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Anyone else with HNPP?

Aug 27, 2017 10:10 PM

Just wondering if anyone else on here has HNPP?

Aug 28, 2017 3:34 AM

Sorry to be a dunce, but what is it?
We need a string with all the acronyms on it. I get confused a lot.

Aug 28, 2017 6:53 AM

ElentraVitra I assume it's either Australia's version of Social Security or health-care.

Aug 28, 2017 7:58 AM

Haha fair guess but its a disorder of the nerves.
Hereditary Neuropathy with Pressure Palsies

Aug 28, 2017 12:00 PM

Reading about it, it sounds like what they call spinal neuropathy here, except for the inherited part. So that means it came from one of your parents? I have the spinal neuropathy, but mines from 6 car accidents and a interesting first husband.
Makes walking almost impossible because when I stand, my legs go numb.

Aug 28, 2017 7:24 PM

Similar! My whole body is affected but it comes and goes. Got it from my ma.
Sounds like you've had a rough time!! Must be strong to get through all that 😊

Nov 24, 2018 9:15 PM

Btw there is a support group on FB called HNPP Help

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