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Bedridden To Workout In 12 hours - My Tips

Feb 09, 2020 8:52 PM

So my flare up still hasnt ended. I woke up this morning and didnt want to get out of bed, I watched some TV, wrapped myself in blankets, laid on my heating pad and closed my eyes, breathing deeply. I didnt want to think, move, eat, even breathe.
At 11 am I looked down and realized I didnt want to spend another day this way. I told myself 'one step at a time,' and that's exactly what I did.
It started with me getting up and making myself a meal for breakfast, but then I had to get back in bed for a while. That's okay, everyone needs a break.
After I took mine I got up and decided to distract myself with some school. I managed to get all my homework done and then ate some lunch. That's a second meal.
After this, I was really hurting. However, instead of taking pain meds I did a little stretching. Not too much, just a little bit. Now this doesnt take the pain away but it helps with blood flow, which is just as beneficial.
After this I decided to really push myself and go on a bike ride. Yes, leave my house. I hadn't gone outside all weekend.
I jumped on my bike and sped off around my neighborhood. I rode for a long time, my muscles screaming at me to stop. But I refused to. I rode for 45 minutes before coming home and drinking some water. Of course, after I had to rest.
I rested for a while, sitting on my couch and scrolling through useless instagram feeds. I babysat for a while and then started studying for a test.
I ate dinner (yes, a third meal - sometimes that feels impossible for us spoonies!) And afterward played guitar. Music is my life. I'm a singer/songwriter and music has always been an outlet for me. I managed an hour of guitar and wrote a new song.
After all this I was burned out and exhausted. It was time for bed... but one thing first.
I put on my workout clothes, grabbed a yoga mat, and did 30 minutes of cardio. I feel better than I have in forever. My flare up isnt gone but I really feel as if I have improved my pain levels. I started this morning at a 9 and am down to a 7.5. Huge accomplishment.

The point of this story is to tell you guys that you CAN do anything, even when you feel like you cant. Now I'm aware that this is really hard and some of you are probably thinking "screw you" (lol you are justified) but just know this was no easy task. I'm drained from the day and will probably be tired tomorrow... but I know it'll be worth it.
Here are my flare up tips to help you guys.
1) Pain is usually a sign our bodies give us to tell us something is wrong. But since our neurotransmitters are messing with us, pain is a constant. When you feel pain, your body isn't telling you that you are in danger. I'm not saying you should go run a marathon, but since you are in no actual danger it is normal to feel this pain. Dont stop because of it.
2) that being said, dont push yourself too hard! You know what you are capable of and what you just cannot do. Theres a difference between being uncomfortable and being in intense pain. If the latter is you, take a break!
3) The average person has about 12 usable hours in a day. People with chronic illnesses (on average) have 3-5. Use them wisely!! If you have the ability to accomplish something in that moment, use it to your advantage!
4) Do it until you think you cant anymore, then do it a little longer.
5) Don't be afraid to say no! You do not have to be capable 24/7
6) A lot of people who have fibromyalgia or another chronic illness have had some sort of trauma in their lives (physical or mental). Trauma tends to enhance empathy. Please remember, you do not own all of the problems in the world. Worry about yourself first.
7) You cannot help someone if you are not in your best condition. Always make sure to make time for yourself.
8) You are battling something everyday that most people would crumble under. You do not owe anyone an explanation. Ever.
9) Heating pads, essential oils, comfort food, weighted blankets, cool rooms, sweaters/sweatpants and pets forever
10) Take it one step at a time. It doesnt matter how slowly you go as long as you do not stop.

You are all so amazing.
A post that keeps showing up on Instagram says "How To Recieve Inspirational Texts from Fibro Warriors: 414.600.7595"

I'm not promoting them or anything, just making it known that these services are always there. You are never alone :)

DM me if you have any questions for tips or advice for any fibro situation, or just need a little pick-me-up. Here for all of you!

Love you guys πŸ’œ you all can do this!!!

ALSO DYED MY HAIR PURPLE WHICH IS THE NATIONAL FIBROMYALGIA COLOR! LET'S RAISE AWARENESS GUYS!

Fight For A Cure πŸ’žπŸ’žπŸ’žπŸ’žπŸ’ž

Sorry for the long post, hope I got my message across haha

Stay Strong,
- RFF

Feb 10, 2020 8:30 PM

RFF, though are an inspiration & a reminder of the old me. My saying has always been "one day at a time, one hour at a time, one step at a time," and to take frequent breaks between activities. But thre past few years have been so rough for me that I forgot those steps you described & then some. Thank you for thre reminder!!

My hubby & I were sitting in the exam room at my pcp's office; I had to get surgical clearance of course, otherwise he would never see my beautiful face again (despite being scrunched up in pain...lol). We were reading the computer board that kept flashing different things on it, and one came on about moving & exercising being helpful to fibromyalgia. I already knew that because of (1) my rheumy doc told me slow stretches, warm showers, & exercise or moving throughout the day helps with the pain & stiffness that comes from immobility, and (2) my experience in the past of doing exactly that, until I injured my hip then knee in 2018. My hubby said, "well you would get exercise IF you could move around." He said the PA watched me walk down the hall, studying my painful gait. When we left I was in terrible pain from all the extra walking & even being made to get up on the exam table by the "oh so smart doc." I told my hubby, "I know I have a lot I need to do today, but I can't do another thing until I get my feet up and rest at least an hour." He said for me to rest 2 hours if I needed it. πŸ‘΅πŸ’žπŸ§“ LOL

Thanks again for your very encouraging post! Hugs love & prayers you have more good days than bad, and your flare ends very soon!πŸ™‚πŸ’žβ€πŸ™πŸŒ·

Feb 11, 2020 12:05 AM

Very inspirational and wise words. Sounds like your doing better. Wow you’ve achieved more in one day then I usually get done in almost a week. Lol. Purple is one of my favorite colors. πŸŒΈπŸ’œ

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