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Anyone with Elhers Danlos 3

Sep 29, 2015 10:41 PM

I have a syndromes called Elhers Danlos type 3 I also have fibromyalgia. I'm just looking to see if anyone else has it

Sep 30, 2015 3:22 AM

Hello bean. I have EDS type 3.

Sep 30, 2015 8:05 AM

Great to connect!

Sep 30, 2015 8:11 AM

Raises hand...Over here bean! I have EDS 3. I'm sorry you do too, I wouldn't wish this on anyone. Hope you have a low pain day. It's rained two days straight here in Western NY, I hope it stops this afternoon like the weather man said it will.

Sep 30, 2015 8:17 AM

Bean, welcome! I have the fibro but not the EDS. You're in the right place for support and ways to cope. Many others have the EDS, so you're sure to hear from others. I agree with Scaryann on this freakish weather! It's definitely affecting my health issues. Good luck on your journey of coping support! You'll be in my thoughts and prayers. 🙏🌼

Sep 30, 2015 8:19 AM

Southern vt here and Rain Rain Rain! I too would not wish this hell on anyone! Just had wrist surgery for a torn tendon! I broke it folding underwear

Sep 30, 2015 8:20 AM

I have fibromyalgia

Sep 30, 2015 8:24 AM

I woke up to a dislocated shoulder a week ago yesterday, I'm still in agony and have no idea how I dislocated it. My cousin got it part way back in and then that evening (after hiking over a mile) it finished going back in on its own.

Sep 30, 2015 8:28 AM

Bless your heart Bean. I oppose it will heal fast for you. 🙏🌼

Sep 30, 2015 8:29 AM

Thanks Flappylady81

Sep 30, 2015 8:31 AM

Amazing how dangerous that underware is! Hopefully it heals quickly.

Sep 30, 2015 8:31 AM

And Scaryann, I'm glad you're shoulder went back in. Sometimes when laying on my side it feels like my left shoulder tried to dislocated. I've had bursitis in both, as well as impingements to both. I hear a crunching sounds and when it's too painful I have to change positions. Good luck to you both! I'm praying this prediction is wrong and "Joaquin" will move out to sea! Everyone start safe!!! 🙏🌼

Sep 30, 2015 8:35 AM

Bean, I have had surgery on both wrists for ganglion cysts and. My right for a tendon that tore off the bone sat the base of my thumb from a fall. I know how painful that is... Now I'm scared of my underware

Sep 30, 2015 8:36 AM

I'm going to have to put them away without folding them from now on!! LOL!!😜 Heal up fast!!

Sep 30, 2015 8:37 AM

That's what I said!

Sep 30, 2015 11:50 AM

My son (10) has EDS and they are looking at fibromyalgia as another issue spring from Eds. He has a ton of pain. I could use some suggestions to help him with pain. He just started Amitriptyline.

Sep 30, 2015 12:06 PM

I just had surgery on my lower back yesterday ! 😕

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