I'm having random blackouts and have been for the last 2 years. Been to multiple docs and they haven't figured it out. I've been tested for seizures and they ruled it out. Apparently I have dysautonomia, but I've never thought of POTS as the cause because it rarely happens around the time I stand up or sit down. I've just thought maybe it's a Vagas nerve response. But I haven't had a doctor "diagnose" it.
I have become unconscious and put into a coma. 3 times this year I was recently in ICU and have been out approx 10 days! The docs took me off all my pain medications as they think it is putting to much serotonin into my brain Cymbalta, Gabapentin, Allergron, Kapanol, maxalt all together makes to much serotonin in the brain which can cause unconsciousness! It has been a real shitty year for me and my family I haven't been able to sleep properly since coming home as I am terrified off not waking up and I have really upset my family 1 being my 19 yr old daughter who has found me each time and my hubby! When I'm better councelling will be needed😔 Could u tell me what is POTS?? All the best just thought I would mention combo off meds as not sure wether u are on any off these that I was on?? 💜
I'm praying for you both. DCMom, you should mention it to your doctor. Vicstar, bless your heart, you really have had it though. My psych doc has me on Nortriptyline and he kept doing blood work to check my serotonin levels, which is naturally too low. He told me to be aware of changes. Another doc wants me on gabapentin but it's not my pain doc. Thanks for that info because I think I'll talk with my psych and pain doc to get their input. Wishing you both a good weekend! 🙏🌼
Vicstar, I am so sorry. I can honestly say I know how you feel. My 11 year old son has become my care taker on most days. I hate that I rely on him so much. He's just a kid and I feel like I'm just ripping his childhood right out of his hands! My husband takes care of me too, but he's not around much. He works out of town.
My blackouts aren't anything like you were describing. I'm usually out around 1-3 minutes and can't walk or speak clear for between 30 min - couple of hours.
POTS is Postural Othostatic Tachycardia Syndrome. The autonomic nervous system doesn't respond to stimuli the way it should - dysautonomia. Therefore when you stand up, BP changes drastically fast causing person to get light headed and/or pass out. Doctor says I have dysautonomia, but I've never had a tilt table test to rule out or confirm POTS.
DCMom I have something similar called Nuerocardiogenic Syncope and i have to take a pill everyday to keep from passing out.They really need to do the tilt table test, its takes about a half hour while your strapped to the table and have nurses and the doctor in there watching you, Very boating and creepy test as they are staring at you while your strapped to the table waiting for you to pass out. Once test is done and confirms what you said they should be able to put you on a pill to help keep that from happening. Best of luck to you and prayer's for you please keep us updated I'd like to know how it comes out.