At this point I’m not sure if I want them to find something or not, but at the same time I am desperate for answers.
The situation: left leg collapses under me, foot curles under me, it “feels a bit off” and weird. I have generalised myofascial pain in every part of my body but the left side is worse, including in my shoulders. I cannot walk more than a handful of steps unassisted, am using a walker.
Current diagnoses and suspicions my other specialists have given:
- (mild) hypothyroidism (Hashimoto’s)
- Ehlers Danlos Syndrome
- rheumatic disease (blood looks fine, that’s not reliable though)
And of course my suspicions and things I’d like to see excluded:
- lyme disease
- pinched nerve in spine related to scoliosis
I’m 22 y.o., my university is not really accessible (there’s no lift to library and no accessible bathroom) and my pain and leg instability is getting worse every day. I am not sure what I can do anymore aside from stubbornly wait and harass doctors.
I’ve gone vegetarian, I’ve tried to cut back sugar and increase fish, I take vit D, thyroid med, diclofenac (which is reducing me from a constant 7 to a 5) and I’m struggling to study and do everything I must.
I’m nervous about tomorrow. My health went from “something’s wrong but tolerable” to “I can’t walk” in 2 months.