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Ankylosing spondilitis and pregnancy

Dec 10, 2014 8:39 AM

I would love to hear some stories about what pregnancy was like if you suffer with AS.
The pain in my spine can get extremely bad to the point where I find it hard to breathe and I often worry about the future and if I'll be able to manage being pregnant with this condition.

Dec 10, 2014 8:59 AM

Would also love to hear your stories about what life is like for you living with AS?

Dec 11, 2014 3:51 AM

Anyone???

Is this page just for people that have fibro as nobody seems to respond when anything about AS is posted... If so I will delete this app.

Dec 11, 2014 8:30 AM

I don't think this page is just for fibro. I just think it seems to be the most common. AS seems to be rare. I can't help you because I don't have AS and I don't want children. I hope you are able to find answers.

Dec 11, 2014 7:58 PM

I don't think I have fibro or AS either, just awful pain after a car accident. Be patient, sooner or later someone with AS will respond.

Mar 25, 2015 4:10 PM

Hi, I have AS and I'm going through this decision making at the moment also. I read a great book called arthritis and pregnancy which has stories and advice from women who had gone through the process. I have been told that to try they will take me off my meds. There is slot to consider.

Mar 25, 2015 4:28 PM

Anonxx This app is for anyone dealing with chronic pain, it doesn't mater what your diagnosis is. We are here to listen to each other and to be here for us as a community to lean on. Maybe we can help someone going thru a bad time,just by listening to each other and being compassionate toward each other. To listen when someone needs to rant and rave no one will judge you. Maybe someone has been thru the same thing your going thru and can give you some feed back. But one thing I know every person on this community is caring, and understanding and wants to help each other cope with their struggle day to day. I think for myself God lead me to this app,and I am so thankful that he did. I don't have AS, I have Syringomyelia, Fibromyagia, osteoarthritis, and a few more things going on with my health.Welcome. to our community. Will be keeping you in my thoughts and prayers.

Mar 25, 2015 7:11 PM

Anonxx, there are some people on here that have a variety of different diagnosis. Maybe some haven't been on to check in for a bit. Give it a bit longer and I think you'll get some good info. 👍

Mar 25, 2015 10:03 PM

Hey Anonxx, I don't have AS but I've had tailbone issues all my life, ever since falling flat of my back from a high slide in 5th grade, and broke my leg too. Anyway, I am 53 now but when I was pregnant it was difficult for me. Both my babies were big babies, the biggest in the family, and my last (was the biggest & sunny side up) pushed on my spine a lot. I actually found walking and gentle stretching helped, along with massages and low temp heating pad (very short time). I now have osteoarthritis, osteopenia, Degenerative disc disease, fibromyalgia, pelvic floor dysfunction & pelvic congestion syndrome, just to name a few. These are what affects my spine pain and pelvic/hip joints.

Since I don't have AS I don't know what options are possible for you. Keep checking back because I'm sure sooner or later you'll meet others who will be able to help you with this. Just know that the rest of us are here as support, a shoulder to cry on, an ear to bend, suggestions where we can, and even a laugh or two. Praying you make the connections you need, that you have a safe & healthy pregnancy, and that your baby won't push on your spine too much. Goodnight! 🙏🌼

May 20, 2015 11:52 AM

AS is a pretty rare diagnosis, and it's even rarer among women, so this might not get many answers. I have AS, and am in child baring age, but my wife and I have decided we don't want children (for reasons unrelated to my AS).

I do know that extra weight can cause/exacerbate pain, so I know the pregnancy could make the AS symptoms worse. That said, my dad also has AS, and is overweight. He also just happens to carry most of his weight around his stomach. He manages, and I bet you could too. AS tends to be less severe in females too, so we have that going for us.

I don't know if the drugs most often given to treat AS can be taken while pregnant. That might be something to ask your doc.

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