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Back to normal?

Sep 02, 2015 7:09 PM

I feel kinda torn right now. I might be as close to "cured" as I'll ever be. I'm not normal, but a lot closer. There's a flare looming over my head, and I'm going to ask my docs to test for Lupus. May as well rule it out, or diagnose it. I don't feel like I entirely belong here anymore, my questions are all about getting back to whatever "normal" means. I can't ask the people without pain, and so I don't know where to turn.
I'll probably still be on here from time to time, but I feel like I'm becoming just overly optimistic, which isn't all that helpful. I still have questions, but I guess I'll just have to ask around.

Sep 03, 2015 9:54 AM

Ferretbandit, I understand your frustration. I, myself, always wonder when the next flare is going to come and what will trigger it. There's nothing wrong with being optimistic. Although, I hear what you're saying because when something goes wrong, you're disappointed and left in the same jam with no answers. I'm sending you hugs. I think you do belong here because it gives you the much needed opportunity to get things off your chest with folks who understand. Try not to focus on what's "normal". The way I look at it is that what I deal with on a day to day basis is what is normal for me now. It's just the way it is. I'm not happy about it but who really knows what normal is anyway!!! I mean one example they say "normal" body temperature is 98.7 degrees. Well, that should be changed to average because MY normal body temperature is 97.0 degrees. So much for normal, right?? Hang in there, we're all here for you. Don't drop off because I for one will worry about you. You're in my thoughts and prayers {{{hugs}}}💕🙏🏻🌻

Sep 03, 2015 5:38 PM

Ferrit it's good news you are feeling better....I too am at your stage where I have only moderate pain that is sometimes barely noticeable. But I'm just on a cocktail of meds. To me that's my normal now and I'm working as I did years before my injury, except lifting heavy things of course.

I find this community useful as we have such a varsity range of individuals whom were or are in pain but still manage to help others. We don't all have bad days everyday... Even we might rant a lot here, I do get maybe a week of "normal" where I feel hardly any pain. I feel like I'm normal like everybody else during these time and always try to get the most out of it.

Sep 03, 2015 6:20 PM

Thanks. I guess I just feel confused. I don't even know what to do with myself when I'm feeling okay.

Sep 03, 2015 7:47 PM

As a mom I can tell you that we all are here for you in whatever capacity you need. I feel like we do look out for each other and especially you and other younger ones in the group. Take life one day at a time. I am very happy that you are feeling better enjoy it. Please don't just disappear on us, we will worry about you. Enjoy all the good that life has to offer. Check in every once in awhile. Take care little one.

Sep 04, 2015 9:20 PM

Ferretbandit, it's a good thing to feel better and have less pain. Optimism is a good feeling to have too. It gives you hope, and keeps you going on bad days. If you're on here less because you're enjoying feeling better, then kudos to you! That would be awesome. Just don't leave the group, check in now and then.

As for what's normal, it's different for each of us, both before and after we became so sick with pain. My normal six years ago is nowhere close to my normal now. And really it changes every day. I got up feeling really good today. When we got home with the groceries I lifted a bag way too heavy for me. Fifteen minutes later my upper back, between the shoulder blades, started spasming, all the way to my breastbone. That's normal for me when I stupidly lift too much. Now I'll be on muscle relaxers, likely through tomorrow. But I'm optimistic it won't last through the weekend. If it does, maybe I'll remember not to overlift next time! Lol To me everyone's normal is simply what we perceive it to be, what we accept as our own normal 🙏🌼

Sep 04, 2015 9:44 PM

I have days where I think it's so great to feel good again. Maybe I'm lucky and got better. Lol. Then I over do ,or the weather changes, etc. BOOM! There I am back in a flare. Fibro is a crazy mean illness.

Sep 04, 2015 10:47 PM

Its funny because I used to do that all the time .. i have a great day or two and think YAY finally .. then i go completely down hill the next day ..it took me a really long time to stop doing that so much because the disappointment was crushing .. then id spend the next few days an emotional disaster. Now i just try to enjoy the good ones and accept and adjust during the bad ones.. even if that means i have to cancel plans and stay in bed but it helped coming to the realization that I'm sick and i will always be sick. All we can really do is take it day by day.

Sep 04, 2015 10:55 PM

I agree with Flappyslady ferret ... when i started doing better i stopped going to my old support group and lost touch with all most everyone. . Then things got bad again and the support I had before was gone .. you dont have to do as much but I think its good to visit and keep the support line open ... not to mention I read a lot of your posts and you have a lot of good input and knowledge that can help others!

Whatever you decide though i hope you know ppl are here for you if u need them ((hugs))

Sep 05, 2015 2:18 AM

Ferret, I am glad you are feeling better. It makes us feel better knowing someone is getting relief. I, on the other hand withdrew because I feel like I was to much of a downer at the time and didn't have much to offer the group. When I don't perk up in a few days, I feel bad that I can't cheer others up.. That is my problem to deal with. There is always reasons to draw away from a group like this but it is a support group for good times and bad. Let us celebrate your good times with you while you have them.

Sep 05, 2015 8:07 AM

Profiler, that is what we are here for. To help you feel better when you are in that state and to celebrate with you when you are having a good day. You're not and never have been a downer. We all have times that we can't function or need to vent. That is not bringing the group down, it brings the Warriors to your aid and give you the support you need to get through the crisis and know you're not alone. Many times when I feel like I am in a pit and am miserable, I come here and see who needs help and do my best to offer support and advise. Through doing that I find that I have taken the focus off of my pain and I feel a bit better. If you ever feel like that again, give me a holler.. I'll come running to your aid!! (Well maybe not running.LOL) but I will be there whenever you need me to be. I hope everyone has a peaceful and lite pain day. 💕🙏🏻🌻

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