I am new here and am so excited to finally find a place that has problems just like me. I really appreciate it if you guys would let me know what's your favorite way to get to sleep when the pain gets to bad? Thank you...
I listen to an audiobook novel (I can't do nonfiction at night because it's to stimulating and sometimes I want to take notes, so it defeats the purpose, haha).
I set the sleep timer on my iPod nano so it turns off in about 20 minutes or so, and it is just enough to allow my mind to engage in a story, take it off my pain, and fall asleep.
I used to get worried about paying attention or trying to remember what i was hearing, so I could find my place later, but I find that rewinding is so simple, especially since it doesn't play for a hours on end.
I also use mud ice packs as a diversion, and some nights i add a TENS unit as well, but they're a pain of a different sort because of all the wires.
I also take 0.5 mg Alprazolam and 10 mg diazepam at night and that seems to help.
Anyway, at least I do sleep now. Seriously the audiobooks have been a lifesaver! I've found that it takes some people a while to 'learn' how to listen without their brain wandering and worrying or mentally checking the to do list and actually LISTEN to the novel, but it can be done! I know people who have learned how.
They aren't visually stimulating and have no light like the it computes, which is good.
Sometimes I have to play it a second round, but not very often. I seem to fall asleep within about 15 minutes these days.
Not sleeping can just compound the symptoms, and I wish you the absolute best and you're sleeping endeavors!