Started suffering low back pain in my early 20's. It gradually moved up into my neck as well. I tried everything, nothing worked and no one knew for sure what was wrong for 18 years! I was told everything from its in your head, it's fibro, to your just trying to get drugs.
It wasn't till a couple years ago when I was finally in the ER that a Dr. was able to ask the right questions and put two and two together along with an MRI (after serious damage was already done) did I get the right diagnosis.
Turns out to be a specific form of arthritis that mainly affects the spine of young men.
I now have a great rhumatologist and a decent pain specialist and together we are finally working to delay further damage and help reduce the cronic pain.
I could go on for a while about my experience but I'm looking to here from others with this debilitating disease. I suspect if you haven't been down the same path you just won't truly undertand.
So share your experience with me. I bet I can relate.