I am a mixed jumble of emotions; angry, frustrated, confused, seriously depressed. I had my neurologist followup on the lumbar puncture for MS. He showed me the report and even explained it, and it was normal, showing nothing. 😶 He said he still believes theres something going on, and there's no sure test to rule MS in or out. But he said its time another "new set of eyes to evaluate me." My right hand was having tremors and he looked at it and said he just didn't know what's wrong but he thinks I need to go to Emory or Mayo. 🙍
The receptionist tried to get me an appointment at Emory because its much closer. I'm listening to her and she hangs up saying, "they informed me they're not taking any new patients right now." 😦 I looked at her and the nurse (she echoed they'd never had that happen before), got up and left. I'm swallowing back a lump in my throat and tears in my eyes, because I know what that means.
😭. I cried all the way home. Mayo is 2-3x distance and cost, because well have to stay overnight I'm sure. My dad was sent there a month or so ago and his hotel room cost nearly a grand, just 3 nights! 😱 The hospital is on our insurance, so I'm praying the doctors are too. Otherwise I can't go because we're HMO...no out of networks! Zero, Zilch, Nada! 🙅
I'm beginning to think maybe I am crazy. Maybe I'm creating all these symptoms. 😩 But then why did they just diagnose the hypothyroid & Sjogrens from tests. Maybe the ER docs right and the Ortho doc is wrong...maybe the tremors, stinging, tingling and other sensations are from my neck and back. 😮 And maybe the doctors around here just don't have big enough kahunas to face the task of correcting the problem via surgery. 😉 After all, they're all in agreement that I'm "a complicated case!" 😕And they just keep bailing on me ... 🙏🌼🙇