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Anyone have lupus?

Sep 11, 2017 2:09 AM

I'm 23 years s and have always had some aches and pains. However over my late teen years, and lately, I've had a wide variety of symptoms.
1. Random and widespread pain. Mostly in large muscles and joints such as collarbone, hips, back, shoulders and neck.
2. Some general fatigue but not a huge amount
3. Skin changes. Over the past 4 months my skin has changed drastically. It's much more sensitive with random rashes. I've had to switch all my lotions and body wash to sensitive skin formulas. My face is the worst with constant patches of redness over my nose, cheeks, and chin.
4. Muscle weakness. I just feel generally weaker.
5. Loss of energy. I used to walk around Walmart just fine however lately I feel exhausted after a simple shopping trip. I also used to be a night owl, however now 9pm roles around and I'm ready for bed.

My dr wants to test me for fibromyalgia, lupus, and MS. My mom and cousin have fibromyalgia so I know quite a bit about it and my symptoms just don't quite match up. The dr believes it's most likely a form of lupus.

Does anyone here have Lupus? What where some of your first symptoms?

Sep 11, 2017 6:34 AM

I am so sorry to hear this. I don't have lupus but I do have fibro. Probably a good idea to get tested. ❤️

Sep 11, 2017 10:54 AM

I'm currently waiting to get the tests for Lupus as I fit the symptoms and from your symptoms I would definitely get tested 👍🏼

Sep 11, 2017 4:18 PM

My test results came back today. Everything is negative but my inflammation markers are high. So I don't know what the next step is.

Sep 11, 2017 4:38 PM

They might put you on an anitiflammatory medication. Not sure. Glad your test came back ok though and no lupus.

Sep 11, 2017 6:17 PM

I have Sjögren's syndrome which is the 2nd most autoimmune disease, lupus is the first. I get the butterfly rash on my face when I go into a flare. And I have extreme joint pain and fatigue. Also I have problems with my digestive system which causes stomach pain. Dry mouth and sinuses, muscle weakness. I get brain fog to where my short term memory is getting bad. All of my symptoms are just like lupus, the medicine I take is the same medicine used to treat lupus too. I will be praying for you. HUGS💜

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