Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness


Mar 07, 2016 10:31 AM

This weekend was very painful for me. My lower back hurt so much that I couldn't even walk anymore. Not in the store not even around my house. I'm waiting on insurance so I can get an MRI done. Cause my back is getting worse and the spasms were horrific. My aunt gave me pain medicine, I always tell her no cause of what it is. But to be honest I took it and just didn't do a lot of walking and my back feels slightly better.

Mar 07, 2016 10:50 AM

Sometimes you just need some kind of relief, but I know what you mean about meds, I hate taking them myself. I'm glad you were able to get some relief, even if it's not a lot of it. Gentle hugs

Mar 07, 2016 12:00 PM

Pained lady I hope the mri comes soon. Prepare yourself for the possibilty of nothing. I went through this let down after having my entire spine mri'ed. Knowing what is wrong helps but the new norm by doctors is to do nothing until they absolutely have to. In my case surgery could equal death or paraplegic. Also fusing causes the surrounding areas to go bad.

On another note ask for a cd of your mri before leaving. My hospital provided it for free right after and when I got home even my untrained eyes could see the mess my spine is in. It is also helpful to see it and I can print or bring my laptop top if needed to show others.

Hoping you find relief I can so relate!!

Mar 08, 2016 11:37 AM

Make sure when you go to ask for a pillow or support under your knees, that can help with lbp. It doesn't take it away, but at least it helps with laying flat and still for 30 minutes. And be ready for tons of pain after, holy moly!
Agree, they should give you a copy of the cd and they should send one to the requesting doc. Fascinating to look at, but scary when you realize that pile of stuff is inside you!!!
If they find "nothing", there are still a few things. You can look up gentle pt exercises to strengthen your lb and core. Look into a TENS unit, you can buy a good one online for under $50 or so, they are FANTASTIC for pain in many cases.
I pray that the mri comes through soon, and that whatever shows on it can be helped.
My first extreme back pain came out of nowhere and had me down and crying at age 26. Docs were baffled until a week later when the shingles blisters appeared!

Mar 09, 2016 8:04 PM

Heating pad, hot soaks. Ice if you have muscle pain with swelling. Gentle stretching. Being active also helps relieve back pain sometimes, but gravity is awful so swimming is good. Range of motion. Back pain with no diagnosis is frustrating. MRI may get you answers and may be just as confusing as none. Be prepared to be left confused. My issues are primarily auto-immune and like to focus on my lower back and spread outward. 35 years later and was finally properly diagnosed 3 yrs ago.

Mar 10, 2016 1:05 PM

Painedlady, Like Shammagren I have damage, which if surgically repaired could paralyze me. My neck is a mess from C1-T1. Having had C4-C7 fused in '92 & '95, the discs above & below are gone. I have thoracic & lumbosacral issues too, UT no doc is willing to do surgery until there is no other option. I hunk they're finding all those who had surgery went on to worsen, so doing no surgery is now the norm unless there is nerve impingements.

I've had multiple MRIs and a pillow under the knew is a must! But when you go to sit up and then stand up, take your time between each stage of movement. You'll likely be stiff from having to lay there. When you get home take something and put heat or ice on the low back for awhile. I've never hurt more than a few hours from lying on the hard tables. But everyone is different. I hope the MRI comes soon and you get the answers you need to move forward! 🙂💕🙏🌼

Mar 10, 2016 11:17 PM

Painedlady, I also deal with low back pain almost everyday. I'm not taking any pain meds but smoke herb to relax my back. I have disc bulge on my L4-L5 and L5-S1. I go to physio,active rehab and go swimming every other day. I have been dealing with my back pain for 1 1/2 years with little improvements. Some days are good and most days are bad. When its good I'm able to help out at home. After moving around the bad days starts for me because it gets aggrevated right after. I hope and pray everything goes well for you and that you don't have to deal with same pain as I do. Keep us updated

Mar 11, 2016 1:10 AM

I have had two surgeries on my L4/L5 discs (the first one didn't work). The pain beforehand was excruciating. If I get any twinges at all in my back I sleep on the floor for a night or two with a padded camping mat with my feet raised slightly on a pillow. This works to keep the pressure off discs and helps with realignment. Hope this helps.

Mar 11, 2016 7:29 PM

I am new to this app.. I am in the UK. . I have had a lumbar fusion with titanium cage .. been 10 years since the opp .. I now have bone spurs in my neck and bulging discs in the middle (thoracic ) with weekend discs either side of the fusion.. I find lidocaine patches help with muscle pain an physio but the nerve pain is harder to get rid of.. hope you find the cause of your pain

Mar 11, 2016 9:13 PM

I have bad back pain & severe nerve pain. When I saw the neurosurgeon I had no clue what was the matter, and therefore didn't know what to ask. So all I know now is he said 5 lumbar disks were messed up, severe scoliosis and everything is pushing on my sciatic nerves. Since that appt. I have been trying to read more about DDD etc..The surgeon said it would have to be fused and is only going to get worse until I would lose control of my legs. So here I am with no idea as to the aftermath because unless I commit to the surgery he will not tell me what to expect. Has anyone had this done? Does it alieviate the symptoms for a time? I think I saw someone say if you have one part of yr back done, then another part goes bad?? Can anyone comment on this? I use lots of different techniques to try to make my pain less, I cannot say I succeed with my therapies, but I keep trying. I sure wish Your pain was not so bad. TENS unit did nothing for me & I became allergic to the adhesive in the pads that go on my skin, but maybe it would work for you. I found that cold therapy I could not tolerate as it gave me more pain with bone deep ache. Good luck to you.

Ready to start relieving your pain?

Join Community