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Being the new kid with chronic pain

Nov 05, 2014 7:47 AM

Hi guys. So I have had chronic pain for several years in my neck, shoulder, and down into my arm and hand. I also have chronic migraines. I was diagnosed with many things; crps/rsd, fibromyalgia, damaged brachial plexis, occipital nerve damage ect...ect...
I started on this journey in high school and it has determined a lot of factors in my life. I felt isolated in high school being the only teen I knew with chronic pain. The other kids just didn't get what I was going through. I had trouble writing and even figuring out how to focus through the pain in class. I couldn't participate in a lot of things that I used to enjoy doing with my peers and that crushed me.
Not only did it isolate me from my peers but it also separated me for my family. At first I tried to act like I wasn't in that much pain but my family soon realized that I still couldn't move without crying or grimacing and that I rarely slept. I then opened up about my pain and they were supportive for awhile but now they seem annoyed whenever I am having a bad day. Explaining to adults what my pain was like was/is something I struggle(d) with. I have gotten into multiple fights with loved ones where they tell me it is all in my head. It's really hard to not have the support needed from people to get through this. I was never a healthy child, I struggled with several chronic disorders such as LQT syndrome and epilepsy. The addition of chronic pain really limits me.
I moved recently to go to a different college in a different state where I can make new friends and just kind of be free. I feel liberated from the pressure my loved ones put on me to get better. But I also am still struggling with working and explaining my situation to people who didn't know me before my pain.
I was wondering if there was anyone who has moved offices or schools and how you explained your pain to others. Also, if you have chronic pain and are a college or high school student, what are some tips you can give for how to succeed with constant pain?

I'm so glad I found this website. I finally feel like others know what I am going through. If you have any suggestions, please respond! Thanks! <3

Nov 05, 2014 6:22 PM

thanks CJE75!

Nov 05, 2014 8:29 PM

I also like the spoon theory!

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