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Ankolosing spondylitis

Jul 27, 2016 10:47 PM

Hi I'm new here and I was diagnosed with ankolosing spondylitis and I was wondering if there's anybody else out there with some insght

Jul 28, 2016 7:46 AM

Welcome to our community family Littlered! I do not have AS, though I have other spine & joint issues, among many other chronic pain issues. There are others here with AS who will be able to help you. You can search for discussions on the topic with the looking glass also, to read past threads.

Our community grows each day, and we are very diverse in every way. You'll meet others from across the world from where you live, people of many ages, and a multitude of various chronic pain issues. Feel free to ask questions, share a story or joke or an attachment (Pain Companion app only), rant, cry, ask for support/prayer, whatever your need. There is no judgement here, because we all understand what that's like. And we all share a common bond of understanding what living with chronic pain is like.

Not every method of treating & coping with daily pain works for everyone. If something isn't working, be open to trying other alternatives. Since joining I now incorporate walking a treadmill, relaxation, and taking D3 & magnesium supplements into my coping methods. Being able to relax the muscles keeps them from compressing the nerve fibers that run through them, as badly. Heat & ice also help with this. If you have a doctor who is dismissive or not listening or not helpful, find a new doctor. Trust me, I've had to and so has many others here. I hope will gain a lot of knowledge from others and find your best way of coping. Hugs love & prayers today is a good day! 🙂💕🙏🌸

Jul 28, 2016 9:50 AM

Welcome to the commuity🌷 Red ⚘⚘⚘hope u find some peace knowing u r not alone 🌼🌼🌼

Sep 24, 2016 6:38 PM

I do have Ankylosing Spondylitits. Have taken Biologics Enbrel for pain. Helpful also helped my Psoriasis

Sep 27, 2016 10:20 PM

I have AS also. Was diagnosed about 2 years ago. I have been on biologics since day 1, started with Humira and now on Enbrel. I learn new things all the time about this disease, unfortunately most of them are negative. I also have Fibromyalgia along with myofasial pain syndrome, Peripheral neuropathy, failed spinal surgery syndrome, and the list goes on.
I new here also, so welcome!

Jul 12, 2017 10:18 PM

With the new changes in medical insurances, I can no longer take Enbrel or any of the new Biologics on TV for AS or Psoriasis!😩😩They now require me to pay 33% of the cost which is hundreds of dollars! You can only get relief it seems only if you have $!

Jul 17, 2017 3:50 PM

@painwarrior. Have u looked into the pharmacutical company programs that help you pay for your meds?? I have one MED, Vyvannse, that Medicare won't pay for because Medicare is usually for those over 65 and therefore they won't cover any of the stimulant ADHD meds!! Anyway I went to Shire and their Shire Cares program pays for 100% of the cost of that drug.

Jul 17, 2017 11:36 PM

That's great! Will check before I could get a reduced rate before we had to change insurance. Our other insurance was while my hubby was working. Thanks for your input kmaoboe🤗

Jul 18, 2017 12:10 AM

Welcome to our support group littered ☺ sending preyers your way. You are not a lone.

Aug 25, 2017 12:45 AM

I also have AS, I take Arcoxia 90ml with great effect. The last three months a diskherniation in L4/5 has caused a lot of trouble. Still dont have any good painkillers (have tried Voltaren with no effect). I find climbing and streching is good for my AS. Hope you find coping strategies

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