Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Anyone here with piriformis syndrome?

Oct 11, 2016 7:53 AM

I'm having Botox injection next week. I would love to hear of others experience with this syndrome.

Oct 11, 2016 9:06 AM

Eleni, I have never heard of this. Can you explain to me what it is? Thanks.. šŸ’•

Oct 23, 2016 3:07 AM

Sorry for delay. A close friend passed away and then someone ran into me - minor but with my condition I was not well. Had Botox on Friday. The Piriformis muscle is an important hip stabiliser. It can sometimes become so inflamed resulting in sciatica symptoms. It was initially believed my symptoms were related to back but now doctors think it may be the piriformis. However due to misdiagnosis and prolonged pain it has resulted in a chronic condition including myofascial pain. The Botox aims to relax the muscle so it doesn't impinge on sciatic nerve. I felt ok today but pain has flared up. I have school reports and marking and I think I've over done it.

Oct 23, 2016 3:30 PM

I hope you feel better really soon. I'm sorry all of that had happened. Thank you for taking the time to explain to me. I appreciate it. Sending well wishes and positive vibes your way.šŸ’•

Oct 24, 2016 5:14 AM

Thanks. I wish you well on your journey . It's so difficult being in pain all the time. This app has helped as people here are going through similar experience.

Oct 24, 2016 8:41 AM

Eleni - where do they give the Botox injections? Going to have to look this up.

Oct 24, 2016 8:42 AM

PS - Am.so sorry about the passing of your friend. :(

Oct 24, 2016 10:49 AM

Hey Eleni, I had a doctor mention the possibility of this to me, as I've had chronic myofascial pain for years. I wish you the best of luck with the Botox. I've refused to try Botox on anything due to my huge list of medication allergies & adverse effects. Let me know how it goes. Hugs love & prayers for a very positive outcome! šŸ™‚šŸ’•šŸ™šŸŒø

Oct 25, 2016 7:58 AM

Hi, I went to a pain specialist. This was suggested by my musculoskeletal specialist and I also read it in the literature. It's aim is to relax the muscle and in my case not to irritate the sciatic nerve. It is short term perhaps a few months but it allows muscle to then be further worked upon with Physio. It required me to go to day surgery in a private hospital. I have private cover so all I paid was injection ($650) Australian dollars. He also put a nerve block and targeted muscle with radio frequency to reduce inflammation. Still early days to establish outcome. . Thanks for well wishes. Will keep you posted .

Feb 26, 2019 2:50 AM

How did this end up for you? I am waiting for a date for my injection of Botox

Feb 27, 2019 6:09 PM

Hi Eleni, Iā€™m sorry to hear of your loss.
I go in every month to have nerve blocks put into this area. I works quite well. My sister-in-law has HSP (heredity spastic paraparesis). Due to this condition she receives Botox in her back and calves. Both of go home immediately afterward and lay down with an ice pack. Just remember self care is really important. Be sure to listen to your body. The injection site will be sore and the surrounding muscles will be stiff. After the initial couple of hours I switch to a heat pad for short intervals to help with muscle pain. I also do light stretching, epsom salt baths and walking. Over a couple days go back to regular activity. I hope this helps. Good luck with your injections.

Mar 08, 2019 3:00 PM

Yes, I do and I just had the muscle removed by Dr. Timothy Tollestrup in NV.

Ready to start relieving your pain?

Join Community