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Asking my doctor about fibromyalgia

Jun 12, 2017 9:15 AM

I am on vacation trying to enjoy my time here and I am actually having a low pain day for me but I am tense in anticipation of the 8 hours drive home because I know I will be in an incredible amount of pain for the entirety of the ride. I have a dr appointment scheduled for when I get home and I want to discuss fibromyalgia as a possibility for me. I have felt alone and crazy for my pain and I had accepted it as normal for me but the truth is it isn't normal and when I read about symptoms and other people's stories it almost always brings me to tears because it resonates so much with my life. I am hoping to find answers and I am happy to have found a community who understands chronic pain.

Jun 12, 2017 3:27 PM

Make your doctor lisren to you.

Jun 12, 2017 3:33 PM

I made sure when I scheduled my appointment that she believes fibromyalgia is real because I had read that some are still doubtful and won't diagnose. I just hope she believes me and it's not a nightmare where I'm having to sell my truth to her to get her to trust I'm not lying or being dramatic. It is so exhausting trying to explain my pain to people who think it's in my head.

Jun 12, 2017 7:46 PM

I know sometimes you just want to get home. But stop every 2 hours at a test area and park far from the restrooms. Make yourself walk and streatch out some. Do this for at least 10 min and on the road again!! My doc told me about this. Even if you don't have to use the restroom. Get out and walk. For an 8 hour trip it adds an hour maybe but takes a lot of pain away.

Jun 12, 2017 11:41 PM

@ lb24.. Welcome to our support group 😊 I hope your doc is able to help ease your pain. My thoughts and prayers are with you 😊😊 ((Gentle hugs ))))

Jun 12, 2017 11:48 PM

I also hope you made it home safe 😊 and yes doc are crazy lol. It is very frustrating for me when. I make a doc appointment. I have to explain the reason. Than @ the appointment the nurse ask. Than good ol doctor games in ""So what brings you in today ? "" Its like read my chart lol. I told a few of them to do that . Than and only than did I talk more about it β˜Ίβ˜ΊπŸ™‚πŸ™‚

Wishing you the best of luck 😊😊

Jun 13, 2017 3:10 PM

Hi. I would also like to welcome u to the group. I'm a new Comer myself and it's a relief to have others who understand.

I hope your doctor listens.
Prior to doctors visit I had been seeing a nurse practitioner. She diagnosed me with fibromyalgia and started me on some meds. I shared this with my new doctor and he referred me to a rhuematologist to confirm that the fibromyalgia and also to test me for rheumatoid arthritis as the symptoms I have been experiencing are similar. I just hope that the specialist will believe me and not rule out the fibromyalgia becuase I feel a lot more than joint pain.

Jun 14, 2017 2:18 PM

Aloha finding doctors who believe fibro is real is a muat...I would also suggest going to a rheumatologist because then you will also be tested for auto immune diseases to rule out those and help make sure you get the right diagnosis...this disease is awful....here is the truth...they do not knot what causes it yet they think they know how to treat it...make sure YOU educate yourself because some doctors rely on you being ignorant (I have ran into this many times) I have also promptly got rid of those doctors...you want someone who will.work side by side with you to get the best overall treatment....I hope you find out and get the best doctor ever! Let us know

Jun 16, 2017 2:22 PM

Remember to make a list of specific issues you are having. Everywhere you have pain, what it feels like, how long it lasts, etc. I went undiagnosed for years because I went in for appointments and could only remember what was hurting the worst, rather than presenting ALL of my symptoms.

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