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Any young'ins? :)

Jun 29, 2014 2:49 AM

Hi! I'm 22 (female) with chronic hip pain. Had this problem for the past 8-9 yrs, been in pain every day for the past 5. worst of it was VCE ('09 & '10), had surgery, thought all was ok (ie it was manageable, it wasn't perfect but I could live with it). then this year it has really gone down hill again and I'm back to on-off crutches and really not able to work properly. very bad for a young person. waiting to have an MRI this week which hopefully will shed some light on what's going on/what might be done about it.

my question is: is there anyone out there of a similar age (ie below 30) experiencing chronic pain? how are you going and how is it affecting your life and future? the future terrifies me, as I should be about to enter the full time work force having just finished my degree, and yet I'm stuck barely able to stand or walk every other day... I've had pretty good practice with dealing with all this crap, but it never really gets any easier, so some other experiences would be nice.

my experience with chronic pain is that most people seem to be older/middle aged (50-ish seems to be when people start developing health problems), so that's why I'm asking if there's any younger sufferers out there?

(btw I know age is a touchy subject, so please don't take offence :P )

you get used to it all after a while, but then at the same time, you never really do... :S

Jul 17, 2014 5:21 PM

17, female, and have had chronic knee pain since I was 7-8. slowly gotten worse over the years, and now my hip joints also are very painful (on and off again). I've had two bad flare ups (widespread severe musculoskeletal pain) this year that caused me to miss a lot of school and subsequently fail two courses. Been having mild chest pain for about 2yrs, eventually flared into full on heart attack-like symptoms. went away but is back again, so breathing is becoming harder. I've had a full cardiac work-up and several EKGs in the past but no significant problems were detected. Also have GERD and maybe other stomach issues. I was refered to a very high ranked children's hospital for a full gastroenterology work-up and am currently wait listed. May also have narcolepsy. Yay...

Aug 01, 2014 1:02 AM

wow that really sucks!!! :( I hope they can do something... don't you just love 'no significant or oboes detected'? :S

Aug 13, 2014 4:06 AM

sorry, problems*, not 'or oboes' lol

Aug 24, 2014 2:29 AM

Hi, I am turning 31 next tuesday and have built up pretty severe back problems over the last 10-12 years. It all started very gradually, like 'normal' lower back pain while standing for long periods of time, but it was manageable, until symptoms got worse and musclular problems, pain and fatigue started to spread all over my body. Had xrays, mris, the whole package. They discovered a herniated disc and thought all problems must have been related to that, but an operation wasnt adviced since i did not experience any neurological problems. Anyway, I kind of accepted the diagnose and hoped that with exercises and good posture the problems would slowly decrease, but to no avail. After about 8 years in pain (and working fulltime for about 4 of them) I gave up hope that my pain would go away without specific therapy, so I opted for further research, and I finally found out (by myself, ironically) that my muscles themselves were the problem, and since muscles tend to back eachother up, but quickly burn up if assigned a task there arent meant for, if one is not working okay, the problem had spread throughout my body year by year.

I am now seeing two physicians that both apply dry needling and its really paying off. I still have a long way to go since so many muscles have been overstrained/cramped up over the last 12 years, but i finally i have a feeling im going forward again. My hope is that I will eventually be releived of all my pain in about 2 years, but you have to patient when the pain has been there for so many years. having said that, I too have been frightened of the future, and there are certainly days that i still worry, because its all taking so long, but given that i basically figured out the problem i have and know it 'can be repaired', I clinge to that thought and try to be patient with myself.

So my advice is: dont give up until you or your doctor has found that actual problem. Some doctors tend to give up if they cant find the problem themselves and send you home with painkillers far too easily. Painkillers can help you through bad days, but they arent the solution. And as a sidenote: my problem was in the muscles themselves. They cant see that on scans.

Good luck!

Aug 25, 2014 9:02 PM

my last doctors appointment revealed that it's definitely the muscles that are the problem (as it responded, however briefly, to a recent cortisone injection). but even though that had been identified as the problem, there is still not really anything he can do for me. I have been advised to do lots of stretching as he thinks that might help ease it, but it will take months, if not longer, to have any effect. oh and he recommended a myotherapist. currently I'm doing stuff with the pain management clinic at the hospital (maybe you should look into that?). it's looking like this is my life now. it's a hard pill to take...

Aug 25, 2014 9:02 PM

my last doctors appointment revealed that it's definitely the muscles that are the problem (as it responded, however briefly, to a recent cortisone injection). but even though that had been identified as the problem, there is still not really anything he can do for me. I have been advised to do lots of stretching as he thinks that might help ease it, but it will take months, if not longer, to have any effect. oh and he recommended a myotherapist. currently I'm doing stuff with the pain management clinic at the hospital (maybe you should look into that?). it's looking like this is my life now. it's a hard pill to take...

Aug 29, 2014 2:37 AM

good to hear that they have identified your muscles are the problem. stretching is usually recommended. however, in my case, and probably in yours as well, the muscle has been spasmed for so long that even stretching wont cure it (it can temporarily mitigate the tension though, so i also stretch quite often). as i said in my previous post, dry needling has proven very effective for me. what they is they stick a needle into the triggerpoints that have built up in the painful muscles which causes the trigger points to release, finally letting the muscle relax some more. it may take several treatments on the same muscles to achieve the desired long term effect, but if they do it right, you'll feel better after the furst treatment right away. the problem i am now facing is that they cannot reach a core muscle that is probably one of the root causes (the psoas), but i just made an appointment with a doctor of my local pain management clinic to discuss treatment of that one. surely hope they can do something more for me there.

Aug 29, 2014 2:43 AM

oh and by the way: what i hear quite often is that if a muscle responds positively to a cortisone injection, but the pain returns after that, ther is a good chance that not the cortisone was working, but that the needle itself caused that reaction, which how they found out that merely needling the muscle is just as effective as injecting fluids, if not better. these are just to give you some extra info related to my own experiences, though. :)

Aug 30, 2014 10:53 PM

I've tried acupuncture/dry needling, and I don't know if they were doing it wrong or if my body just sucks, but I tried it 3 times and it would destroy my hip. it would take an agonising week to recover, and then the following week I'd be back to normal. skin the short run it made it worse, and the long run made no difference :(

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