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Being to strong?

Oct 07, 2015 1:18 PM

I don't let on how much pain I'm in to my family. I try to carry on as normal on a daily basis. I do limp or woddle or groan alot but do t compain alot as im sick of hearing my self. It's not until you read someone else's post about constant pain that I cry.it brings it home. I'm not alone. People do understand. Xx

Oct 07, 2015 2:02 PM

Yes you do and I can not express how it feels to find people who do get it. Has the same symptoms and are battling to be recognised and symptoms to be valid and confirmed as some thing that exists. I'm still battling for a diognoses and answers to why I'm in pain all the time and why I'm the way I am. I don't feel crazy or like I'm the only one or perhaps it's in my head. Thank you xxx

Oct 07, 2015 2:12 PM

I've been diognoses with ibs, on off depression, migraine, sacriolitis, sciatica and never recovered from symphysis pubis dysfunction but this doesn't answer my knee pain where it feels I've done a hundred squats and stairs and lowering to sit etc is agony daily, foot pain when walking or standing for any period of time my feet ache. Being tired all the time, or week or achy arms when drying my hair is a effort. What a moan! Lol

Oct 07, 2015 3:40 PM

I can completely understand where you are coming from on the sacroilitis and the sciatica. Question, where exactly is your knee pain located at? Which side?

Oct 07, 2015 3:55 PM

Nope not alone in hiding the pain. Like you I don't want to here others moan and bitch all day, so why do it my self.
I bet like me you found ways to push it away somewhere in the back of your mind and not focus on it. But frankly your family, the doctors, your friends none of them can really understand till they go threw years of content suffering.
Be strong. Be persistent and make the "experts" listen. I suffered for 18 years with no real answers then suddenly there I was with a diagnosis that explained it all!
No I'm not crazy. It's real and there is hope. Not for a cure but relief. I broke down and cried like a baby! Just that enlightenment ment so much and relied so much pent up stress I can't tell you. So be tough and persistent, there is relief waiting for you too.

Oct 08, 2015 5:31 AM

Thank you both
AmandaMiddleton the knee pain is often just above my knees but also to the side of knee caps on inside leg side if that makes sense. It's at its worst today and last night x

Oct 08, 2015 5:43 AM

No one else can know your pain and when nothing seems to change it can quickly become boring to others. I choose my confidants carefully and smile to the rest of the world.
The occasional winge on a forum like this helps a lot

Oct 08, 2015 5:54 AM

Katyhadenough, I've been having similar knee pain down into my feet. Feels like my feet are made of hot swollen glass and are going to shatter. My knees kill me and so do my hips. Still don't have any answers on this myself. I am not sure if spinal issues are causing my pain, well they say it is with the hips. I am going to keep pressing on the knee leg and foot pain. Will you keep us posted about what you find out? I will do the same if you are interested. ✌️❤️

Oct 08, 2015 6:10 AM

Course I will. I got a doctor's appointment tomorrow regarding knees, I've seen a reomotologist and my husband mentioned I was stressed (aunt battling cancer) it was imediatly the sciatica worsened by stress as nothing showing in my bloods :( xx

Oct 08, 2015 6:16 AM

Thank you! I love how they do that. Blood work came back normal or X-rays so everything's fine. Grr :( or your doctor doesn't want to deal with you so they refer you to a specialist who tells you there is nothing they can do. Round and round we go. At least me anyhow :)

Oct 08, 2015 6:19 AM

I have never had xray on my knees!! So frustrating. Yes swings and roundabouts x

Oct 08, 2015 8:05 AM

Katy, sorry for any typos right now as I'm getting infusion. It truly sounds like maybe a manifestation of the sciatica, Normally sciatica would go down the back of the knee. Sounds like Something you might need to ask your orthopedic surgeon about. Sorry I can't be of more help already.

Oct 08, 2015 8:26 AM

OMG I just told my husband I am tired of hurting and I didn't understand how he could put up with me. He said I know you hurt and I wish I could help. I said yes but how can you keep listening to me when I can't even stand to listen to myself. I am lucky he is always there for a light soft hug. When he is home he helps in anyway he can and he has had to pick up a lot of extra housework too. Sometimes he has even laid down with me so I can prop my legs on him to find a position that is a little less painful to get a little sleep because he doesn't slide around like a pillow and wake me. While I can give him that credit now it hasn't always been that way we have been seperated, divorced, back together then he left me for another woman and now back again. That of course is another story for a different topic.

Oct 08, 2015 9:02 AM

How amazing you both have worked through that shammagren. I'm so pleased you have the support you need now. My husband is also pretty good. I guess as I'm 34 and he is 36 were still reasonably young and I guess I'm scared ill lose him. I know he loves me though.

AmandaMiddleton, hope your recovery is speedy hun. My husband recently had a fusion on c6/c7 due to stinosis. He is 6 weeks on recovery and able to do more than I am. I feel really shirty for that. I did look after him and put all my pain aside for a few weeks and He isn't the type to sit still but still makes me feel crap. I will suggest that manifestation of sciatica . I've never heard of it. I will look in to that.

Thank you both so much. Really helps. So glad I found this. 😙😘

Oct 08, 2015 9:05 AM

No Katy, you're not ever alone. You are a warrior just like the rest of us, fighting pain and battling through the days. Perhaps if you express to your family how you are doing, they will be able to offer you the additional support you need that particular day. Trying not to let on how badly you're feeling adds stress to YOU!! Believe me, I know because I do it a lot. I went to pick up milk for my Mother yesterday and a lady recognized that I didn't feel well. She said that I had such a beautiful spirit and great disposition for someone who is in such pain. My response was, why would I make others feel badly because of my bad day?? It's not their fault. Anyway, you know we are all here for you to lean on. Hang in there. Sending you gentle {{{{Hugs}}}} and prayers that you feel better.🌻🙏🏻

Oct 08, 2015 11:44 AM

Just a thought to put out there. Something else to think about. Most of us talk about not talking about our pain all the time or not at all. I think we need to use reasonableness when it comes to this. We don't want to talk all the time about it. But as some of you said, your spouses have been pretty amazing. Mine has been. But I think in order for that to continue, we need to share what is going on in our life and how it is making us feel. This is probably one of the most important things in our life. We should share it with our significant other or our support group or they will close us out like we are unknowingly doing them. We think we are protecting them but we are shutting down a line to ourselves. People have an imagination. The ability to have empathy. If they have an ounce of love for people, they can imagine what it is like To be us if they set their minds to it. We don't need people to feel sorry for us but we do need people who are supposed to be our support group to understand us. We all desire to be understood. This is just a thought. Not a criticism.

Oct 08, 2015 11:48 AM

Eye openly true, I guess it's the type of people your surrounded by. Some people are like, here she goes, moaning again. I had a nick name, sick note which really upset me years ago and I guess my fear comes from the puss take back then. Where others are sympathetic. I guess there's also the fear of people getting fed up with the moaning. X

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