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Anybody here with NO pain relief options?

Mar 28, 2017 7:00 PM

I'm trying to find out if there are other people like me for whom no amount of painkillers bring relief. I've tried everything. Every. Thing. The fibromyalgia has become so bad that I no longer have flares, I've just been in permanent pain mode for almost 2 months. Some days, I'm lucky and it'll drop to a 7 or 8 and I can crawl about my business; but for a week or thereabouts, it's been a solid 10 (only because the pain scale stops at 10, feels like 15) so I'm stuck in bed with no one to help and no medicine. I can't go on like this

Mar 28, 2017 7:49 PM

I have had days where nothing they offered, pain killers or otherwise, has helped, but that isn't the norm. Though, as the years go by the pain gets worse and the relief becomes less useful and I'm only 23. So I could very well be there one day.

Sorry it is being such a bitch. I always like imagining I'm able to physically beat up the pain when it gets like that. Doesn't help physically, but it does a little mentally.

Mar 29, 2017 1:54 AM

Not tried a lot of pain medication because there are nun on the market that I can currently have for various reasons (got to love allergies). At any rate I'very been in 24/7 pain since June of 2016 without it going below a standard 5 on the regular pain scale.

Has it gotten worse yes it has but I can't say it is because of Fibromyalgia since still learning what else is going wrong with me. At any rate only time I have any relief is when my husband does pressure point which gives alternative pain that helps the general pain be lower for a short period of time.

Mar 29, 2017 2:38 PM

Look up cbd canavape

Mar 31, 2017 6:59 AM

Try smoking proper weed. Its better than addiction to pk's. Gx

Apr 01, 2017 3:08 AM

When I was dealing with fibromyalgia I was on a fentanyl patch and oxy 30s for breakthrough. But I'm off that now . I retired at 50 and the fibro pain is minimal. I get flare ups but I'm also menopausal lol. If you're allergic to opiates - try medical marijuana ( oils are discrete) I don't smoke but my husband is a paraplegic and he ( illegallyin this state) smokes one hitters and swears by it. Good luck

Apr 01, 2017 10:32 AM

Acupuncture gives me great pain relief even when pills don't do much. Might be worth a shot?

Apr 01, 2017 12:34 PM

Acupuncture or marijuana as everyone has recommended above. Acupuncture is my lifesaver usually

Apr 01, 2017 4:44 PM

I have been like that for a while and it has been horrible. What I hate the most is my doctors don't even care to help. They are cutting my pain pills in half in response to the federal government movement. One thing that has helped me and I promise it has helped me. It will just give you maybe a half an hour to an hour to rejuvenate with less pain is biofeedback. Your mind is a powerful weapon. I know things like this sound crazy. But I am not a new age person. I was just looking for something to help my pain. And I found this in pain management. There is an app if you have an iPhone. It is called general pain management guided imagery. It really helps.

Apr 01, 2017 7:25 PM

I do believe that the CBDs maybe what will give you some relief. The company that I work for has a zero tolerance for marijuana so I can't use cannabis therapy and I'm forced to use opiates. Kind of twisted if you asked me. Try the CBDs I bet it will help. After you try it post and let us know how you feel.

Apr 02, 2017 2:38 PM

What are cbds

Apr 02, 2017 4:00 PM

Profiler they are oils derived from the marijuana plant. They are really supposed to help. I wish I could try them but if I failed a drug test I would be kicked out of pain management. ☹️

Apr 04, 2017 11:11 PM

I have tried medical marjuana using a vaporizer. It didn't do a thing. I tried different strains, different manufactures, but still no relief. I bought oil, but it tasted soooo nasty. Does anybody have recipes for the oil?
I find the TENS machine helps me, but then I get skin reactions.
Bath salts are also helpful.

Apr 05, 2017 8:56 AM

How much does acupuncture run? Ballpark.

Apr 06, 2017 7:45 PM

I actually have some CBD oil which I got with my special cookies. I'm scared to try the oil cos I worry that my kids might eat something that's laced without my knowledge. Perhaps I could try a couple of drops in some tea?

Apr 07, 2017 7:54 AM

I ended up at the ER yesterday. The first hospital we went to wouldn't help me. So we went to a another one and they gave me steroids and a pain shot. It was almost midnight before we got home. I wasn't given anything to take at home.

I feel better today. My pain is tolerable now, but I still am in pain.

I honestly can't remember one pain free day. Some days are better than others. I've been off opiates for a year and a couple months now. Pain pills were slowly killing me, I'm only 40. So my pain doc and I are using diet and physical therapy to treat my pain.

Marijuana, aqua exercise, dry needling, physical therapy, yoga, relaxation exercises, hot baths, ice packs, heating pads, otc pain relievers, my hobbies, deep breathing, family time, all organic and natural diet, tens unit, and more are my pain relievers for now.

Finding what works to help your pain takes time. You have to try everything at least twice to know if it could work and some methods take longer to work than others but the effort and patience it takes is worth it.

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