Hi everyone. My doctor suspects I have fibromyalgia and I have a rheumatology appointment in 2 weeks. My problem is when I went to GP several months ago I was at the peak of a flare and feeling very ill. This has since passed and I'm left with minor aches and pains. I wonder what it was all about. If I find it difficult to believe and remember how bad it was how am I going to express this to the rheumatologist?
Journal, journal, journal. I also kept a calander of the days I spent curled up in a ball crying. Note anything that aggravates symptoms-weather, food, exercise, ect. Also how long your joints are stiff in the morning. Arthritis is a puzzle and so is fibro there are many pieces to each. Provide as much information as possible. I included any diet changes that helped too. Also do not go in looking all pretty obviously you do not want to look or smell like a street dog, but if you feel well enough to look like you are going on a date you will not be taken as seriously. Sad but true. I find if I go in with written notes I get better care and I do not get rushed or forget anything. PM me if you would like to talk more.
I had my first rheumatologist appointment a few weeks ago and it was the same situation where my symptoms weren't bad at the time of the appointment. She still went through all of my history and symptoms and still checked things out very thoroughly. I feel like this was the first doctor who actually took me seriously with this stuff. She scheduled a follow up for a month out to see how I'm doing then and to go over blood test results. I got so used to my primary care doc just dismissing my pain and telling me to take Tylenol.
Remember, rheumatologists are used to dealing with patients that have chronic pain that gets better and worse over time so they should be more understanding.
Keeping a pain diary should help a lot. Having information on any family history of similar problems can be helpful too. Good luck