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Any women have ovaries removed or colon resected due to endometriosis/adhesions ?

Oct 31, 2014 10:09 PM

This is what my Doctor is proposing, I'm 35 and in severe pelvic pain most days, it has taken over my life to the point I'm severely depressed. Any advice?

I already had a partial hysterectomy, then complications that caused pelvic abscesses two years ago, and the pain has gotten much worse.

Oct 31, 2014 11:01 PM

I am so sorry to here about your complications. I had a partial hysterectomy and ended up with sciatica.

Nov 03, 2014 7:05 PM

I am sorry to hear this. I think my pain is due to endometriosis. I don't have health insurance.

Nov 08, 2014 10:22 AM

Thanks so much for your replies.

May 15, 2015 12:36 AM

My doctor is trying to avoid surgery hysterectomy etc at all costs because there is no guarantee it will work, it is invasive and might create more scar tissue, and plus I will have to deal with hormone replacements which cause other risks at too young of an age.

May 15, 2015 10:00 PM

Shan, has your doctor mentioned pelvic floor dysfunction? I'm now 53, had a partial hysterectomy in 1995, bilateral oophorectomy in 2003 & major pelvic surgery in 2010. It turned out to be 5 surgeries in 1: hernia repair, appendectomy, adhesions & endometreosis clean up, and removal of a10cm mass (paraovarian cyst), repair to the bladder, intestines & rectum from mass damage. They also had to call in a urologist because they caused a hematoma on my bladder, and he stented both ureters.

Five years later I am still suffering from pelvic pain and it's because all the muscles in my pelvic floor have overtightened, affecting my bladder & bowels & sexual functions. This is pelvic floor dysfunction and there is treatment for it. If you think this might be what you have, you would need to see a Urogynecology specialist for pelvic floor rehab. Do research on the subject.

Another thing, before they identified the PFD a colon surgeon sent me for an MRI with dye, due to pelvic pain. Using the dye is why they found the engorged pelvic veins called Pelvic Congestion Syndrome. I researched to find a doctor who treated this specifically and drove 3 hours away for the surgery to close off the engorged veins with titanium coils (embolization). I had suffered heavy-weight pressure in my low abdomen and legs for two years, with pain walking. The surgery worked to relieve that. Unfortunately I have many other health issues now affecting my mobility. Good luck with your research and treatment! 🙏🌼

May 20, 2015 1:28 PM

Flappy...reading about you hurts my heart.

May 20, 2015 7:26 PM

Thank you Octobot. God has seen me through it all. When I was 26 I was pregnant with my 3rd child. I miscarried my first and had to stop working in my second pregnancy. I went my ultrasound and I saw a strange look on on the girls face. She went and got the radiologist so I knew something was wrong. He sent me straight to my doctor who told me I had an ectopic pregnancy. He sent me to the hospital to abort the pregnancy the next day. As I entered the registration area our associate pastor was coming out. He saw me crying, and stayed with me until my husband got there. He prayed before he left and said, "God this child, this pregnancy is in your hands. Your will be done." I awoke from surgery the next day and my husband told me "We are still pregnant. The fallopian tube and ovary fell out of place, making it look like an ectopic pregnancy!" The falling out of place was the beginning of my weak pelvic floor issues. That was also when I knew no matter what I face physically, God will be with me. (My mother had to have a pessary inserted and stitched closed through the last 3 of 5 pregnancies... She likely had the same issue.)

I advise all women to keep all their pelvic organs unless they absolutely must be removed. God placed our organs just so everything supports each other. When they took my uterus out, and the ovaries, both times the other organs fell out of place and adhered together with scar tissue and endometerosis. I don't want anyone else to suffer this way. In the 90's doctors were "selling" hysterectomies as the cure all for females. We got screwed physically & financially with additional problems that cost way more money. But I don't sue doctors because after all they're just practicing medicine and as humans they make mistakes. But I do find a new doctor! 😉 Lol 🙏🌼

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