'm not doing all I can I always try harder. And with things being so hard financially I just feel low. But reading your post makes !e feel so much better

Alwayzs..Missy..u r awesome. Oh and hey?!!.. What do mean my attitude??!!!😒..lol.. Jk.. Trust..family life is not really much better. We r now doing like most American families.. We jsut stay away from! Each other. Sister has stopped coming by at all and as for me and mom.. Well. Mom still mom but I just respond differently if at all. Still stressful but I'm working on a way to change my surroundings.. I am working to change my response to this gs and I'm doing more selfish things. Things that help me. I am to a point there I do feel I deserved to cares for even if I have to do it myself. But the things is I !ay not have support in person but I know I can come here and always find a kind word.

Feb 10, 2016 9:09 AM

I totally get it. When I was first diagnosed I could still work, go camping, walk 3 to 7 miles a day. It kept getting worse and now almost 10 years later I am limited and in pain. My pain has not responded to any medications or pain killers. So do not compare yourself to other everyone is at a different stage in the journey, not everyone responds to medication and everyone has a different list of what they have with fibro that effects them.

Feb 10, 2016 9:22 AM

Shammagren..thank you.. I've missed u. Don't recall seeing around in a while. I miss being able to just get out and do whatever I wanted. How have u been?

Feb 10, 2016 11:14 AM

I appreciate being able to come here and read your comments. I have been looking for a place I can go where people understand what I deal with on a daily basis. There was a time I thought I was the only one. But this chronic pain is common among many. Just no one in my immediate circle. I am trying to understand my illness. I never heard of it before I was diagnosed. Do not know anyone personally who has it. How do I find my new normal? When my doctor told me the best I could hope for is remission it knocked me off my feet. At first they told me there was an end but as the years passed by with no improvement and no apparent end I knew something was up. I appreciate your sharing. And I understand your struggle because I am just like you.

Feb 10, 2016 4:59 PM

I've been exactly the same, there was a girl at my college with the same condition as I have and she was fine, could go up and down stairs no problem, played sport every other day and apart from the occasional sprain from playing sport, she was fine, I on the other hand am bed bound some days with pain, I thought it was all in my head but then I realised she must have it a lot less severe than I do but that doesn't make it any less difficult for her, we all have our limits and they're all different to other people's, even if they have the same condition, I hope things pick up a bit and your baseline pain becomes less soon!

Feb 11, 2016 2:05 AM

New, I keep saying to myself that I need to trade this body in for a lower mileage and much lower maintenance model.

Feb 11, 2016 3:45 AM

Newfibrogirl are you in counseling? I started sometime back it is helpful. The process of mourning our old life, accepting our new reality and rebuilding ourselves is a difficult road to travel. Especially the accepting part. I continue to fight and be plagued by additional issues and it is so overwhelming, over loading and so forth it is nice just to go to my weekly counseling session and let it all out on a stranger vs. My family. I am learning to take the not so bad days and make myself enjoy them because any day not moaning and crying in pain is a good one. After a short relief I felt it all coming back on today and I let myself cry, as we must, because holding it in only makes it worse.

Feb 11, 2016 6:26 AM

Shammagren- my insurance won't allow me weekly therapy however, I do go about 1x a month - it has helped my mind start the mourning process of my old self. It's been a year since my diagnoses of CREST syndrome disease, which parallels fibromyalgia & lupus... My awareness of the mourning didn't begin until this last major flare up. I am still in it, however, this group has helped me tremendously to not feel so helpless & alone. Despite myself, even though I am clawing & dragging, I am still inching my way into a positive place once again. 💗 so in short, I agree with your suggestions.

Feb 11, 2016 8:48 AM

No..I've not gone to any therapy. I've thought about but most times I'm so concerned about Dr thinking bim crazy and nkt prescribing meds I try to keep things in check. But I coukd see the need for it. But at the moment I want the pain and fatique to end more so then cough time. My uncles have also suggested I see someone. Just have nkt gotten around to it

Feb 11, 2016 9:37 AM

They wont think youre crazy!! Thats what there there for! Take advantage of youre insurance I would do it and im a tad bit kookoo lol jk

Feb 11, 2016 9:38 AM

I'm MORE than a tad bit cuckoo, but you already know that!! 😍

Feb 11, 2016 9:44 AM

Ha..you guys are to much.. Well I'll be seeing my hematologist next week. I've also been having a lot of headaches lately an pressure behind my ears. So hopefully he can give me a referral

Feb 11, 2016 3:42 PM

Newfibrogirl you can say no to meds and still get counseling. I just put my 10 year old in counseling because he is having a terrible time dealing with my health and I signed that the counselor could not share his information with his doctor. The couselor asked me about it and i said there is no point in sharing the information he is not going to take medication. I am sure my doctor thinks I am crazy but for other reasons ( : I have learned others people's opinions don't mean squat if it is preventing me from getting better or improving this includes doctors!

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