I feel so fustrated. I was told for years that I had endo and then the lap came back everything ok. I lived with the pain for years. It is now so bad affects all areas of my life. I was told wait until your done having kids or the pain is just too unbearable.
What are your symptoms girls? I’m about to go for surgery for endro but I’m worried cause the doctors for years haven’t known what the cause is, now they think endro, I’m worried it’s not that either. Did you girls ever find out what it was?
Unfortunately the only definitive diagnosis is surgery. My daughter had awful symptoms for years, before we finally found a decent OB\Gyn that was willing to work with her, and then decided to do the surgery to dx.
I had endometriosis all my adult life. to try to keep my ability to have kids I had a D&C, then laparotomy, then myomectomy. things were much much better for a year or two, then the condition began to return. It will. about 9-12 years later I went thru all that again. again, much better, normal periods for a few years but the condition came back. I had fibroids with it as well, which is not uncommon I've read. when I got to peri-menopause the bleeding was daily, constant. it was menopause, and that happens so I just went with it. But it made me severely, dangerously anemic and put me in hospital, 5 pints of blood, and intravenous iron treatments to build my blood oxygen levels til they could figure out why I was so anemic. After a lot of tests, thru a process of elimination, we decided it was the constant blood loss from constant periods from menopause. I had a hysterectomy, and have had no anemia since. I don't think you ever get rid of endo short of a hysterectomy, full or partial. Also, keep looking for a doctor that will work with you and your own reproductive goals. My first ob/gyn, a man at a Catholic medical center, told me I was a hysterical woman. Dropped him! The pain was real! The second, a female doctor, was as bad. I realized women have to graduate from male medical schools so dont expect them to be better.. Third ob/gyn diagnosed me on first visit, but wanted to monitor me for 2 months. He told me what to monitor. In two months he was convinced it was endo and I had a Laparotomy which confirmed diagnosis. I had the myomectomy about 2 months later. You're hiring a doctor's expertise but you make the decisions. They are not Gods and their expertise, experience, and goals for the type of patients they want, are their own. you need a good fit. Never hesitate to get second opinions. Be a thoughtful consumer of medical advice. Finally, no one knows the cause of endo and fibroids. Lots of theories but a dominant one is an environmental cause-certain chemicals act like hormones in your body and screw up the reproductive system. and I do environmental work. Sadly ironic.