Lenny, many doctors are throwing fibromyalgia out as a diagnosis, especially if they're stumped. Google fibromyalgia trigger points. You should see a diagram of areas that qualify. Go to www.Painfromfibromyalgia.com & www.fmnetnews.com. I do have fibro, since about 2008-2009, but I've also developed hypothyroidism, & Sjogrens on top of the chronic pain issues in my joints and spine. If you don't think the doctor is right get another opinion. Research and see what other issues you think it could be.
I'll tell you, when my fibro flares up my upper thighs feel heavy and ache like crazy, and so do my arms. My buttocks hurt too. Its like there's a vise grip on all the muscles and as the trip loosens the muscles spasm. It's actually useless spasms with tender points. The best thing to do for me is rest. When i improve i try to catch up. Good luck and I wish you well! 🙏🌼
No Struggling, it actually has various symptoms, due to various causes. Both the fibromyalgia & pelvic congestion (engorged vein deformities) cause a weight like pressure in the front and inside of my thighs, sometimes in the low buttock and back thigh area too. But overdoing, like standing or walking, causes and burning. When it gets to that point I know I've reached my limit, or gone beyond.
Why? What do you think may be a cause? I was also recently diagnosed with both sjogrens and hypothyroidism, so there are three fatigue cause I struggle with. 🙏🌼
Thanks a lot for your advice FlappysLady. I have read some articles on the pages that you mentioned. I have a much better idea of fibro now. I will try to see a specialist. My doctor doesn't seem very well informed about fibro.
A friend of mine who is a physical therapist recently told me that the theory about those trigger points turned out to be wrong. It seems like specialists are no longer testing for those. Have you heard about that?
I have heard about them. My PCP diagnosed me due to having the extreme tender trigger points. But now you could press anywhere on my body and get the same reaction. I'm glad the articles helped you. Keep us posted of your next visit results. Had a good weekend! 🙏🌼
Lenny, welcome to the community. I'm glad the articles Flappsy told you about enlightened you. Like Flappsy, I was diagnosed years ago with Fibro but with all of the other diseases I've been diagnosed with since, you'll get a pain reaction pretty much anywhere you'll press on me. I find when I'm overwhelmed with pain that I concentrate on my breathing, try to meditate and rest. If you go to a specialist and find they are not helpful, seek another. Make sure they're board certified and that the doctor LISTENS to you when you're describing your pain. If you feel the doctor is not a good fit or gives you diagnosis that doesn't make sense, get another opinion. Some of us have teams of doctors. I have a pain management doc, rheumatologist, neurologist, endocrinologist, pain psychologist, etc.. They all work together to help me but ALL my meds come from pain management and nowhere else. I wish you the very best of luck.
I wake up some mornings with cement slabs for legs. Lately with all the raining it has been a week or better. I hate feeling unsafe to even walk, let alone doing anything else. It goes up into back, then neck where there is a pinched nerve eventually migraine that takes days to get rid of. All the meds caused more side effects then just dealing with the pain the best i can. I quit all meds , but bp.
Lenny have you had any MRIs done on your neck and back? Many times, pain in the arms can be from an impingement of a nerve in the neck and the same from in the back to your legs. A Neurologist would be a good place to start. good luck finding answers.
Hi, I'm new here too. Got a fibromyalgia diagnosis but don't think that's it either. Have pain everywhere at different times. Today it's my entire spine and right side body from head to toe. Touch anywhere hurts. The pain feels deep in the bone. No relief from pain meds only rest.
Had to quit my job to find something less physically demanding.
Have had MRIs, CT scans, x-rays and myriad other tests. Trying to get referral to rheumatologist. Been dealing with this too long. Feeling hopeless most days.
Welcome Indiakerry. A rheumy doc is probably the best way to go. Too many docs dx fibromyalgia because it's easy to tag most patients and they no longer have to look. My fibro affects my muscles, tendons, & ligaments, deeply when pressed on but never in the bone. My OA makes my bones and joints hurt. My rheumy doc diagnosed sjogrens recently and I was surprised to find out if and fibro share many symptoms. It sounds like you may very well have something else going on. Hopefully you will get an appt soon. Praying so! 🙏🌼
Thanks FlappysLady. I was tested for sjogren's due to very dry skin and eyes. Tested for lupus and RA too. I don't have ANA in my blood so no one wants to put any name but Fibro on my issues. Most docs don't think I need a rheumatologist. What can it hurt to give me a referral?
Indiakerry, I had 2 docs brushing off the sjogrens, even though I had all the symptoms and ANA + sjogrens blood tests showing positive. It wasn't until an ENT biopsied tissue from my mouth (due to oral rash of three types-bumps, peeling, & yeast) that they accepted and labeled it as sjogrens diagnosis. I haven't had a day free of the oral rash since April. It's so disgusting and I've tried everything, including swishing coconut oil around... Gag! Lol it definitely takes getting use to. I agree, what can it hurt getting a rheumy doc involved. I also have an endocrinologist due to my hypothyroidism. Neither was a referral by my PCP, I went on my own. My psych doc also referred me to the endocrine doc. Now that they're on board my pcp takes me more seriously. 🙏🌼
Welcome Lenny and Indiakerry to our family. I have neck pain that goes down into my shoulder down the inside of my rt arm to the muscle down to my elbow and wrist hand and fingers. On my left arm it goes numb down into my hand and fingers. My Dr said it was because of having the Syrinx inside my spinal cord from CS7 to TS12. It causes constant pressure on my muscles and nerves causing all of this. I have to wait until 6th of august to talk to my Neurologist about sending me to a Neuro Surgeon to have a shunt put in to keep the fluid drained off.
I have severe chronic pain in my back due to a car accident 3 yrs ago. I was t boned by a gravel truck on my way home from work. The disks effected are C6-7 T4-5 (bulging) T7-8 L3-4 and L5-S1. I also have degenerative disk disease. My legs and arms become so numb and tingle. At night there are times I wake up and my arms are so weak I can't even lift them to roll over. Some days the pain is so bad I can hardly move let alone breath. I'm alergic to morphine, codeine and demarol. Doctors have deemed me unworkable due to the fact I cannot stand or sit too long or lift anything over 5-10 lbs. Pain has become apart of my everyday life. I am a 44 yrs mom of 4 and a wife of 21 yrs. Life defiantly changed 3 yrs ago. I have an amazing family that love me and take great care of me. I get up everyday so grateful I am here. Not too many people walk away from gravel trucks.
Chicky96, you were very lucky! I'm certain the chronic pain is awful. I've been in 4 traffic accidents and only 1 was my fault. The damage caused my first and second cervical disc fusions in '92 & '95. I have OA & DDD in my whole spine and I truly understand the pain. Due to the numbness in your arms & legs, have they mentioned surgery? I use to wake up with numb arms a lot, until I bought two pillows, one specifically to support the neck curve if sleeping on my back, the other is a very thick memory foam for side sleeping. If my neck isn't straight when on my side my arms go numb.
My surgery was urgent both times, the last discs nearly paralyzed me. Now due to the DDD & OA damages at C2-3 & C7-T2 I'm in need of surgery again but they won't do it. They said the surgery itself at C2-3 could paralyzed my swallowing &/or talking ability. The thoracic and lumbosacral discs are either bulging, torn, or arthritic. They don't need surgery, but I do get epidural nerve blocks to help with the pain.
It's very good your family is understanding & supportive. You are truly blessed. Hugs and prayers for you. 🙏🌼
FlappysLady81.... I am still waiting to see a spinal surgeon for my back. I had seen a doctor shortly after my accident, and he strongly recommend surgery. I have not settled my claim. I do sleep with extra pillows around me however they don't seem to make a difference with the issues I am having with my arms. Sometimes they get so numb I literally can't feel them or move them. They become paralyzed until feeling comes back. The restless leg syndrome doesn't help either. So frustrating. I use to be so active, camping and hiking with my family. I use to dirt bike and ride quad. I had just been promoted at my job as Team Leader working in a house with staff taking care of adults with severe special needs. Loved loved loved my job. And with in seconds it was gone. I am lucky if I can make it walking down to the end of the road with my daughter without having to turn around bent over in pain. My back also sustained second degree whiplash which I still deal with. Everyday I do my best to reassure my kids that I'm ok and I'm doing fine but I know they aren't believing me. I really don't want them to know how much their mom truely is hurting.
Chicky96, I wouldn't settle until you know for certain you don't need surgery. Get a lawyer involved if you must. They deal with all the nasty stuff which relieves you of most of the stress. It took over two years for my insurance settlement.
I heard today that when we hurt and people ask us how we're doing, we should be honest and tell them we're having a bad day due to... Then we should ask for either a hug or prayers, or if we have a need ask them would they help us with it. I do tell people how I'm doing and I've asked for prayers. But I'm not a touchy-feely person so hugs from strangers... Nada! Lol
It's ok to let your kids know when you're not doing so well, or when you just can't make that walk. They may surprise you and offer alternatives or more help. I don't know the age of your children, but no child is too young to learn being helpful. My granddaughter helps me with a lot when she visits.
I hope & pray you can get all this resolved with the insurance, sooner rather than later. And I think a second or even third opinion on your back would be a good idea, especially since they're fighting you. 🙏🌼
Thank you ferretbandit I will look into it. I do have nerves at are being compressed because of disks. I had a new symptom yesterday with a sharp stabbing pain in my spine between my shoulder blades. All I was doing was swiping down my counter. It was so sharp it felt like a needle being jabbed into my spine. Couldn't move my arms for about 10-15 mins. Very painful.
Hi Lenny My new GP Initially listed me as fibro ? she took a whole bunch of blood test X-rays & heaps of notes on what I could manage to describe and admitted she wasn't sure so referred me to the rheumatologist. He was great - turns out not fibro but got me where I needed to be. I was initially diagnosed with palindromic rheumatism with pre-markers to rheumatoid arthritis five years ago (after ten years of other GPs telling I'm a hypochondriac) and this year further developments over last 2year had me go back for follow up - more tests including specialised MRI & it looks like very early stages of Ankylosing Spondylitis - while that freaked me out initially the reassurance that it's not all in my head and support I get from my new GP/rheumy & physio is worth its weight in gold. Rheumatologist did comment that most GP are not equipped with the ever increasing range of auto immunes out there. So my tip hang in there read up and keep going until you find a gp & specialist that will work with you. Pain diary is a fantastic tool for these appointments and for you to start to understand and manage your limits better. Wishing you success very very soon.
I also have ankolosing spondylosis, stenosis and spondylesis, spinal fusion done in 2000 but spinal degeneratation has progressed, have had epidural nerve blocks with limited success, arthritis and fibro on top of that, haven't tried a pain diary, not a bad idea, might have to start one,