Hi 👋🏼 I'm wondering has anyone tried a tens machine, I have fibro and my nerve pain can get really bad and I'm wondering whether It might help. If you have what does it feel like and do you think it's worth it? Thank you in advance!
Hi yes pain clinic at the hospital gave me one years ago. It's best to get a practioner to set it with you as you can get a bit of a fright if you set it on the wrong pulse and intensity. But they do work
I have a tens machine and it works 80% of the time to reduce my pain, sometimes when the pain in my neck and shoulders is soo bad that they go numb and it makes my nuckles to the tip of my fingers in my left hand actually really hurt it doesn't work as the area is in soo much pain. It always seems to help my lower back. It doesn't stop my pain completely but does distract and reduce it.
Hhmmmmm how to explain how it feels.....I'm not sure how to explain? I've never really thought about it and fibro fog and pain is not giving me a chance to think.....or sleep!!! It has different settings for how high you want to current to be, the higher the current the more your muscles under the pads will twitch (as I have reduced feeling in my neck and shoulders I do have the setting high). You want to put the pads just above the area of pain as the tens interrupt the pain signals (YouTube or your doctor will be able to tell you the best places depending on your location of pain). One thing I will say is do not use it on a area that you've recently put a magnesium spray or gel on without first washing it off as that will make you feel like you're being mildly electrocuted.
@sezzy thanks for the advice I will do a bit more reading up and go the the gp before I get one, I do use magnesium in the bath so I wonder wether that would affect it. I'm sorry to hear fibro is stopping you sleeping it is me to my ribs are so sore tonight! I hope your pain was wares of soon so you can get some sleep 😊
Thank you LittleLola, hopefully both our pains will ease enough so we can both get some sleep soon, nearly 1am and I'm feeling tired but every time I try to sleep the pain keeps me awake and I'm at my mum's and forgot my tens but I've got some Devil's Claw gel and hoping that will help.
I've used my tens about an hour after a Epsom salts bath before and not noticed feeling like I'm being electrocuted....sometimes it takes that long to get out of the bath, dry and get dressed then make my way up to my bedroom as my bathroom is downstairs thro the kitchen and I stop for a 5 minute sit down in the living room to catch my breath again.
It's good to do as much research as possible when you want to add something new, I'm normally the one who suggests possible treatments and tips to my GP and now most of the time she said she was either going to suggest that herself or she says let me get back to you and comes back saying ok let's try what you said!!!
I hope that if you do get one it will help you tremendously xx
Maybe I could just wait a couple of hours after my bath to use it, To be completely honest I can't bath every day because of fatige so I will probably be fine, What is Devils Claw gel? And thanks so much for the advice it means a lot 😊
For me it didn't work out at all. I have Tietze syndrome which means pain in my chest and ribs. The chest is to sensitive to place the TENS at so I could only use it on my ribs. But unfortunately for me it just made the pain worse. So after I had tried it for a while I just returned it.
LittleLola Devils Claw gel is a natural pain killer, I won't take the capsule's as it interacts with some of the meds I'm on, basically meds that are processed in your liver, and it also makes your body produce more acid so again it interacts with the omoprazole I'm on, so if you have gallstones or peptic ulcers you shouldn't take it. The gel you massage it on the area with pain (not fully tho just until it's tacky on your skin). I've found that it's actually brought some of the feeling back into my neck and shoulder area, it's still mostly numb but now I can actually feel when someone pokes the area with a cocktail stick!!!
I got a corset that helps me manage the rib pain when I'm out doing something. My ribs are all very sore and sensitive to touch but I find that the corset helps stabilize everything which at the very least doesn't make the pain worse when I move.
If the capsule's (or tablets I didn't look to see which once I read the interactions!) look appealing to you I would strongly recommend speaking with your doctor about it as they do interact with a lot of meds. People say natural is better but you need to fully read up on them as they can be just as dangerous as Rx meds and some can be more dangerous than the Rx meds.
Research is the key to finding things that will and won't help and always check for interactions, I take Turmeric capsules as well but as they can interact with omoprazole I have to take them at least an hour apart to give time for my body to process one so that I can safely take the other.
I hope your pain is easier for you to deal with today xx
Yes I will definitely talk to my gp I think I will just go with the gel then there's not as much risk with medications. My pain is actually worse today 😭I hope your pain is a bit better for you today and you managed to get some sleep 😴 🤞🏻
Hi guys I've used a tens. I also had a spinal cord stimulator. And my wife is starting the trial for one tomorrow. It works directly on the nerves to help block the pain. Check it out. Go online and type in "Boston scientific spinal cord stimulator "
That's why I went with the gel, they are only starting to do a lot more research on the more natural remedies so they may find better pain relievers in the next few years hopefully!!!
I'm really sorry that your struggling today, I wish there was something I could do to help but alas there's not other than to rest and not do anything that you don't have to 😟
I ended up with a few hours interrupted sleep which is better than nothing but my pain is quite bad atm as I've had to help my mum and dad out in their pub, the barmaid who normally works the lunch shift was taken in to hospital with a suspected heart attack Thursday and they couldn't find anyone to cover her shift today. My mum does Sunday roasts and dad does the evening shift so out of total desperation they asked me to help as they themselves have covered all her other shifts from Thursday till last night. I am going to have my dinner then go and rest forthe rest of the day 😔
Hopefully the devil's claw gel will bring the pain in my neck and shoulders down a fair bit again then I will hopefully sleep for an hour for the pain to even out. Like everyone once the pain gets high it feels like I'm chasing my tail to get the pain back down and for me sleep and painkillers (and my tens machine when I remember it!) are the really the only things that help 😔 but already it's the summer holidays so I don't have to do the school run for 6 weeks 😊
Unfortunately there is no specific test for Tietze syndrome. The test that my doctors made were to rule out other illnesses. It took me several doctors and a lot of tests before my doctor diagnosed me. However, because I haven't gotten any help managing my pain it has started to spread. Last year I only had pain in my chest and this year it spread to all my ribs as well.
Hi AnimalLover2, I hope you're doing OK? I've missed you while I've not been here.
You're meant to put the pads above and/or around the area of pain so that they interrupt the pain signals from going to the brain. To be honest I actually looked it up on Google and YouTube. I've found putting the pads directly on the area of pain either didn't help or made the pain worse and definitely don't use the tens if you use a magnesium spray on the area, it makes it feel like you're being electrocuted!!!!
I bought mine after doing some research on whether they could help or not, not one of my doctor's and nurses ever suggested that they could help but then my original and still the most debilitating pain I have is the trigeminal neuralgia pain and you can't really use a tens machine on the face....although there has been times where the pain has been so bad that I have and distraction of the tens either helped a little or made it worse!!!!
Over the last two years the pain in my neck and shoulders, particularly on my left side, has built up and originally was told that was from me being constantly tense because of the neuralgia pain in my face but was told by my rheumatologist that it is also fibro pain and the combination has meant I have constant pins and needles in my left finger tips and more recently has included pain from my knuckles to my finger tips in my left hand as well.
I only bought a cheap basic Tens machine from Amazon and bought cheap pads from there as well, the cheaper pads don't last long but finances are limited especially as my youngest has just finished primary school and is going to secondary school in September and my oldest has now grown out of his school uniform after 2 years so more expense!!! LOL they like to catch me in tandem instead of one at a time!!! 😱😂😱
LittleLola I have been told that Lloyd's Pharmacy also sell their own branded tens machine and pads quite cheaply, I don't know if you have one near you but speak to your doctor's they might be able to give you one, I'm not sure if you would still have to buy your own pads for it tho
@Sezzy thanks I do have one near me so I will pop in when I'm well enough to leave the house! School uniforms are so expensive ha ha 😩I also have nearly constant pins and needles in my hands they think mines just from my fibro. I think I will end up getting a emergency gp appointment over the next couple of days because my ribs are so sore I'm struggling to lie down because of the pain in them and my Tramadol is not helping but they won't give me anything stronger because of this opiod crisis!
I think you should get an emergency appointment today, don't leave it any longer as you've had to struggle through the weekend already.
I can't take tramadol as one dose knocks me out completely for around 20 hours and it's not the restful sleep sleep either, I wake up feeling more tired and in pain than I originally had!!!
This opiod crisis I feel is getting ridiculous, I'm being told to come off the slow release morphine I'm on because my Rheumatologist thinks it isn't helping me well my pain is telling me that it is!!!
Have you tried co-codamols? Or NSAIDs? It's soo hard to find the right treatment that helps 😞
Yes I might it depends on wether they can get a doctor to come to my house because I'm basically housebound at the moment but it can be a bit of a pain getting them to come out and when they do come out they usually say we can't give you anything stronger than Tramadol so you will have to go to a&e if you need anything stronger.
I have tried both they just don't work,Tramadol knocks me out to but it's the only thing that slightly takes the pain away from my fibro. I have asked about morphine but they always say we can't give it to you as too many people get addicted and you will never be able to come off it!
LittleLola have you been referred to the pain clinic? If they give it to you your Dr can't say much about!
Who have you been referred to? You can't be left hanging as you are they need to help make you more comfortable.
Have you tried any NASID's like diclofenic or naproxen? I've found naproxen a tiny little bit helpful but all NASID's upset my stomach too much now even after one dose (stomach cramps and diarrhoea not very nice at all!) What about dihydrocodeine? Sorry if I'm throwing stuff that you have probably already tried 😞
I was referred a while ago but they were useless they wouldn't even give me Tramadol but I might ask to be reffeed back to a diffrent one and see what they say, I have tried both naproxen and diclofenic and they don't work I haven't tried dihydrocodine I will mention it to my dr and see what he says, No you Keep throwing ideas at me the more the better!
LittleLola you can ask your doctor to refer you to a different hospital and if you can do some research to find out other hospitals reviews for their pain clinics and other services then you can request a particular consultant at a particular hospital
I'm not sure I will ask at my next appointment, Last time a brought up morphine she said we only give morphine to old people who we know only have a couple of years left or people that have a terminal illness but surly that's not right!
Well then why am I on it? I'm not old (unless you ask my kids, they tell me I'm old all the time!!! I don't think 37yrs is that old???) and I'm not terminally ill. I was put on it in conjunction with amitriptyline because nothing else worked, all the meds I tried before that didn't work....most in fact made me worse....how are you meant to live if you're in constant debilitating pain that makes you bed bound? This makes me soo angry 😡
@sezzy The GP has just left it went ok they won't give me anything stronger than Tramadol 🙁 But there going to try me on duloxetine to see wether that helps and she's wants to try me on naproxen again!
Agree! Most of the time I can & do use mine. It depends on if I'm just having a Fibro flare or if I get a dbl hit with fibro & Lupus. All bets are off if my UC is coming out to play! You just want to adjust it to where & what works for you at the time. And remember, just because A worked last time, doesn't mean it should work next time; it could change, don't give up.
@LittleLola yes I really like it. I still take my medications (muscle relaxers, narcotic, nerve med) but it does reduce my pain some. Some folks are able to get off meds completely. I really think it varies from one person to the next.
I have tried something like a tens machine. Its called an ARP wave machine. I had to look it up to be able to explain it so here it is
ARPwave can help you move freely without pain. It is one of the most popular and effective ways of eliminating pain and recovering from injuries. In just a few short years since first being brought to the attention of the medical and athletic communities its use has grown steadily, worldwide.
This highly advanced neuro-therapy utilizes a patented non-invasive process which searches the body’s unique bio-markers, to locate compromised tissues before developing a patient-specific healing protocol. It’s been used by more than 300,000 patients.
I used to use 4 paddle tens. Now I have a spinal cord stimulator (Bodton Scientific - only wireless stimulator). So instead of 1 or 2 direct currents the device used my entire nervous system below my waist. I do express caution...It's not always successful. My first one failed after 9 months due to migrating percutaneous lead. The second one didn't work at all. Stim was too painful and sharp. I'm on the third revision which is still in beta test and this one helps reduce my pain 30-50%. However really bad days I have to rely on Nuycenta.
The TENS unit aahhhh that is ahhh Heaven there's is no better drug free medicine then to use a TENS unit those things go get a good one on Amazon! I hate to swear to God but I swear to God they are a blessing from God those medical "tasers" a wonderful invention and one of the best! -WARNING!-GO GET A TENS UNIT OFF OF AMAZON NOW!!!!!!!!!!! 😌😅😎😋💞💖💕💓💗💔❤💎👣👣
I have a real tens unit (prescription only) and a transcutaneal vagus nerve stimulator. They both make my pain worse. It increases nerve pain all over my body, even after turning it off. Some people find it helpful.
Yes!! My TENS is brilliant with my fibro!! With bad flare ups it doesn't really help, but for day-to-day activities its so helpful - if you need to spend time on your feet or maybe on your back if you're doing a long drive etc - where the pain is specific to one area or one activity you are doing, it is a life-saver!! Helps get the daily tasks done without too much distraction from pain, which helps to save my energy too!!