Hi, I'm new, I'm 26 and I am wondering if there are any of you who can share my expierience.
My "big one" is Atypical Trigeminal Neuralgia. I've had ATN for almost 3 years now. I have had roughly 10 days in 3 years were there was no crushing, aching, or burnt pain in my left mouth/face and the drug side effects were so bad on those days I still couldn't enjoy it.
I've never met anyone else with ATN or TN in person and I've only talked with 3 people online who had ATN. I'm curious to see if I am not alone I guess.
Don't feel put off if you have other chronic pain, I would still love to chat with you too. There are plenty of experiences and frustrations I know we all share.
In addition to ATN I have a 12 year history of Kindey stones (about 1 every 2 years if you average it.) and a variety of digestive problems, top to bottom. I deal with my face pain by painting it where it hurts, I don't really have touch triggers, so I can get away with it. You can see my face paintings on my blog. Maskingthepain.WordPress.com (I think that is the link I just changed the host so sorry if it doesn't work.)
Beyond my pain, I am a newly wed wife. We are coming up on our first aniversery this fall. I like to do art, but I don't have as much energy for it as I used to. I am currently working part time because full time is too much physically. My career plans were for Museum Exhibit designer/creator and I spent 2 years doing that before my health tore my life apart. I do like the life I've built back up but I miss working a fullfilling job I loved. We are moving into a house and I am praying I am healthy enough to finish the renovations before we move.
I am not a big beliver in naturopathic or typical medicine, you could say I've been let down a few too many times all around and developed some cynical attitudes. But I would rather live now with what pittiful medical knowledge we do have than in the past when my health would have killed me long before adulthood.
I'm glad to join the community.