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Back Pain with meds - What's working for you?

Jun 16, 2015 7:00 PM

I'm having a good day since one week of pain. I haven't been posting much due to new medication and post surgery recovering which had its ups and downs.

I've been put on Endep or known as amitriptyline. Low dosage 10mg at first and now twice a day. One in the afternoon and one at night. Still felt like crap in the afternoon and the upside was I was getting 8 hours plus of good rest which helps a lot.

Now this kind doctor has added oxy codone 5mg in my afternoon and night med diet. Again, these are very low dosage compared to what doctors would give anyone in a lot of pain. I've also been given endone, an opiod morphine based 5mg for "rescue". Which helped a lot. But definitely not something I would wanna take. I don't drink often but this pill made me felt drunk the whole day which wasn't what I was looking for. Still it did miracles as it dropped my pain down to 0.

Sad news is the doctor I've been seeing for the past few weeks is leaving. For those who have read my situation, I come from a small community and new doctors are just the norm. She listened and have great experience treating pain for cancer patients. She was the one who started me on Endep where other doctors told me to take more Panadol and ibruphen .....good things don't last long. I've only regretted not asking enough information on what she would does to assist people with long term pain. In summary; the following is working for me.

Endep 20mg / day
Oxy codone 10mg / day
"Magic cream" with gebapentin 3 times daily.

Jun 17, 2015 1:48 PM

WOW!!! How absolutely awesome for you that the combination of medicine you are on is working for you and that the one pill brings your pain actually down to zero. You can't ask for better than that. Perhaps when this doctor leaves, they can compose a letter advising that is combination is very low dosage, not too many different kinds of Meds and that this has been improving your quality of life incredibly. Have faith that somehow, even though the doctor may be leaving, another can take over and give you the same combo of Meds and you'll feel better. You're in my prayers I hope it all works out for you.🙏🏻🌺

Jun 17, 2015 8:52 PM

Yeah having it down to zero don't mean I can go play football again lol. Feeling drunk you just wanna sit and watch a movie. Pain is to zero but not mentally functional if you know what I mean. The doctor leaving did say something about patches, but thought for now the meds above can give me the relief I want.

I don't want normal over the counter patches cause I've tried most if not all of them. Not sure how I can put this to new doctors though. I'm not even sure whether the new doctors will even continue my scripts for the meds! It's annoying because all doctors have their own opinions. I don't want to see doctors every month. If only I can get them to give me continuos repeats with 3 monthly check ups I'll be happy.

Jun 18, 2015 5:59 AM

I'm happy that you've found something that works to control your pain!
I'll be seeing a pain management specialist on the 14th to try to control pain from Ehlers-Danlos Syndrome. Rumor is that the PMS (giggle) and my GP are discussing finally placing me on opiods, since all other medications have failed to keep me comfortable.
Right now, I'm on 800mg gapapentin 4x daily to help my back where my back collapsed and herniated everything from my L1-L2 down, but the gabapentin doesn't do much when every single joint in my body hurts, yanno?

Jun 18, 2015 10:21 AM

On wow, Flimsywrist, it took me a few to figure out the "PMS!" Lol... It's my brain fogs fault! 😉

My epidural steroid injections brought me the most back pain relief. 🙏🌼

Jun 18, 2015 4:04 PM

I am awaiting the day that the PMS (more goggle) says i can try an epidural, FlappysLady.

Jun 19, 2015 10:37 AM

Glad to hear that you and your doctors found something to bring your pain down to a 0. I too am awaiting the day when they can get me into the OR for the facet joint injections. Hoping those will bring me some relief from the whiplash in my back. One can always hope.

Jun 23, 2015 2:40 AM

I spoke too soon lol....not working as good as I thought 🙈

Still manageable with the rescue pill, but it's not something my doctor will give me a long term script for I am very sure. Sigh....lost of hope

Jun 23, 2015 8:52 AM

Amanda, I had the facet injections two weeks ago. I'm still pain free (for the most part). Remember, that procedure is meant for diagnosis mostly. Any long term pain relief is purely subsequential. It took me five days before my pain level dropped. Prior to that, I was sure it didn't work. In fact, I thought the pain was worse! But, it did finally subside. I am now back on the upswing. I've spent the last 24 hours in bed. Be sure to ask your doctor if he's going to add steroids to the mix; and if so, how much.

Jun 24, 2015 12:01 AM

I fight two chronic pain issues, severe degenerative spinal stenosis and fibro myalgia. I am on oxycodone and morphine through out the day and night. I am never pain free. I don't know why this is my lot but I know with prayer I still function from my chair. I feel for all of you. Prayers for better days.

Jun 24, 2015 3:56 PM

Alaska, morphine throughout day and night? I'm not sure the doctor would prescribe me such meds for daily use. The endone which is morphine really brings my pain down but the doctor is anal about prescribing it. Like I said above, it does help but makes me feel drunk which I don't like, only upside is I get to be pain free though. Dilemma !

Jun 24, 2015 9:23 PM

I take Fentonyl patches which have to be changed every 3 days,Hyrocodone / Acetaminophen 325 /7.5 for my neck pain and back pain, for my nerve pain I take Gabapentin and Savalla. I have Syringomyelia, Syrinx, Fibromyagia, Osteoarthritis, and a herniated disk @L4S1 with a uprooted nerve,Spondylosis, degenerative disk disease. Some other medical diseases that I won't mention at this time. The patches have really helped a lot I still stay around a 7-9 pain level.

Jun 25, 2015 12:11 AM

Weezie? Pain level between 7-9??? I'm speechless.......I don't think I'm anywhere near your pain level, I do hope u can find something soon... 🙈

Jun 27, 2015 9:19 AM

I also use Fentanyl patches; however, I've been given hydrocodone/acetaminophen 10/325 for breakthrough pain, which is mostly all the time. Although I did have the facet injections, I have still been able to reduce my pain meds as much as I'd like. And, the pain is gradually returning, more every day. I still only hover between 3 and 4, awaking early each day around 8 or higher.

I have fibromyalgia (12 trigger points), osteoarthritis (all weight bearing joints), degenerative disc disease with herniation between L4-L5, bulging between L3-L4, C1-C2, and throughout the thoracic spine. I also have mild scoliosis centered at T5, which they've determined to have been caused by three dislocated ribs.

Finally, in answer to your question, the answer is 'Pacing', doing more when you want to do less, and less when you want to do more. (Harder than it sounds, I know.) I also have a morning routine.

Jun 27, 2015 9:21 AM

I meant to say I haven't not I have. And, the scoliosis is mild dextroconvex type.

Jun 27, 2015 6:01 PM

Hmmmmm, I'm going to see a old doctor again whim I haven't seen for a long time. I want to ask for the patches, if it's controlled release and not addictive, it will certainly be better than anything else.

I'm having a pain level of 9 at the moment, 5 am sigh... I've run out of rescue pills ....... Not sure whether I should go ER in the morning ....I can barely move.

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