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CatchMyPain Community and Pain Diary App to manage chronic illness

Any advice on my whole situation in general please

Aug 10, 2016 2:57 AM

Hi all. I suffer from 2 blown out discs, degenerative facet joints, compression of 2 discs and sciatica. Im on a cocktail of pain meds. Been off work for about 6 months now and am feeling pretty down as im not supporting my wife and daughter by bringing in a good wage. Im on anti-depressants but starting to feel down again. Am limited as to what i can do physical wise and cant sleep in my bed as it hurts my back and leg. Only comfortable place is the lounge.

Aug 10, 2016 4:15 AM

Firstly I would like to say welcome. For me the pills were no good. Also have two blown out discs my body is fighting to stay mobile. I have managed to stay working parttime. Are you able to do sqats at all this has helped me a bit tho not with pain I meditate the pain away

Aug 10, 2016 4:26 AM

Hi MyscticMum. Im unable to do squats as it sends stabbing pains down my leg when im on my way back up. I have been doing hydrotherapy and getting deep tissue massages

Aug 10, 2016 4:40 AM

Yes I get the same but push through

Aug 10, 2016 6:01 AM

Hi Mark, thanks for posting I can relate a lot to what you are saying.
I haven't worked for a year due to back issues and am now waiting for a spinal fusion with bone graft to S5-L1.
I sleep on the couch as a bed makes my symptoms worse. Exercise or movement aggravates the pain, so I don't do it!
If I take the medications at the levels required I would be incoherent and not able to be a parent.
I spend my days, isolated and alone due to being stuck at home.... Which is getting more challenging but I'm learning to share my journey & let people help me and even ask for help at times!
I read this site everyday as a moral boost and to feel less alone.
I'm also on anti-depressants which help keep me buoyant and positive.
My time out from my symptoms is to sit in our hot top & look up at the stars... But a bath also works well or using a stool and sitting under the water in a shower helps too!
Each day I try and achieve something.. Do something to help the house be more organised or a craft project... Anything! Try and think of all the little jobs that aren't a priority when your busy or working. Sort out old photos, contact that old school friend, plan a treat, sort out sport or hobby gear..... I'm amazed how much can be done while lying down!!! I ask for help getting things near me (heavy items etc) so I can organise things in boxes or reorganise clothing in drawers..
There are days when the pain is to much or I have a migraine and I just rest.
What has helped us as a family is meal planning, cooking with support of a friend to make meals to be frozen in the bad days. I try to support my partner who is going above & beyond to support me!
You have to give up on feeling guilty... You cannot control these physical changes!!!! It's not your fault. I'm sure you're doing your best : )
I've also worked on relaxing and not "guarding" myself against the pain... So my upper body is a lot more relaxed than it used to be!
Deep breathing at times throughout the day can help your body relax.
Try not to focus on what you can't do, ...try and focus on little steps, projects, goals each day as you move towards solutions to help settle your symptoms.
I hope this all makes sense!
Best wishes : )

Aug 10, 2016 7:04 AM

Hi mark πŸ€—
welcome to the community
I was forced to give up work 13years ago, i do understand πŸ€—
Hang in there sweetie... u r amongst friends here 😚

Aug 10, 2016 7:08 AM

ChChKiwi thankyou for that message. It really has me thinking now which is a good thing. Its small steps but every step is a good one i guess. Im lucky my wife is very supportive so that does help a lot

Aug 10, 2016 7:10 AM

Lulabel, thanks and i will try hanging in there. Someone on a facebook page put me onto this app, im so glad she did. Its seem like a very good thing

Aug 10, 2016 7:19 AM

That friend is a keeper! ⚘
Def use the pain diary part every day... then u have a log and diagram of ur pain to print out and show ur doctor. Do u have a pain management clinic u attend?

Aug 10, 2016 7:21 AM

Hey y'all. I don't participate much on the app, but I do find it helpful to read everyone's input to get perspective. Just wanted to say thanks and keep pushing on. Some days my body doesn't even want to let me out of bed, but seeing y'all keep at it in spite of the pain helps me stay motivated. Stay strong!

Aug 10, 2016 7:25 AM

Lulabel, no im not in a pain management clinic, i just get prescribed meds from my GP.

Aug 10, 2016 8:32 AM

MarkS78 welcome to our family community. As you can see there are many caring people here who are at the ready to help out where we can. I have not worked in almost 13 years and I have gone to the point that I felt useless and that I had no purpose in life. When I found this app, I found new purpose. I can come here and give encouragement to others and give them my hand when they need someone to hold onto. Give words of encouragement when they're in a dark place and need a boost, make my peeps laugh Which always makes you feel better. The think I learned most is that you have to accept your "new normal" and make the best of it. Be in the present and take each moment as it comes. Everything you do is a victory, whether it be throwing in a load of laundry or cooking a meal. One step at a time. Know you've got a huge community to lean on when you need help and also to celebrate with when you have good days!! So welcome aboard... Hang out with us for a bit. I look forward to getting to know you. {{Hugs}}πŸ’•πŸ™πŸ»πŸŒ»πŸ˜Š

Aug 10, 2016 9:19 AM

Have a good catch-up read of our threads on how to cope with pain... its not the same for everyone... but there could be lots of little changes u can make, that will help u to manage ur pain... above all... u r not alone πŸ€—

Aug 10, 2016 9:41 AM

The BEST exercise for this is to get referred for hydrotherapy, it will slightly niggle at the sciatica but is well worth it, I used to have hydrotherapy for my back conditions before my spinal cord injury, and even now as a quadriplegic it is the best form of exercise because the water is so warm it increases your buoyancy, which in turn makes it easier for you to move your body because of the 'Zero gravity' feeling.

Aug 13, 2016 9:28 AM

Welcome to our community family MarkS78! I just had my third cervical fusion surgery Monday. I also have the DDD, OA, facet & foraminal stenosis issues, as well as tears, bulges, etc. The spine is a delicate part of our body. I don't think it ever returns to normal after these conditions set in, no matter how much we exercise or try to make it back to our healthier normal. The point of exercise is to maintain our strength & muscles. It does take accepting our new bodies as our new us. I first injured my back in '91-'92, and now I have multiple locations from neck to tailbone that give me chronic pain. I can't take a lot of pain meds due to allergies, so I've learned how to cope with pain better, without the major pain meds. I've done epidural steroid injx, PT/OT, strength & mobility & balance training, and relaxation techniques. It's important to take every day one step at a time, and pacing your activities with rest periods in between. If you're having a bad day and need to rest then do so, and don't beat yourself up about it. I quit work in 2010 to recover from major surgery, thinking I'd eventually go back at some point. In 2014, I finally realized and accepted I'm unable to work anymore, and I filed for disability. It was hard to come to terms with it all. But my hubby is very supportive of me.

Another thing to consider is that sometimes our medications can affect our pain negatively. I was out on cymbalta for depression & pain, and it worked well for six months. But then I noticed my pain increasing as well as suicidal ideations, or wishing to die; side effects to cymbalta. Cymbalta isn't the first psych drug to cause issues like that; so did prozac, Klonopin, and many others, but I'm super sensitive to psych and pain meds. Keep track of your feelings as well as your physical symptoms. The meds you're on may not be the right dose or regimen for you. Using this app to show trends or patterns to your doctor may help find the best coping methods faster for you. I now use magnesium and potassium supplements, for muscle pain, cramps, & spasms; needing my rx muscle relaxers less often. I also do gentle stretches to keep myself more mobile. Our community is filled with wonderful supportive people who have lots of suggestions. Not everything works for everyone, so be willing to try until you find what works best for you. Hugs love & prayers for a good day! πŸ™‚πŸ’•πŸ™πŸŒΈ

Aug 13, 2016 12:17 PM

Couldn't have said it better than Flappsy!!! ‴️ She's right on the money. Welcome aboard MarkS78!!! πŸ’•πŸ™πŸ»πŸŒ»πŸ˜Š

Aug 16, 2016 5:04 AM

Mark, I agree with Chchkiwi, you have to continue to accomplish tasks. I know it is easier said than done, I have a very hard time not getting over whelmed and down in the dumps because I can no longer do most or what I used to do. I have had rheumatoid arthritis for 27 yrs (diagnosed the week of my 16th birthday) due to the RA my lower back became a problem in 1998 by 2005 I had 3 discs replaced and a 3 tier fusion from L3-S1 and 11 months later had to have part of my L5-S1 cadaver disc removed because my body rejected it and my 2 pins and 8 screws had to be replaced w/a larger diameter because of the damage. Long story short I know have a spinal cord stimulator implant and take 2 different pain meds daily just to get my nerve pain down to a manageable level. Staying as active as possible really really helps as does keeping your core muscles strong. I wish I would have found this group 10 yrs ago. I tried to do it all myself and still struggle everyday. Do not do as I did and say "hell with it" and sit on a bar stool and give up. I am now past that but have to work extra hard now to regain what I allowed myself to lose. Stay positive and strong no matter how you have to do it.

Aug 16, 2016 5:32 AM

Flappys is spot on when discussing meds. Before disability I actually worked for the pharmaceutical company who developed and brought Prozac and Cymbalta to market. I have been in plenty of meetings discussing these drugs YEARS before they hit the market and the bottom line is there is not one single drug for and diagnosis. I see both sides of the discussion being a user and an employee. I was switched from Prozac in 2002 to Cymbalta to help with both depression and chronic nerve pain. The Cymbalta didnt do much for my depression so then I started taking Wellbutrin also and man oh man I felt like a new person!! It was easy for me to take meds manufactured by Eli Lilly (my employer) because I received them at no cost, but $$ means nothing if we are not getting the best treatment possible. I agree with lots of people on here that my meds might not be your meds and do not settle because your Dr. thinks its best. Take the meds that do you the most good and do not feel guilty or ashamed to say "yes I take meds". I am proud to have had the opportunity to know my career meant something and helped others even though it was cut short at 36 yrs old..........sorry if I got off subject. I am new here and a little over whelmed as to how much just writing all this down feels like a weight off of my shoulders! Thank you all for reading and listening to me ramble lol.

Aug 16, 2016 5:14 PM

Welcome πŸ€— u are amoungst friends here Bullman 😚

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