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Best meds against fibro

Jun 12, 2015 2:30 PM

Hello, there's that topic about best pain relievers which are not meds... now I wonder which meds work best against fibromyalgia. I tried many meds (Brufen, Lyrica and many more) but none seem to work. When my pain started the usual painkillers worked but after a couple of weeks or months they stopped working. Has anybody experienced such a change?

Jun 12, 2015 4:18 PM

I have tried all the pain relievers that were on the market for fibromyalgia when I had good insurance and all they did was mess with my mind not the pain now I have only state insurance and all my doctor will give me is hydrocodone 5/325mg. 3 tablets a day so even though I have a poor quilt of life I m learning that I takes time

Jun 12, 2015 6:08 PM

I could have fibro, but I am diagnosed with CRPS, part of the huge cluster of pains that are similar to fibro.
Painkillers don't really work for me anymore, at least not the common ones.
A few things that (usually) work for me are
-DMSO - Not really an approved med, but it's used by vets, it's itchy but I'm gaining movement now that I'm taking it
-LDN - only approved use is to prevent addiction by changing something in the opioid receptors, usually causes insomnia for the first couple of days
-Kava Root - a muscle relaxer, there are claims about liver damage, but I've been on it much longer than NSAIDS, and haven't had the side affects.
-Magnolia Bark - pretty amazing pain killer, has stopped hallucinations during bad pain days, there are claims about people dying from it, but there's a poisonous plant that got confused with it in a combination pill.
-Gallium - used to treat arthritis in horses, it also slows down bone loss

Jun 12, 2015 7:07 PM

My PCP diagnosed me in 2012 with fibro, but I had it several years before the official diagnosis. He'd always say things like, well you have the symptoms of... but I don't want to diagnose it yet. Funny thing is, I'm now officially diagnosed with all three issues he didn't want to say yet, fibromyalgia, hypothyroidism, & sjogrens, the last two confirmed by other doctors.

The PCP kept putting me on psychiatric drugs for the fibro, like Zoloft, trazadone, prozac, & remeron. I had severe allergic reactions to them all. Then he tried cymbalta. For nearly 6 months it seemed perfect, but then my behavior began changing, unrecognized by me. I became so irritated with everyone and everything in a snap, and I was getting more depressed. In an exam, during general questions, my rheumy doc identified severe side effects with potential for suicide. She weaned me off while adding tramadol back for pain. That was last year. I'm finding that on my worst days, of when I've walked or store to long, taking a muscle relaxer helps more than the tramadol. 🙏🌼

Jun 13, 2015 1:35 AM

So, I have a question for those days diagnosed with fibro. I was diagnosed with it. I have like three days a week where I suffer severe exhaustion with muscle pain and bone pain. I think when it happens, I have a low grade fever. The only thing I can compare it to is the influenza. I don't mean like when someone gets sick for a few days and they call it the flu. I am talking about the influenza where you feel like you are going to die. When I am in pain, I can watch tv and distract myself. But when these episodes happen all I can do is stare at a wall until it passes. I can just hear my heartbeat and feel my respirations. I really feel like I am trying to keep alive even though I know I get through them and will have it again. They usually last 4 to 8 hours. It is extreme pain during that time. I have to use my oxygen during that time because it feels difficult to breath. So they couldn't find anything wrong. They just said it was fibromyalgia. I just thought it was because they were to lazy to look further for the cause. But I thought with fibromyalgia, I had to have certain spots on my body that if touched caused intense pain. That these spots were not random but they are common spots with all fibro patients. They don't have them in all the places but they have a chart of the places and you should have what they call trigger points in those. I don't have that. So if I am wrong, can someone let me know. If I should believe them and my info is wrong, I would like to know I am wrong. Teach me!! 😁😀

Jun 13, 2015 8:15 AM

Ferretbandit, my vet gave my horse DMSO by IV and she stunk so bad for a week people at the barn were complaining. Even a bath didn't make it go away. Do you find there is any odor using the DMSO and how do you take it?

Jun 13, 2015 1:39 PM

Wrong button...
they nixed the tender point testing for diagnosis.
there is a new criteria that is some sort of survey and if your score is above whatever you are considered diagnosed.
apparently those tender points were used for selecting people for studies.
i don't get the tender points unless I'm in a bad flare but they still diagnosed me.
In fact the question asked to diagnose me with 'tenderness' was "what would you do is someone just jumped on you and hugged you?" Apparently the answer of 'I'd deck them in the face' means I'm sensitive to touch and they don't need to check.

Jun 13, 2015 2:21 PM

Always, DMSO has a smell, that is true. It smells kind of like garlic usually, but not as much if you put it on your skin. The one issue with skin is that it causes a temporary itch.
I've never used an IV, so I don't know about if the smell is different.
I figure if I'm getting mobility back it's worth a strange taste/itch/smell.

Jun 14, 2015 11:08 AM

I have a few other conditions but know that lyrics and cymbalta didn't work for my and I have found gabapentin as my savior. I'm literally I functional without it. Ask to try that one! You will have to start at a low dose and work your way up but trust me it was worth the wait for me

Jun 14, 2015 2:49 PM

I have a Syrinx, Fibromyalgia, Osteoarthritis, Syringomyelia, herniated disk uprooted nerve, several other as well as several other medical diseases. I was placed on Gabapentin then Savella,for my nerve pain top to bottom. I take Hydrocodn / Acetaminophen 325/7.5 2 tabs q 6 hrs.,Fentanyl Patches 50 mg q 3 days.

Jun 14, 2015 3:21 PM

Oops I was finally diagnosed with Fibromyalgia 4 yrs ago by a Dr in Houston. Every other Dr circled it with a question mark. When I saw this specialist in Houston and told him my history he said why aren't you on anything for your nerve pain in the lower part of your body? He told me not only was I having nerve pain in my upper body but as well as lower and the meds I was on only treated the upper nerves, I never knew that it took two separate meds to treat my over all nerve pain. But it was a miracle I can tell if I run out before I get my check. I can hardly stand to ride in a vehicle much less the pain of getting up and down. My insurance doesn't want to pay for it so every year my Dr and I have to send in paper work stating that Lyrica doesn't work for me. It's a pain in the neck. It cost me $69.00 with my insurance. It's worth it for the relief it gives me. My husband and daughter complain of hurting but won't even take Tylenol. I told them you must not be hurting too bad because if you were and they told you rubbing poop on it would make it stop you would. Lol

Jun 14, 2015 7:44 PM

Ferretbandit, I agree and you were right on target with the garlic like smell. When they infused they with it, you have to realize how much is need for a 1500 pound animal so the smell was quite strong. The only problem is that it made her kidneys start to shut down.. Please be careful with DMSO, that stuff is no joke!!!

Jun 15, 2015 1:09 AM

I agree is no joke, but when is on the skin I can move without pain. I've never gone without pain in my life, especially when it comes to my arms. I'm taking very small doses, but I'll keep checking with doctors and see what happens.

Jun 17, 2015 2:45 PM

As long as you keep up with the doctors while on this medicine, that's what matters. Hope you feel better soon.

Jun 17, 2015 3:19 PM

If you have a sensitivity to sulfa drugs DMSO can also be a problem.

Jun 25, 2015 1:27 PM

When I take antidepressants, I feel less pain. My doc put me on them although I had no depression. He said the antidepressants block the pain receiving cells in the brain - or something like that

Jun 25, 2015 7:51 PM

Thought it was interesting for a neurologist to say that antidepressants aren't actually that great for depression, with certain side effects but that a very low dose seems to help pain. I'm not sure if my body will respond to them or not but I have a new prescription.

Jun 28, 2015 9:06 PM

I have tried everything on the market. Lyrics worked the first day. Then I swelled beyond tolerance. Savilla was good but I prespired beyond tolerance. Dripped water off my fingers . I'm forced to live on narcotic pain meds so I can have quality of life. That's important to me.

Jun 28, 2015 9:25 PM

Lorenzo, your doc is right. Antidepressants affect the serotonin levels in the brain which affects pain. I hope it helps you.

Jones150, I'm sorry you are having such a hard time. It's very hard when our pain is so bad it's all we can think of. Is there any med others here have mentioned that you could try? I use Tramadol when I needed to for severe pain, real severe. But due to med allergies my options are limited, so my tolerance is high. I was recently diagnosed with Sjogrens, on top of hypothyroidism, & fibromyalgia. I started Plaquenil and there's been a email decrease of intensify, but the doc said it would be six months for full several of effects. I'll be praying for you, that you get the best treatment possible to function! 🙏🌼

Jun 29, 2015 3:20 PM

I tried Tramadol. It made me very dizzy but had no effect on my pain.

Jun 29, 2015 3:55 PM

FlappysLady, I have Sjogren's and fibromyalgia too. Other stuff. I have always had the severe dry eye problem. The dry mouth has only been a problem for the past couple of years. I find there are times that my tongue hurts. All over. Very sensitive. Like today!!! Ow!! I have what look like cracks on the top of my tongue. I think when I get them is when I'm having a flare. Does that make sense? Also does anyone else deal with tinnitus? I have a hard time knowing when or if I'm having a fibromyalgia flare or a Lupus flare. It's confusing with the overlapping of chronic conditions.

Jun 30, 2015 12:27 PM

Yes, it absolutely makes sense! I have them and I'm in a flare right now (fibromyalgia & sjogrens), but I didn't make the connection like you. Thank you! My fingertips are splitting to. Just got my sjogrens flyer yesterday, and it mentions having burning and pain in the mouth. Maybe we'll both have a short flare up... We can hope & pray! 🙏🌼

Aug 06, 2015 12:48 PM

I'm on amitriptiline, duloxitine, fluoxitine, and dihydrocodeine for my meds also take some other stuff but I find I have to change painkillers after they stop working so good

Sep 02, 2015 6:43 AM

I cannot get anything prescribed except diclofenac, amitryptylline and Zanaflex. None of these helped. Lyrica made me dizzy, foggy, and edemetous. Oh yeah, Tramadol as well was prescribed and it didn't touch the pain. Seriously, I'm a nurse and I do not want a "fake" opiate, which I'm pretty sure caused withdrawal anyway and made me feel more foggy and unable to perform my job.

Sep 02, 2015 6:44 AM

And, yes, Cymbalta, "miracle" antideoressant. I'm taking that, but only slight slight improvement after 6 mos.

Sep 02, 2015 8:24 AM

MSRN28, I have been in chronic pain for 22 years. I've been diagnosed with DDD, DJD, TMJ, CRPS/RSD, cervical spondalytic myelopathy, Long thoracic nerve palsy, scoliosis, lordosis, sciatica, depression and anxiety. I was also diagnosed with Grave's Disease and they removed my thyroid and now am hypothyroidism on synthroid (sometimes I forget to take it). I'm on morphine, oxycodone, Ativan, Zanaflex and temazapem to help me sleep. (You'd think with all the shit I take, I'd be sleeping all the time!!!). The only drug out of them all that knocks me stupid is the Zanaflex. It makes me sleepy, I can fall aeep in the middle of a conversation but can't sleep at night.. I can't remember things from the fibro fog and also this muscle relaxer. I've had people call me and tell me that I sounded out of it when I spoke to them. I've cut the dosage down and it still knocks me dopey!! There isn't another muscle relaxer I've been on that helps with the spasms. (Fortunately, Zanaflex is short acting and I only take it in the late afternoon, early evening). Does it have that effect on you?

Sep 25, 2015 10:35 PM

I take Cymbalta, gabapentin, flexeril, & fetanyl patch & oxycodone for pain and Toradol to help rid the flares.

Sep 25, 2015 10:46 PM

Alwayzinpain I use to do that pre-mpre-modafinil, plus falling asleep eating, walking, driving, etc...hhad multiple falls that sent me to the ER for stitches. I also have hypersomnia so instead of not being able to sleep (iI still do also have insomnia) I sleep tons! 12-16 hrs a day, and when it flares I sleep 36-76-72 hrs straight. The stupid thing is that narcolepsy causes insomnia. Haha! I go 1-2 months w/iinsomnia aand a few days of hypersomnia, then 1-2 months where I can't wake up hardly at all most days. I just felt like I needed to tell you some of its just because of how you said you can fall asleep in the middle of a conversation. I'm not trying to say you have this,bbut keep it in the back of your mind if things get worse and please be careful.

Sep 26, 2015 1:09 AM

One of the best meds for me to cut down on my pain was kinda two fold. First I take suboxone. Aye aye aye I know what it's for, but it is awesome for nerve pain. And secondly cut out most of my white sugar, from processed foods everything. Like I said cut most of it from Mr diet. The difference itvhas made in my health over all is in credible weight feeling better you name it. Sugar is like 40times more addicting than cocaine.... Think about that one for just a min.....

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