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Any RSD/CRPS suffers?

Mar 21, 2015 6:35 PM

I have RSD in my right foot - occurred after a screwed up bunion removal surgery 2.5 years ago. It has changed my life completely and not for the better! I am looking for others to bounce off different therapies that may have worked or didn't work and just to have some company. Here's to all a prayer for a less pain day.

Mar 21, 2015 8:29 PM

Hey godsgirl. What is RSD if you don't mind me asking? In 2005 I broke the sesamoid bone behind the big toe on my right foot. Because of the pain the doc said it wouldn't heal and would be best to remove it. He was wrong! When he got in the foot the bone was in process of healing, but he removed it anyway. Little did I know I'd have problems years later. My balance is off. I still have pain. I do no walk the same. Foot surgery is something I'd advise everyone to get 2-3 opinions on.

Mar 21, 2015 9:35 PM

FlappsyLady, RSD is Reflex Sympathetic Dystrophy. It's a condition (auto-immune) that effects the secondary nervous system and sends amplified pain signals to the brain. It can effect different areas of the body and then pop up in spots where you've had surgery. If I get in the shower and the water is too warm it feels like I'm being scalded. If I'm pinched or patted or smacked on certain spots, it feels like I'm being stabbed or poked with hot needles. There are other symptoms as well, but that is the basics of it. I was diagnosed with it 20 years ago.

Mar 21, 2015 11:00 PM

Godsgirl I am so sorry that you are going thru this
I don't have RSD, but I have Syringomyelia, Fibromyagia, osteoarthritis, and other conditions that I have going on. This is a wonderful group of people no one judges you, they are there to listen to you and to lean on. No one will be offended if you want to rant and rave about things. We just try to be supportive of one another.

Mar 22, 2015 9:15 AM

Thank you for explaining that Godsgirl. I can sympathize with you only because right now I have cervical radiculopathy going on with my right shoulder, arm & hand. I was at the Er on Thursday and they diagnosed it. If anyone touch's the shoulder the pain is amplified. I can imagine that all over and its an awful thought. Is there anything they can do to decrease the sensations, like epidural nerve blocks? Nearly 2 1/2 years ago I went through them all down my spine and it brought the best, long-term relief for my sciatic nerve pain & chronic back pain from osteoarthritis. I'll pray for you to get long term relief.

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