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Feb 11, 2016 1:04 PM

In sooo much pain everyone at school is saying I'm faking 😥

Feb 11, 2016 1:08 PM

Don't you worry about the people in school!!! It's easier said than done but YOU know you're in pain. Don't let them belittle you or bully you. It's so hard to make people understand what we go through. It hearts my heart that such young folks are here in this community and suffering the way you do. Know that through your life you're going to come across many ignorant people who don't believe you and say you're faking. (Some may even be doctors). You hold your ground, stand firm and know that you have us to hang on to when you need to. {{Hugs}}💕

Feb 11, 2016 1:24 PM

Yeah, I'm here. Sucks that people are saying that, but it's very familiar. People said the same thing to me, even when I was on a wheelchair. They just don't know about chronic pain.

Feb 11, 2016 1:26 PM

That must have been horrible,I try to let it go but the words still hurt

Feb 11, 2016 1:34 PM

They do hurt but you've got many hear who understand and support you. I'm sorry your feelings are hurt.

Feb 11, 2016 1:39 PM

Pain is very personal and subjective. Only you know how you feel. Don't be sorry for how you feel. Hope you get some relief soon. Has anything helped you feel better? Maybe a shower, warm bath, heating pad, ice pack even just closing your eyes and listening to your favorite music.

Feb 11, 2016 5:58 PM

#rolled my ankle.I guess this year was to good to be true now I might be on crutches 😥

Feb 11, 2016 6:45 PM

I'm sorry you are going through that!! I was on crutches 3xs one school year. The teachers, students, even the doctors said I was taking. Thank goodness my mom stood up for me. She told the docs that I was strong, stubborn, and always pushed myself. She said she could see I was truly in pain and something was wrong. She finally found a doctor willing to listen and he helped!! Still have some ankle issues but no crutches since 7th grade!!

It is terrible to be in pain. Then to have people doubt you. The pain ribs you of who you are already. Their doubt takes bigger chunks out of you.... How do we not feel sad, scared, little, or even worthless when people treat us like that?

It's hard, and energy is scarce- but you know yourself better than anyone else! And we all here know you NOT faking! Please keep reaching out to friends and family that do understand and folks here. It's terrible your classmates can't support you 😠 Luckily we will !!!💐 🐎🐎💐

Feb 11, 2016 8:21 PM

I'm a teacher and was out from March to June last year, thought I could get back to work this school year but by Thanksgiving I was in so much pain and fatigue that I had to stop working again. I was going to go back in January after Christmas break then February 1st and I still just wasn't well enough and then my doctor put me out for the rest of the year. One of my friends who is a substitute teacher at the school has been mentioning to me how people are saying I'm faking it and I should be working and so and so has MS and she's working and it just makes me very sad and frustrated so I know exactly how you feel. Fibromyalgia and ankylosing spondylitis are completely different. I hope things get better for you.

Feb 11, 2016 8:39 PM

HeatherH122 I totally understand! Someone at my work has fibromyalgia, she needs a cane and always looks like she's hurting a lot. I have NO doubt she is!!! However, because I don't look like her, people don't believe I have fibro. They already doubted my CRPS- said it wasn't real, it's too "strange" to make sense... So now I'm supposedly "copying" this other person. Because I can smile and rush around the building- I'm faking.

They don't know that I close my office door and dry sometimes. Or that I go out to lunch just to be able to sit quietly and close my eyes. Or to get a treat because I feel like crap and need something nice. I dress well because I feel better when I do. When I wear jeans & a t-shirt I feel worse. When I dress up for work, I play the role of awesome employee, then I go home and fall apart some days. I'm so glad I can work!! But I'm so tired of being nitpicked over my diagnosis, dress, or attitude. We are all different! My fibro is not my co-workers fibro. Mine is more upper body. We understand different kinds of cancer- why can't people get that fibro and other pain issues look different too?

Feb 11, 2016 8:51 PM

Gardener it's so true. We as chronic pain sufferers know that everyone deals with pain differently or has different symptoms and can have the same condition. I also would lock myself in my office and cry most days sometimes I would have to hold back the tears in front of kindergarten, 1st, and 2nd grade children (I teach science) So because I teach the real little kids, right now with my condition still in the stages of finding ways to get it at least somewhat under control so I can work with children again, my doctor thinks it's better that I don't work. Luckily I work for New York City Schools and my Union offers disability. It's so nice to be on this site where people actually understand what I'm going through. I get from my family and friends the whole maybe you should exercise maybe you should eat better, maybe you should do this, maybe you should do that. I'm just sick of it.

Feb 11, 2016 8:57 PM

I'm glad you are covered by disability! I worry about getting worse but have mostly been stable for 11YRS...then I fell and sprained/broke my arm, and 6mon later- worsening fibro. Still controllable but hard. I pretty much stopped talking to my family about it. They don't/can't/won't get it. So it's better to just do what I need to do and not be disappointed by them 😞

Feb 11, 2016 9:20 PM

I'm sorry to hear about your fall. But yeah I am lucky I have a strong union. I haven't heard much from my family. My husband is very supportive thank goodness but I know it kills him to see me in bed so much and walking to the kitchen mumbling ouch, ouch, ouch. He's great. I'm lucky to have him.

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