Was wondering if anyone else is diagnosed with AS. Having so much trouble finding things that work for me. Just when I think I have it somewhat figured out I have another flare up. Any suggestions of things that have worked for others would be great. I actually am having most of my pain in my neck right now. Last night I just went to turn and my whole neck spasmed and now I can hardly move. Any exercises, meds, special pillows people are using that work??
I know I have this as well! Are you on a biological med? Like humera or something like that.I use Zanaflex for neck muscle spasms, I can't use heat or a heating pad, it just inflammes me more..I love ice it helps. Glad you are here. Hope you can get some rest tonight..we can talk more later.
Hi! So glad to hear from someone who suffers from the same thing. I am on anti-inflammatory meds twice a day. I know my doctors are a bit confused as to why I complain more about neck spasms since AS usually starts lower in your back. I have done physio to help but sometimes they don't understand that even the slightest stretch can send me I to a spasm. What have you tried? What seems to work for you? Looking forward to chatting :)
I also have AS and my Dr put me on the lowest dose of sulfasalazine back in November. Helped a little but I think I could use a little more. I read online you can take 2000-4000 mg. I'm on 2000 want to up it to 3000. My Dr is trying to treat the fibro first because I've been in pain and fatigued since last March.
I like baths with Epsom salt. Acupuncture helps me. I go to a Chinese guy Dr. Gee. He can tell where I am in pain by touching and adjusting my back. Then he also uses something similar to a tens machine also on my back then does my knees. My pain management Dr. also gave me a tens machine to use at home. I am also going to start aquatic physical therapy. I've been so tired lately I haven't started it yet. Ice is good too.
Yes when my Dr suggested physical therapy I put it off because I didn't think my body could handle it so I put it off but then I looked up on the Internet to see if there was any aquatic physical therapy because my dad had done that in Florida and it really helped him so I finally found a hospital nearby that does it so I'm going to start it soon I've just not been sleeping and I'm so exhausted. I love acupuncture I haven't gone in a while but I'm definitely going to start going again and I love Dr Gee the guy who does it he's very funny.
That's awesome. I should see if the aquatic physio is offered around me. Does the pain keep you awake? I find I have a lot of trouble sleeping too. Can never seem to get comfortable. And I am still on the search for that perfect pillow!
I haven't slept more than 3-4 hours at a time in like seriously 14 years. I wake up if just for a minute and go back to sleep. But I never feel rested because of broken sleep. Sometimes they came to me out and sometimes I think it's because I don't sleep well at night and then I sleep during the day and it breaks up my sleep anyway
That is very frustrating. I have so many nights where I wake up and can't get back to sleep. It really affects my pain and my mood. I agree that the broken sleep can be the worse. I used to take sleeping pills but they only seemed to help short term. I have had some success with a nighttime herbal tea. I also know I should try to exercise more because that helps with sleep but flare ups really make that difficult!
I agree. The thought of exercise right now scares me because of the pain I'm in. I'm a teacher in NYC and since March of last I had to stop working and I did not know that my Union gave disability so I was getting paid here and there but not a lot so I want back to work in September and I lasted until Thanksgiving and then my doctor and I decided in January but are you had to take the rest of the year off as well. I just should have never gone back but my husband and I were totally broke because he had some health issues as well. So now I'm out on leave but I'm going to apply for disability through the Union and they give me $475 per week which is better than nothing. And then I think I'm going to take a year off and take a sabbatical for health reasons and I can get 70% of my pay so that would be really good and then hopefully by the 2017 school year I'll be good to go. I know I always have some pain but I'm hoping by then it'll be manageable.
It sounds like you really have been through a lot. I am also a teacher (in Ontario). Being on my feet all day can definitely take a tole on my back and bending down to talk to te little kids is very painful. I have the same mindset...I know I will always have some pain but I want it to be manageable! It's just a frustrating and sometimes discouraging journey to find out what works and what doesn't. Just when I think I have figured things out I get hit with a flare up. I really just try to stay positive though.
that's very cool that you're teacher also. I taught science for kindergarten 1st and 2nd grade so I would travel to all the different classrooms with a cart I had to have all the materials on it and like you said the bending over I mean I would drop something and I would have to have one of the kids pick it up because I couldn't do it myself that's how bad it was and I couldn't bend over to talk to them it was just too painful. the other teachers in the school are saying things about me but you know what they don't know how I feel so I guess if you don't have it you don't understand it.
It's so true, that is why I already love this app because unless you have chronic pain you just don't understand. People don't always know by looking at a person which can sometimes make it harder. They think we are just complaining about a "sore back or neck" ...if they only knew!!
@green23 this app is really great because AS isn't too common and when I saw your post I thought it was great to have someone else to talk to about it. I'm really hurting in my knees, back, hips, both sides and both arms. Definitely AS symptoms and not Friday.
Terri, a waterbed sounds lovely! Lol. I do have disc problems. Upper neck is where I seem to be getting the most pain right now though. I have a pretty firm pillow. I'm wondering if something softer might be easier on my neck.
For me... I need the support to be kinda firm but also to kinda surround my head, neck, & upper back. I have a "chiroflow water pillow" ... I just checked Amazon and they have them! Lots of choices & they are less pricey than the one I got at the chiropractor! 😡 sometimes I even sleep with the water side facing up!
So frustrated! My neck has spasmed again. This time I was just reaching to put a piece of paper up on the board in my classroom. I used a new pillow last night and I'm wondering if that irritated it. I find my neck and back react to everything even if it is potentially a good change (like a better quality pillow). I have tried heat but nothing is working. I am scared to even try stretching because that can make it worse.
When I say neck, I mean neck and upper back down past the shoulder blades and both sides of ribs...upper torso mainly however my lower back , the hips really are giving me fits at night and in the mornings