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Asking for all positivity & prayers you have!

Oct 03, 2018 11:49 AM

I just got home from my spine doc appt, from where my back went out in May & again in August: just twisted in shower to get soap. They're putting me on steroid a week to see if it helps my bladder & bowel function (I'm numb & cant feel anything come out). Im already set for PT 2x week into November on my neck & upper back, along with all these other appts & tests coming up on my bladder, neck, & back. Sometimes I just want to scream "enough already!"

I never made it to see my stepmom today. My sister is going today so I'll go tomorrow or Friday. I'm concerned because Mom isn't really talking much, just short (1-4 words) comments, head shakes, shoulder shrubs & facial expressions. She doesn't express being in pain from her hip fracture & replacement surgery. She's not acting herself at all.

When I got home , my hubby was at house with my daughter for her to get our extra car. My grandson was hospitalized today. He's been losing weight, not eating and throwing up for months. He's 65 lb at age 14, heart rate increased, lethargic, and they don't know what's going on. I'm worried sick! 😢❤🙏🌼

Oct 03, 2018 12:09 PM

My prayers are with you and your family , I pray for strength courage and healing of any infirmary that may be upon you and release all unto our Father above🙌🙏🙏

Oct 03, 2018 1:03 PM

Thanks Cb1227! I want to go to the hospital, but my daughter wants me on call for the other kids.

Oct 03, 2018 7:11 PM

FlappysLady81 I'm so sorry to hear what you're going through right now. My thoughts and prayers are with you 🙏

Have you spoke to the staff about your mom? I hope she is okay.

Any news on your grandson? I'm sending love and prayers to him, your daughter and your entire family 🌹

All my love and prayers 🤗

Hayley x

Oct 03, 2018 8:23 PM

You and your family are in my thoughts and prayers flappysLady81.

Oct 04, 2018 12:16 PM

Flappy's, just now seeing this. I'm sorry to see everything that your you and your family are going through!

The situation with your grandson sound's identical to what I went through with my daughter, had she though about keeping a food diary? She was sick for 6 months before we finally figured out she Celiac's, but that was because we kept a food diary. I will be praying for you and your grandson and your mom and most of all your sanity! Much Love my friend! 💖😘🙏🙏

Oct 07, 2018 9:59 AM

Thanks for the food diary Moparmom. I'll suggest it to my daughter. Maybe she can even do a behavior diary too, as the doc wants them to let this child do as he please for a week. And then they are to slowly add responsibilities and consequences, and his reaction too. They did an end and other than some gastritis, likely from throwing up, he was fine. They did a colonoscopy last year that was normal. Now they all think it's him purposely manipulating, through learned behavior & response for the last several years (daddy to thank for it). But his declined autism and add/adhd issues makes it very hard for him to control by thought, just a subconscious reaction. I'm having a hard time understanding that, but this is my first experience with anyone with autism, and his 14 yo buddy has a 7 yo brain. There's so much to consider here.

Oct 16, 2018 9:56 PM

Hi 👋🏼 I’m new here. Your story is very moving. My gosh, sometimes when it rains it truly pours. Wishing some good news finds you this week.
BB 😇

Oct 17, 2018 6:58 PM

Thank you BunnyB! My grandson is doing ok. They are tracking what he eats and plan to go through behavior & another psych therapy with him. Sadly my stepmom, who fell and broke her hip September 25th and had partial replacement surgery then went to rehab... She fell Sunday and dislocated the same hip. So they lightly sedated her long enough to put it back in place, and now her already affected Alzheimer's brain (from 9/25 surgery & "progressive Alzheimer's") is truly deteriorated. They can barely get her into a sitting position, she can't follow simple commands (roll towards me/onto your back/lift leg...), and doubtfully will ever walk again. I've spent the past 4 days sitting with her to make sure she's safe. After ripping her IV out yesterday and trying to remove her heart monitor and other bizarre behavior they restrained her overnight. But the doc stopped the IV fluids and the restraints today. She started picking at the IV port again, among other things. She's being sent to a long term care nursing home with rehab in house. She's fading faster than my Dad did over the past year and a half, we lost him in May. But God is my rock and He gets me through it. I'm about to turn in from sheer exhaustion, and pain so bad today I had to use my rollator just to walk. And I have to be at the hospital by 7:00 am tomorrow. Hugs love and prayers you have a blessed evening, and everyone else too! 🙂❤🙏🌼

Oct 18, 2018 5:35 AM

I'm sorry to hear about your step-mom. You and she are in my prayers.

Oct 18, 2018 10:06 PM

She is very blessed to have you by her side even if she can't say so. My heart goes out to you. 💜

Oct 18, 2018 10:41 PM

Prayers for both you and your mom. ❤️❤️

Oct 19, 2018 7:18 AM

Flappy you are in my continued daily prayers my friend, if you ever need to talk I’m here for you ❤️😘

Oct 19, 2018 8:45 AM

Thank you each & everyone! We left her yesterday in a bed at the healthcare facility, where she will receive long term care and rehab, as tolerated and achievable. The staff was very surprised she's unable to even sit up or pull up on her own. This happened after her fall on Sunday. I'm so sad and heartbroken. Sometimes she looks at us and doesn't seem to recognize us, and she hasn't been able to call us by name since Sunday's fall. She's becoming feeble right before our eyes. It's more than just the Alzheimer's I think, but I'm not sure what. She's cried several times and I know even though she doesn't really understand what all is happening, subconsciously she likely knows it's not a normal healthy life, and maybe she's given up (like my Dad did when he found out she has Alzheimer's). I'm just glad my Dad doesn't have to see her like this, because it would have killed him. Our son-in-law told our daughter that I'm aging before their eyes (for the past 2 years helping my dad & stepmom), and sadly I feel like I am. I should feel relief that she's in a 5-star care facility, even if it is an old building that looks like a nursing home of the 70's. But I feel very depressed instead having to leave her there. Because she's bedridden right now, and it's not likely she will ever safely walk again, we had no other choices. This facility is the only one qualified to handle the bizarre behavior that has slowly surfaced since her hip replaced 3 weeks ago. I don't hold out much hope for her to improve to walking again. And she may not even ever sit without assistance. I know I shouldn't be negative, but I feel like she will either have another fall &/or be gone in the next 6 months. 😢💔

Oct 19, 2018 4:15 PM

I'm so sorry FlappysLady81 she is going through this. Don't forget to take care of you!

Oct 20, 2018 12:09 PM

Sending you and your family love and prayers. Stay strong 🤗🙏🌹

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