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As I driftn off I'm thinking

Jul 24, 2016 10:33 PM

Will there be very be a time where I don't have massive amount of pill just get out of bed . pill to help once I making up and mes to lay udown when you have done to much.sobi just wonder I F anyone else out there has consider if you will ever be off some of all the ones.

Jul 25, 2016 1:45 AM

After 14 years in pain... i have learned to finally accept that my pain will always be here...and that the best thing to do... is to stop fearing that... and to accept and adapt to it! I will never give up the fight to do what i can to cope with it... but its never going to totally be gone! All i can hope for, is a good day... with the courage to believe, i can get thru this & i will survive. Its taken many years of practice tho ;)

Gentle hugs x

Jul 25, 2016 1:58 AM

I agree there is no magic pill so we can only accept live and adapt. Emphisis on live and acceptance whoch is hard but huge. GX

Jul 25, 2016 5:45 AM

@newfibrogirl
I hear you. My relatives are all upset, "You're taking too many pills!" And I don't like it. But they're for the Sx of many Dx. Every day I wonder what problems the pills will cause. But there is no "day" without them. I guess @groggy is right, we have to accept it for now. Do our best with any alternative meds that help. And hope for, lobby for, support if we can- those who work toward, a cure.
With you in spirit my friend. {{Hugs}}

Jul 25, 2016 4:13 PM

Thank you all for you comments. I feel im still a newbie compared to most of you. But I'm so glad I've got thr ability toesrn from your experience. I'm getting better with excepting some aspects of my new normal. Just have a few slip ups here and there. Ha..

Jul 25, 2016 5:14 PM

Smile . . . I have to adjust continuously, moment by moment, every day. And it's been decades. You're doing great.

Jul 26, 2016 2:00 PM

Dealing with spine pain since the 90's and having gained good control of it, I would have said yes. In fact I was living a life of minimal pain, with only random flare ups in my spine, until fibro started in 2007. Then the tumor jumped on board, followed by one dx after another, all chronic pain centered. Now after 6 years I know better than to even dream I will ever be off my meds permanently. I was off my allergy & asthma meds for only 4 years, and now I'm on more than beforere. My family is shocked at the various meds I have, either using daily or on a PRN basis, just to try and manage the pain to live a comfortable life now. No, chronic pain is a permanent part of life, and the meds are just a necessary evil. I'm sorry that isn't an upbeat message you probably don't want to hear. My bad. 😔

Jul 26, 2016 2:02 PM

Accept it is what it is, then do the best you can, one step at a time, one day at a time! Hugs love & prayers for you to have the strength you need to get through this! 🙂💕🙏🌸

Jul 26, 2016 2:03 PM

PS:. We all slip & cry from time to time, and it's ok! It says were emotional, compassionate humans. 😉😘

Jul 26, 2016 2:47 PM

Thank you flappys I appreciate the straight forward and kind nature of it. It's fun y inwas about to post another topic basically about this same thing. Ha..quess I'm a broken record. I was attempting to remember a day when I was not in pain and felt happy and excited about life. I csnt seem to recall it. Today is a hard day. Been moving a lot my dad's bday is tomorrow so I'm helping mom with cakes and meals.
I feel I've been slipping a d crying a lot lately. Really need a rest. I think I messed up at PT I started taking about how hard a time I'm having with my Setback's I try to not talk about my feelings there. But now they want me in for a reevaluation plus they want to monitor me.closer now thst I'm on chemo due to the muscle and bone loss associated with this med. Me andy big mouth. The therapist talked to me about the nessecity of small steps when shooting for a big goal and I have to work within the limits i have. Which you all know is a big issue i have..lol

Jul 26, 2016 3:35 PM

Hang in there.....you have a ton going on. I know your hearing date is getting close and you are feeling the stress from that too. Try to believe it will eventually work out. It is alright to accept pain as a reality but do not give up having hope for the good days. PM me if you want to talk.

Jul 26, 2016 4:26 PM

I appreciate all your comments a d support. LMB yes my hear is next Thursday and I'm a ball.of nerves . This new treatment is tossing me around like I owe it money and I don't what way is up. I'm so hoping for a really big calm in this storm. I mentioned this feeling I have to my PT and I'm not sure if that was a good idea now. Because they have me coming in for a reevaluation next week and I just had one week before last. But I'm working on truely accepting that this is my life and nor just saying I accept it. It really is a process.

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